I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: Falkenbach on April 26, 2007, 10:08:16 PM
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Finally, I have the date for my kidney transplant operation.
Wednesday, 30th May. My dad is my donor. Finally, the anxiety of waiting is over. :clap;
I'm scared, but so glad at the same time. Now I have a time frame, I can try to plan getting my life back together.
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Woohooo, count down time, as of tomorrow, 33 days to go!!! I can just imagine how your emotions are running ;) ;)
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This is wonderful news! :clap; Please know that our caring thoughts and prayers are with you. We will be with you every step of the way. Just keep us posted.
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Woohooo, count down time, as of tomorrow, 33 days to go!!! I can just imagine how your emotions are running ;) ;)
Yeah - Something like this: :D ??? :) :-[ :-\ >:( :clap; :'( :2thumbsup;
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:yahoo; YAHOOOO!!!
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I'm still a bit scared.
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This is great! Not to long of a wait now, congratulations
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Wonderful news!! I so hope it goes well for you and your dad!! It would be great having a goal to count down to... "only x more dialysis sessions to go!" I so want that!
great news!!!
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Congratulations !
The date is set, the countdown begins !
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Congratulations, Good luck. :clap;
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Your Father is a brave and wonderful man who loves his daughter. I hope and pray all goes well for both of you. When you wake up you will be able to drink milk and pee. Ahhhhhhh The simple things of life.
I'm going to sticky this because this is probably the thread you will be posting in for us to follow your progress.
Rerun, Moderator
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Thanks. ;)
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:2thumbsup; :2thumbsup; :clap; :clap; CONGRATULATIONS !! WooHoo. :2thumbsup; :2thumbsup; :clap; :clap;
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I am so happy for you!!!!
I can't wait for the day I can do a post like this!!!!!!!!
Best Wishes!!!
Lisa
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Congratulations!
How wonderful for you and what a super Dad you have there.
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Great news. Congratulations.
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YAY!! Congratulations.. great news!!!! :clap; :clap; :clap;
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Wooo Hoo!!!! Congrats!!! I will pray everything goes well for you!
Lori mom to Dustin
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Aww, you're all awesome and I'll keep you updated. 4 weeks is so soon, yet so far away! (Probably feels far away because I'm nauseous today). :thx;
I am super pleased that I have managed to avoid dialysis, can't believe how lucky I am on that front. I guess I deserve SOME luck - we all do!
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:clap; so very happy that you have a date to look forward to, Cycobully! The time will seem to go by more quickly than you think~ Wishing the very best for you and Donor Dad !!!
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That is such GREAT NEWS! Focus on the positive...this is what we have all been hoping and praying for you. It will be here before you know it and we are all looking forward to reading about your "adventure"!
Hugs :grouphug; :grouphug; :grouphug; to you and your dad!
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Truly wishing all goes well and swiftly for you and your special father. Honestly, I didn't want to post initially because these stories make me jealous but I am very happy that you will get to see Slayer again without having done dialysis. I know you will keep us current. Best wishes for you, George
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I am so pleased for you! Congratulations, and please do keep us posted on how you and your dad do
afterwards! This is wonderful news! :beer1; :beer1;
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TERRIFIC NEWS!!!
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Good luck. And I hope the wait does not get to you this month!
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:clap; Great news. :cuddle;
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Congrats! Please keep us informed of the whole process. :cuddle;
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Honestly, I didn't want to post initially because these stories make me jealous
I guess I can understand that, even though not experiencing it. And I truly wish you will get yours soon. A donor is out there somewhere George, keep your chin up. :grouphug;
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Last night I got hit with the most sudden and intense headache, followed shortly by a nasty bout of nausea. It's never come on so quick! I went straight to bed in a dark room, and kept warm, but it didn't help. I had my husband collect me some pain killers, which also didn't work.
In the end I took some Xanax (which I don't really like to do) - in fact I took extra - just so I would zonk out and go to sleep. It was the only way to become unaware of the discomfort.
I've never had such a SUDDEN onset of feeling like **** like that. Ugh! Is this common? For me, it normally creeps up a bit slower. My creatinine was at 500 a couple of weeks ago, and I'm only 46 kg (less than 110lbs I think).
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Congratulations on getting your transplant date set! I'm so happy for you! :cuddle;
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28 more days! :clap;
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Yeah, it's pretty close now. Wow.
I'M SCARED!! But so relieved, at the same time.
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They will give you a sedative or something when you get there. You have the easy part. When you wake up you will be in some pain, but you'll know it is worth it. Its not bad and they give you pain medication. You'll do just fine.
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Yeah, I get pain medication on a self-administered button apparently. It's timed though, so I can't over do it.
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26! Yippee!
