I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Medical Breakthroughs => Topic started by: Heisenburg on December 14, 2015, 02:17:30 PM
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I did a search of this chat system before posting this and found no reference yet it sound amazing.
The website at http://dialysaid.com says;
You can feel good again!
If you are being treated by dialysis, you know that tremendous feeling
of fatigue that arrives near the end of dialysis and which may require
you to retreat to your home for a 3-4 hour rest period. Some of you
get so tired that you really can’t do anything. Some just need to
rest. But for nearly all of you, going to work when you finish your
dialysis is just too much to think about.
You have what is called dialysis syndrome or dialysis washout or
dialysis hangover – whatever, you’re just tired.
We have read the medical literature and searched the internet and we
found that there was just nothing out there to help you in the most
difficult experience in your life.
The literature tells us that up to 94% of you have this fatigue.
Wikipedia says it’s one of the expected side effects of dialysis.
There are websites called, “I hate dialysis.” This life saving
invention, dialysis, has the horrible side effect of fatigue. With
the proper timing of taking this food, you can feel normal.
One bad day – dialysis – and then one good day – no dialysis. But
then you have to repeat the cycle.
We have discovered a way to improve the bad day! It’s simply a matter
of taking a serving of our essential amino acid formula at the right
time. Why didn’t we think of this before? We really didn’t believe
it could be that simple – and neither did the multitude of
nephrologists who have worked with dialysis patients. One serving
will normally get you up and going, but a second serving gets most
folks back to work. That’s right – back to work.
Have you ever thought about going for a walk after you got back home
for dialysis – a dream you say – amazingly this simple treatment will
get you going – feeling well.
“DialysAid is the best invention since water!” - A recent customer
This proprietary blend of nutritional essentials has patent pending
and is revolutionizing the world of dialysis patients across the
country.
Imagine having the energy to play with your children on your treatment
day.
Imagine having the energy to exercise again.
Imagine keeping your full time job while on dialysis!
All these things have been reported by our clients.
Get your life back today!
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I notice a complete lack of any reference to double blind peer reviewed studies published in recognized medical journals. I wouldn't be surprised if the bottle has the standard FDA disclaimer about not being intended to cure to treat any disease or condition. It's easy to get plenty of anecdotal evidence in the form of people who believe they have been helped (placebo effect), however, that is no substitute for actual evidence.
Smells like snake oil to me.
>I did a search of this chat system before posting this and found no reference yet it sound amazing.
Yup, a supplement that is "amazing" but has stayed off the charts of the nephrologists for over a decade.
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Walks like a duck, sounds like a duck,....It's a duck! Maybe why some Dr.'s are quacks! :clap; (ftp://:clap;)
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Any time I read these type of sites I find the lack of real information a clue as to their validity.
Those of us on dialysis need more protein than the general population, so supplementation may be necessary.
And there are many ways in which to do this such as whey protein concentrate and hydrolyzed collagen.
But this product looks to be a bit expensive and makes claims that sound to good to be true.
Just my opinion.
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I wasn't born in Missouri, but my Mama was.
And I wasn't born last night, but it was pretty late in the evening.
The OP needs to come up with a whole lot more evidence before I would even THINK of using an unknown product.
Money back guarantee? I doubt it.
Who is this member? Been here long? I have to wonder, we've had people register just to post Spam, which this, you got to admit, is very suspicious. I could be wrong. I am, a lot, So I'll reserve final judgement until I can learn more.
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Sucralose is in it. I can't have it. It would kill all intestinal flaura in me. Many people that doesn't happen. I'm the lucky one.. THREE MONTHS of sorta diarhea before the good colnies regenerated. And that was taking probiotics TWICE daily. NO fun.
Nuff said.
Just checked member profile. Registered DEC 8, 2015 THREE posts.
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Sucralose is in it. I can't have it. It would kill all intestinal flaura in me. Many people that doesn't happen. I'm the lucky one.. THREE MONTHS of sorta diarhea before the good colnies regenerated. And that was taking probiotics TWICE daily. NO fun.
Nuff said.
Just checked member profile. Registered DEC 8, 2015 THREE posts.
Sugar alcohols have that affect on some people. My husband is diabetic. I use to surprise him with sugar-free candy but he told me "no more if it has sugar alcohol in it". Poor guy...I had no idea what it did to