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Ha ha, I've just been keeping a rough guide in my head ("oh, about 4 weeks") but you guys are all counting the exact days. Love it! Each time I read that I think - wow, it really IS close! huurrrraaahhh!
:2thumbsup; good stuff forum.
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I am so pleased each time a IHD gets a transplant......it lets us still waiting realize what an amazing feeling and experience it is.
Cant wait to hear all about it.
nearly there.......! :clap;
Amanda
xxoo
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I know how you feel. I have my donor. Will be getting my transplant this fall. I'm scared and anxious at the same time. Will find out in June when it will all take place..good luck to you.
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Ha ha, I've just been keeping a rough guide in my head ("oh, about 4 weeks") but you guys are all counting the exact days. Love it! Each time I read that I think - wow, it really IS close! huurrrraaahhh!
:2thumbsup; good stuff forum.
EDITED: Fixed quote tage error-kitkatz, moderator
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I just hope the best for you Cyco and that the transplant is a success. :beer1; :cuddle;
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Cheers. :beer1; You all rock. Really. Gosh, on my other forum (a music one) they're all just awful. Well, not all of them - I made some great friends there. But lots of them are really mean.
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24 Yipee ! :2thumbsup;
Closer and Closer !
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It gives us all hope when someone gets a kidney. We are living vicariously thru you and we are all so excited for you. This has been a good year for IHD members. I am waiting for my turn! :clap;
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It gives us all hope when someone gets a kidney. We are living vicariously thru you
\
And you're quite welcome! :thumbup;
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I'm not sure how I missed this thread, but... never too late to say CONGRATS!!!!!! :clap; :clap; I'm sure everything will go great, I will keep you in my prayers. :)
Angela
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20 days cycobully :2thumbsup;, are your bags packed girlfriend? how exciting :clap;
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Gosh, no! I will probably pack my bags the night before. OR when my mum comes to town, she'll have me running around and organised, she'll be cracking out the whip. There's no messing with my mum or her military organisation skills. :D
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If you haven't seen them as yet, there are a lot of helpful hints for the hospital stay that the National Kidney Foundation has collected from past living donors.
Helpful Tips for Living Donors and Caretakers: www.kidney.org/transplantation/livingdonors/infotips.cfm
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Thanks for that Okarol! Very useful.
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15 days to go!!! :2thumbsup; :clap;
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2 weeks from now you'll be a new person. :grouphug;
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:yahoo; Good News for sure!!! I will be praying that your transplant goes smoothly!!!!!!!!!!!!!!!!!!
Lori mom to Dustin 21 FSGS on dialysis
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:bandance; D R U M R O L L P L E E Z E! ;musicalnote;
1313131313131313131313131313131313131313131313131313131313131313131313131313131313131313131313131313131313131313
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Cycobully,
Thinking of you and wishing you well!
kelli
P.S. Wanted to add that I found it great to have a hand held fan at bedside. Its terrific for when you diaphorese post surgery. Thats fancy talk for sweating off extra fluid :)
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Sorry about the late reply but I just caught onto this thread now but Congratulations!! What great and exciting news!!! :bandance;
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I'm getting scared. I know that might annoy some of you, some of you are thinking "hell, at least you're GETTING a kidney so man up will ya?" but I am - I'm really scared.
I spent yesterday in tears again.
but overall, I think I'm happy. I've been thinking a bit lately actually - I think most people who have had a serious illness like kidney failure would probably not change it if given the opportunity. Perhaps I'm grossly wrong. But I think about the whole new perspective I've got from going through this, and I feel it's been very valuable learning, that otherwise might have taken me many decades more to reach under normal circumstances.
Perhaps that's all easy for me to say 'cause I haven't had to go through dialysis yet, or any of that.
What is your take on this, everybody?
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:yahoo; I just found this thread and I want to extend my congratulations to you. You have an awesome father and I am glad that you didn't have to go through dialysis first. It will be an awesome experience I am sure and I do hope you keep us posted!! :grouphug;
Earlinda
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I think being fearful as you head into elective surgery is normal!
Try to stay busy, learn all you can about immunosuppressants and get ready to drink lots of water!
Walk and get exercise everyday, it will help in your recovery.
Stay away from sick people, even a cold can delay the surgery.
Tell people you cannot have flowers in the hospital, they don't allow them to transplant recipients.
Find people to help your dad afterward, a few meals and some cards too, would be a nice tribute to his donation!
Start a journal, perhaps at www.caringbridge.org (it's free, and it's great for just this purpose) so friends and family can follow your progress. Have someone update it while you are in the hospital.
It's a very exciting time! Try to enjoy it if you can!
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Thanks Okarol. I do some pilates or light aerobics most days, or else some yoga. I already have a sign on my door telling people not to come in with colds, flus or anything else contagious. My sister will hopefully be able to look after dad once he gets home (he lives interstate) 'cause mum is going to stay with me for a week or so.
I knew about the flowers, thanks for the reminder, I will have to let people know.
I keep meaning to start packing my bag, was going to go to the library today to get a supply of books, though I don't know if I'm going to feel like reading in hospital. Still, it's good to be prepared in case of boredom. I have tons of books, but I'vfe read them all several times. :lol;
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Thinking of you Cycobully, as you head into the unknown~ knowing you will do great! Can't say I know what you are going through, but can only imagine and it makes me jittery just thinking about it. But it is ALL GOOD!!! Take care!
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I think most people who have had a serious illness like kidney failure would probably not change it if given the opportunity. Perhaps I'm grossly wrong. But I think about the whole new perspective I've got from going through this, and I feel it's been very valuable learning, that otherwise might have taken me many decades more to reach under normal circumstances.
Perhaps that's all easy for me to say 'cause I haven't had to go through dialysis yet, or any of that.
What is your take on this, everybody?
Actually, I might start a thread on this. Yep. I will. I'm interested to see what people have to say about it.
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Today they tell me there's some last minute problem with the final crossmatch test - supposedly nothing major, and they're not worried, but they have to re-run some test and I may not know the result until late Monday. I'm supposed to be admitted to hospital on Tuesday.
I do hope nothing upsets the whole process at this late stage. If anything goes wrong, I would then have to start dialysis straight away while they sort it out. :thumbdown;
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I hope everything turns out OK and the transplant is a go ahead.
My sister was scheduled to have her transplant before she started dialysis but the day they were admitted my mother (the donor) got a cold and it couldn't happen. She started dialysis straight away, and received the transplant a couple of weeks after.... all went well even though it was unfortunate she had to start dialysis, at least she had a donor.
Regardless what happens I'm sure all will be OK.
Amanda
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Thanks Amanda.
I've stayed home for the last 2 weeks, pretty much, to avoid getting any colds or anything. I've been worried about dad (my donor) as he is a taxi driver! But so far, so good, he hasn't picked up any colds or anything.
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Just wanted you to know i am thinking of ya Cycobully and i am so excited for you, less than a week to go, i cant even begin to imagine all that is going through your head. It's all going to be ok girlfriend, love ya :cuddle;
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Yeah I'm excited. i'm frightened of course, but I suppose I'd be a bit weird if I wasn't. Apart from having an arm re-set (thank you Osteoporosis!) I've never had an operation.
I'm really looking forward to getting to the recovery stage, obviously! I wanna see what normal feels like again, and before too long, go back to work. I really want to go back to uni too, but we'll have to wait and see if I'm up to doing both.
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Goodluck
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Can't image what your feeling right now, excitement, fear , and every other emotion i bet, Take Care thinking of you :cuddle;
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Time is coming, good luck cyco. We're rooting for you!
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Wow the day is near where you can live life to the fullest again. I remember when i recieved my transplant. It was Janurary 22 1993. I don't remember what day of the week it was. I came home from work and there was a note on the frig that said transplant jan.22 go to hosp. for last dialysis brother in at 7 am you in 1pm. I remember reading that note over and over in fact i still have a scrap book i made from the whole time. When the day came i went to the hospital and was laying in a bed getting dialysis. I had a catheter then so i didn't care. Once that was done i went in the hall and saw my brother go to the operating room. I was allowed a few seconds with him. He had on a shower cap and was a little loopy on whatever they gave him. He is 13 years younger than me i remembered taking care of him when he was a baby. Now i look at him about to give the gift of love and was over whelmed with emotion. I bent down and kissed his cheek and told him i loved him. I waited in my room for hours. i was worried. i was hopeing and praying everything went ok. The next thing i knew they were carting my butt to the operating room! I didn't see my brother come back but i was told he was ok and asking about me. It was cold in the room, well any room in the hospital is cold in a hospital gown!! The last thing i remembered was looking up and seeing some of the nurses and techs from dialysis. They had asked if they could watch so i said sure. When i woke cycobully i felt like a million dollors. I was reborn. And so will you. good luck.
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Thanks for sharing your story Keefer, now, let's get you another transplant my friend so you can feel like a million bucks again :2thumbsup;
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When i woke cycobully i felt like a million dollors. I was reborn. And so will you.
That is fantastic. Thanks for sharing.
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fingers and toes crossed to hear from you in a few weeks telling us how wonderful you feel!!! So can't wait!! :)
All the very best.. you will be in our thoughts!
It's so good all the members who have gotten 'the call" or "the date" this year!!
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All good thoughts coming your way for plans to go as hoped!
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I'm terribly frightened, people. I've been sneezing for days, which I ignored at first because sometimes I have allergies. But it's the wrong time of year for that, being winter down here (well, almost winter). Anyway, yesterday, I started to get a really runny nose.
PLEASE DON'T LET ME GET A COLD. If my transplant gets put off, I'm pretty sure the plan is to put me straight on dialysis, as my creatinine is too high now to be left as is.
Please please don't let this happen to me, after all this waiting, all these tests, all this stress and anxiety :'(
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Take it easy Cycobully. Do all you can to not get a damn cold.
Tamara xxx ooo :cuddle;
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Yep, I'm staying home resting and drinking lots of fluids. I'm expecting hubby to cook dinner tonight, since it's Saturday! I'm just going to rest.
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Saying lots of prayers that you stay well and everything stays on schedule. I am very excited for you and can't wait to hear that all is well :cuddle;
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Good Luck CB. Do not even entertain the thought.
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Nose is still running, and my sinuses are giving me hell. Running out of time for this to GO AWAY. :( Worried.
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Just want to wish you luck for your operation this week ;)
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Cycobully, just hoping and praying that you still haven't got the sniffles. Let us know how you are.
If it is a cold it will only delay it , and that would be the best thing, remember you want to give that kidney the best chance it's got once in.
Thinking of ya
Tamara xxx ooo :cuddle; :cuddle; :cuddle;
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CB, hope all is well with you, goodluck with the pending transplant.
Thinking of you.... :cuddle;
Amanda
xxoo
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Hi ya all
I woke up this morning with a dry nose. Had a pre-admission clinic to attend, no worries there. I am being admitted tomorrow (Tuesday), and the transplant is taking place on Wednesday.
HERE WE GO!
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Oh Cycobully that is great news!!! :2thumbsup; I'm SO happy for you.
Best of luck for the transplant... You will wake up feeling like a million dollars!! ;D
Rest well and let us know how it goes... We are all praying for you!!
Amanda
xxoo
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YOU GO GIRL !!!!! :yahoo; :yahoo; :yahoo; :yahoo;
Good Luck for both you and your dad.
We will be thinking of you.
Tamara xxx ooo :cuddle; :cuddle;
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Good Luck to you and your dad :grouphug;
I will be praying for both of you :cuddle;
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Good luck with the transplant and may it last a long long time. :thumbup;
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Good luck!!!! You & your dad are in thought and prayers.
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:cuddle;
Will be thinking good thoughts and hope to hear from you soon!
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Well, right about now I should be getting in the shower and getting ready to go into hospital admissions. The internet really is a time waster!
Had a call from my sister from interstate at some early hour this morning - I was woken by the phone ringing, it was still dark, I couldn't fully wake up but it gave me a sense of panic that the phone was ringing in "the middle of the night" (I didn't know it was after 6:00 in the morning) - and it was my sister. She's half hysterical with misery because she can't be here. She's got a nasty cold and so has her baby daughter. :(
I'd prefer for her to stay home and rest and get better anyway, but I understand why she wants to be here. After all, I am her sister, and my donor is our dad!
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I will be thinking of you all week and your in my thoughts and prayers!! Good luck!! :)
:grouphug;
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Good Luck CB..***fingers crossed***
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You and your dad are in my thoughts and prayers. As much as you want to see family and friends, have them stay away if they are sick. Think of the big picture and what's best for that new kidney!!! :cuddle; :cuddle; :cuddle;
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Good Luck cycobully you will be in my thoughts :cuddle;
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Wow, the time is here already, seeeee how time just passes us by? crazy huh :urcrazy; Cycobully, you take care girl, good luck to you and your dad and you too, will be in my thoughts and prayers, :cuddle;
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:cuddle; Well Cb its Tuesday night and your Transplant happens in the morning... I wish you and your Dad a speedy recovery. I am sending positive thoughts to Adelaide, that all will go smoothly.
You will be home in no time. :grouphug;
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IT'S HERE!!!!!!!!!!!!!!!!!!good luck tomorrow. we're all thinking of you.
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Good luck Cyco...I so hope it's working out well for you. I'll be praying for you and your Dad! :grouphug;
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Cyco:
My family and friends are all here for dinner and we are toasting you and your father. Here's to a speedy recovery for both of you! Please don't keep us waiting too too long for the glorious details!
Keep smilin'
Yonanamama (Debbie) :beer1;
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God speed. Good luck!
My prayers are with you!
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:cuddle; Its Wednesday night and it should all be over. I have been thinking of you today and wishing you well. :beer1; Heres to a great new start!
Looking forward to all the details.... :2thumbsup;
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Well, it's Thursday. I wonder how it went.
I hope they both have a speedy recovery. I'm so happy for her. :yahoo;
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I am sure it all went fine but i am still gonna keep praying till i hear it from Cycobully herself ;)
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Adding my well-wishes to the rest of the family's here. Hope you or your sis will update us soon!
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Anxious to hear how Cycobully is doing. It has been a good year for transplants at IHD. No news is good news - right?
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Hoping all is well. :grouphug;
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Been thinking of you.... hope all is going well and that your feeling as good as new. :cuddle;
Amanda
xxoo
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It's been a while, man, I hope she and her dad came through.
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definitely hoping for good news soon! :)
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Hope everything is going well for you Cyco!!
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Hope we hear soon been thinking about you :cuddle;
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Hi all
Just a quick not to let you all know that my kidney transplant, after some initial hiccups, appears to have been a success. I'm home from hospital and I'm pretty well, as is my kidney donor (my dad).
Not much up to sitting at the computer right now, so will talk to you all again soon.
Regards
Louise
South Australia
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:bandance; :bandance; :bandance; Wooohooo Louise.
Thats great news. Update us all soon. :grouphug;
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So glad your doing good! Looking forward to hearing about it all soon :)
:grouphug;
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wooohoooo....hope to hear good thinks
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So good to hear from you great everything is goiing well
Cheers Charee
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:2thumbsup; So glad to hear everything went well !
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Oh boy, doing the HAPPY DANCE here!!!
:yahoo; :bandance; :yahoo; :bandance;
:clap; Best wishes!
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Glad things worked out, hoping they continue for you & your dad.
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Hi all
Just a quick not to let you all know that my kidney transplant, after some initial hiccups, appears to have been a success. I'm home from hospital and I'm pretty well, as is my kidney donor (my dad).
Not much up to sitting at the computer right now, so will talk to you all again soon.
Regards
Louise
South Australia
Great to hear from you Cyco, look after yourself and fill us in when your more up to it :cuddle;
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How wonderful!!! This is the best news I have had today!!
Have a drink (or three) for us!!! WOO HOO
fingers crossed things continue to improve for you!
The update is much apprieciated!!
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One complication I'm having at the moment is masses of fluid on my legs - both my legs, top to bottom, but particularly in the ankles and feet, look pretty much exactly like George Jung's avatar so I can't really do anything all day except sit with my feet up. The docs gave me some diuretics today which certainly had me frequenting the bathroom, but did not bring the swelling down at all. Not remotely.
Anyone have any tips? It makes it near impossible to get to my appointments all over the hospital that I still have to attend in the early mornings.
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Good luck and great news!
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Hey CB,
I'm so glad your out of hospital and back at home, but not so good about your swollen legs. Sorry i don't know much about that, you should call your doctor if things get worse.
Hope it improves. Can't wait to hear more about your experience when your feeling better.
thinking of you.
Amanda
xxoo
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YAY!!!! :bandance; :bandance; :beer1; I am so glad all is well (more or less) with you and your dad!! I am sorry about the fluid build up,
that's a pain! Just keep them up past your waist, as long as you can!
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I am so pleased that everything went well,i have been checking everyday waiting for you to post some good news :)
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One complication I'm having at the moment is masses of fluid on my legs - both my legs, top to bottom, but particularly in the ankles and feet, look pretty much exactly like George Jung's avatar so I can't really do anything all day except sit with my feet up. The docs gave me some diuretics today which certainly had me frequenting the bathroom, but did not bring the swelling down at all. Not remotely.
Anyone have any tips? It makes it near impossible to get to my appointments all over the hospital that I still have to attend in the early mornings.
What did they say at Clinic? If they are happy with your progress, you can relax and keep your legs elevated. They will be keeping a close eye on you and if they think it is a problem you will be admitted again. Just take it slow and the fluid will come off eventually. :cuddle;
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They've given me some more diuretics at this morning's clinic, but so far today I haven't needed them, which is a good sign. Having said that, I was extremely tired so have spent most of the day lying prostrate, therefore the legs haven't had a chance to fill with fluid!
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Well, helloooooo Cyco (Louise) ;) So glad to hear that your transplant was a success, 2007 has been an amazing year for some of our members, i hope many many more are able to get their transplants as well. Sorry to hear that your legs are swelling and i hope they get the problem resolved quickly. Please keep us posted, we've missed ya girlfriend :grouphug;
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I'll be around in little bits and pieces!
Boy am I sore, around where they gave me the biopsy on my new kidney last Wednesday. Very sore site indeed.
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Thank you for keeping us posted on your progress. Our caring thoughts and prayers are with you always. Continue to do well. Let your father know that we consider him a great dad!!!
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Awww you're all wonderful, and I know how fantastic my dad is.
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Louise, do you feel any better now? Is the swelling going down yet? I'm very happy it's going (relatively) well for you! Other than the swelling and the soreness....
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I feel good, but I think I'm stuck with the swelling for a week or two. Thanks for askiing. :thumbup;
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:bandance; Cyco,
Yippee!!! Praise the Lord sounds like your getting along pretty good. Hug your dad for me! Wish I could be a donor but cant due to having bp problems for like 15yrs.
Keep us posted! :2thumbsup;
Lori/Indiana mom to Dustin 21 ESRD
EDITED: Fixed :bandance; icon - Goofynina/Admin
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I'm so happy for you. I am looking forward to having my transplant now, and I am scared shitless! But i am also looking forward to it.
Congratulations again, and goodluck!
Jaybird :clap;
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Jaybird!! I have missed you! When is your transplant?
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I'm so happy for you. I am looking forward to having my transplant now, and I am scared shitless! But i am also looking forward to it.
You will be so much happier after it! You will just be on top of the world.
Despite being still a bit sore around the site, I couldn't be in a better frame of mind, and it's only been 2 weeks and a bit! It all just seems so - well, positive. I had a pretty rough few days there at the start, but I got through it and so will you.
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So glad to hear everything is still goinng awesome! :clap;
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The fluid retention is gone, and I am on top of the world.
I still have one major hurdle to overcome - the removal of the stent - which is making me a bit nervous, though they (the hospital staff) insist the process doesn't hurt. They would say that though! lol.
They told me it will be somewhat like an uncomfortable pap smear. I thought "hmmmm - I don't know of any OTHER kind of pap smear" :rofl;
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Glad to hear the fluid retention is gone... and you are feeling so well! :clap;
A friend of mine who has recently had a transplant got her stent removed on Friday, she was very nervous and anxious so they put her to sleep under sedation... maybe thats an option for you.
Amanda
xxoo
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Jenna's surgeon removed the stent in less than a minute using a catheter device. She wasn't sedated or uncomfortable (except for a little tug.)
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I had mine removed on Thursday. It was like an extremely uncomfortable pap smear. It took a little over five minutes. First, he inserted some jelly as a topical anesthetic. Then he inserted the catheter device. After this, he spent a few minutes checking the bladder and making sure everything looked okay before pulling out the stent. The worst part is the insertion of the catheter type device. Then, it's less uncomfortable when they observe and whatever. Finally, when they pull it out is the last bit of extra discomfort. Two main things that helped were a lot of deep breathing( especially a huge exhale when they take pull out the stent) and instead of stiffening up try to push down on the table and that will relieve some of the pressure on the ureter. Hopefully this helps a little!
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cb - so glad the fluid retention is gone.. Have a few drinks for me!!!
I hope the stent removal is ok... so pleased things are going well for you!!
*hugs* xox
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Thanks for the replies re stent removal, it helps. I might take some relaxation medication first, I'll talk to the doctors about this beforehand.
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Cycobully.. I am so glad to hear everything is going great for you hun. YAY! :2thumbsup; :grouphug;
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Wow, after only a 3 weeks and a bit, my creatinine was 129 this morning (pre-transplant was 560).
This kidney was running at 126 when it was still in my dad! I am so happy.
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Great! How's dad doing?
:cuddle;
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Starting to get better now. He's just been so sore, with all that extra handling they had to do. He was really miserable for a while. He doesn't tell me that, when I ring and ask, but I get the truth out of mum *sneaky* :)
But he has been doing some walking around and getting back to normal. Still has a few weeks off work (very little income, therefore, which is a bit of a worry for them). I think he'll be just fine in the long run. He comes from tough, farming stock my dad.
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Starting to get better now. He's just been so sore, with all that extra handling they had to do. He was really miserable for a while. He doesn't tell me that, when I ring and ask, but I get the truth out of mum *sneaky* :)
But he has been doing some walking around and getting back to normal. Still has a few weeks off work (very little income, therefore, which is a bit of a worry for them). I think he'll be just fine in the long run. He comes from tough, farming stock my dad.
We make em tough out here don't we Louise. at least you can find out about your dad the sneaky way ;)
Good to see your kidney is working great!
Tamara xxx ooo :cuddle;
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Glad to hear that everything is going so wonderfully.
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Great to hear CB that all is going so well. :2thumbsup;
Amanda
xxoo
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Still no word on the stent removal. I'm at the 4-week mark as of yesterday. Yesterday my routine urine sample was showing white blood cells, so they sent it to pathology to ensure I didn't have a bladder infection, and I started a course of anti-biotics just in case. But no infection showed up, so the anti biotics have been stopped.
Had a little fright today, but it turned out to be nothing serious. I was, fortunately, right in the room with one of my doctors (not one of my renal appointments) and I was literally mid-sentence telling her how great I'd been since the transplant - and suddenly I got all faint, light headed, nauseous and HOT HOT HOT. Apparently though I was cold to the touch and my pulse had gone really slow, I was also shaking badly and my doctor said I had instantly gone pale too. I had to lie down, couldn't even stay sitting up. So they called an ambulance and sent me to the hospital, because obviously you don't take any chances with a new kidney.
The renal registrar who I see at clinic 3 times a week came to see me as soon as I got in, ran various tests and everything was okay. In short, I just had what was effectively a bit of a faint spell. I felt fine by this stage, and they were happy for me to go home and rest (I had been planning to head into town to join my team for our weekly trivia night, but I guess that just wasn't to be, today!).
I have clinic again first thing in the morning, so I'll get followed up then too, but obviously everything is fine. My blood pressure and pulse went back to normal pretty quickly, though the shakes took a while to settle. Renal docs think this is due to the cyclosporin, as my levels have been high. We have just reduced my dose and will be possibly looking at reducing it again tomorrow.
Phew. That was a little scary for a short amount of time, there!
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Glad the scare is over and your doing good hun. :grouphug; I'm so happy another IHD member is transplanted and on their way to having a wonderful *normal* life.. makes me smile!
:yahoo;
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I'll be much happier once the stent removal is over with. I'm all nervous about that for some reason.
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Stent is being removed on Tuesday! I might just pop a little Xanax tablet before I go in, help me relax. I'm not a pill popper, don't get me wrong. But I'm just nervous about this. So silly of me, really, considering I coped so well in the lead up to the transplant, and the stent removal is such a small thing in comparison! :urcrazy;
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Hope all goes well Louise. How are you feeling otherwise?
Best,
Karol :cuddle;
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Good luck :)
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Hope all goes well Louise. How are you feeling otherwise?
Best,
Karol :cuddle;
Not bad, but quite sore around the scar. A bit bothered by some medication side effects, but can't really complain about much. I have much more energy than before the transplant.
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Great news! You just keep on keeping on.
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Glad you are doing well CB. Congratulation!
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I forgot to take my medication last night. The info I was sent home with said that if you forget for more than 6 hours, then skip that dose and take the next dose as normal. So that is what I have done, just taken this morning's dose as normal, but skipped last night's.
Having only missed that one dose, I feel absolutely terrible. My temperature has been high all morning and I feel nauseous and shaky. I am supposed to be having the stent removed today, I guess it will still go ahead.
I called the transplant nurse very early this morning, and told her what had happened, and she said that basically what I have done was all I could do (e.g. skip the dose and take this morning's). But now, a few hours later, I'm still worried because my temp hasn't come down. I've been on the phone trying to get hold of somebody at the renal unit - I did speak to another renal nurse who I don't know, and she was going to get the transplant nurse to call me back, but I haven't heard back yet.
I am due at the hospital for the stent removal in less than 2 hours anyway, perhaps I should just go in early and try to find a doctor to check me over? I could always head in to the emergency room, I guess, though they tend to keep you waiting for many hours anyway.
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How high is your temperature? Jenna's surgeon removed her stent, and if she had felt as you do I believe they would have examined her vitals before going forward.
I hope everything works out.
:cuddle;
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It was 37.9 C when I woke up. Now it's around 37.7 C - not overly high, but still too high.
Heading to the hospital now, I'll probably get there an hour or so early and that will give me time to drop in to the renal ward and find a doctor or somebody before the stent removal.
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Hope it all worked out for you hun. :grouphug;
BTW: My experience with going to the ER after a transplant is a lot less wait time when you tell the triage nurse you have had a transplant, they seem to move you along faster, at least in my own experience.
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I was held up and didn't get to the hospital early enough to visit the renal ward or ER first, so I went straight to the day surgery area for my stent removal appointment, but spoke with the nurses and doctor about this morning's situation. By then my temperature had come down, and they didn't seem concerned. The doctor was the surgeon who operated on my dad, and I have plenty of faith in him. So, since he was unconcerned, I am not going to worry. My temp has remained down (enough, anyway) this afternoon and this evening.
The stent removal went fine, though it was a pretty horrible process imo. Not necessarily overly painful (though it did hurt a little bit) but certainly extremely uncomfortable and seemed to take longer than I thought it would, and although I was trying to keep my breathing relaxed etc, I was clinging onto the edges of the stretcher, white knuckled and very unhappy! This whole process was followed by a particularly painful anti-biotic needle in my thigh. I'm usually okay with needles, but this one really hurt, and the site is still very sore now.
But at least it's over with!
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Well even though it was a bit painful I'm glad to here your fever went down and everything went well with the removal.
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Hello Cycobully, Is the stent a new thing they use? When i had my transplant I am pretty sure they did not use it. So glad Everything is going good for you.
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Hello Cycobully, Is the stent a new thing they use? When i had my transplant I am pretty sure they did not use it. So glad Everything is going good for you.
Not everyone needs a stent after transplant. I never had one either of my transplants.
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If I remember correctly from when my doctors explained it to me, the stent is placed to reduce urological problems that can occur after transplant.
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Hello Cycobully, Is the stent a new thing they use?
I have no idea! I just assumed it was routine. All the patients who had a transplant around the same time as me had a stent also (the stent goes into the ureter). It stays there for 4-6 weeks before removal. That's all I know. :)
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Major urological complications (MUCs) after kidney transplantation contribute to patient morbidity and compromise graft function. The majority arise from the vesico-ureteric anastomosis and present early after transplantation. Ureteric stents have been successfully used to treat such complications. A number of centres have adopted a policy of universal prophylactic stenting, at the time of graft implantation, to reduce the incidence of urine leaks and ureteric stenosis. Stents are associated with specific complications and some centres advocate a policy of only stenting selected anastomoses.
http://www.cochrane.org/reviews/en/ab004925.html
Basically it is to help the connection between the bladder and the ureter from the new kidney.
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A stent is a narrow, hollow plastic tube that runs between the kidney and bladder, inside of the ureter that normally carries urine between those organs. The stent holds the ureter open and allows drainage of urine.
Patients who have had surgery involving the ureter have a stent placed to allow the ureter to remain open while the normal postoperative swelling resolves and it can heal.
The stent is held in place by its design, which incorporates "pig tail" spiraling where it is located in the kidney and bladder.
Usually, before removal, a cystoscopy (look into the bladder) will be performed. The end of the stent will be grabbed with surgical forceps and the stent will be removed.
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Thanks for all that info, very useful! You guys are great, as always! :2thumbsup;
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Has anybody had joint problems (e.g. suspected osteo-arthritis in my case) following transplant?
I didn't have this problem before the transplant. But now, I can hardly walk without pain. I have to take paracetamol every morning in order to walk properly. Even then, there is some pain. Mostly in my ankles, but also in my feet and knees.
I am having an x-rays on Thursday.
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Has anybody had joint problems (e.g. suspected osteo-arthritis in my case) following transplant?
I didn't have this problem before the transplant. But now, I can hardly walk without pain. I have to take paracetamol every morning in order to walk properly. Even then, there is some pain. Mostly in my ankles, but also in my feet and knees.
I am having an x-rays on Thursday.
Well, I had joint problems before either of my transplants, caused from Prednisone... but I am getting increasinlgy worse with my ankle and knee (mostly ankle0 pain... mine is AVN.
Hope you get it taken care of soon and it's treatable. :grouphug;
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The prednisone causes it? How come the kidney doctor didn't tell me this when I told him about it? :rant;
What kind of treatments do they use? It's really affecting my ability to do almost everything!
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The prednisone causes it? How come the kidney doctor didn't tell me this when I told him about it? :rant;
What kind of treatments do they use? It's really affecting my ability to do almost everything!
The prednisone caused *mine* because I was on high doses and many many year's... I don't know if it could do that kind of damage so soon, but I dn't know, but yah.. prednisone is an evil medicine.. (but good too.. )
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I thought mine might be related to the fact that I've had osteoporosis for some years, and in addition to that, transplant meds are known to cause osteoporosis also, so I have a bit of a double-whammy there. But my GP doesn't seem to think the joint troubles are related to my osteoporosis.
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Ah.... yeah... well let's hope it's something seperate and fixable. :grouphug;
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I'm hoping so! thanks. :)
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I found that prednisone caused a lot of swelling....and that just made it hurt to do basic functions like walking.... I still walk kinda funny and slow. And yes, I was also told that it caused osteoporosis. In fact, because I had to be on such high doses of prednisone for so long, I had to get bone density scans every six months or so just to check and make sure that my bones were still doing okay..... On my last scan, I found that I now have osteopenia and I've also got pretty severe osteo-arthritis..... I find that Tylenol every six hours or so works pretty well. I also find that working out those body parts that hurt the most helps it to relax quite a bit......
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Love reading all these posts. You guys have made me feel so welcome. I like comparing notes. I have pain too, seems like a minor thing after the kidney problems. I hate to complain about it, but my doctors are so nice. Isn't it amazing how so many things are related to kidney function. I was refered for a sleep study. I am curious to see what they find. The doctior was telling me about how sleep effects metabolism and hormones. He's checking iron levels ect. Even though all of that has been with in normal limits, some times IV iron can relieve the pain.
Best wishes to all that have had a transplant.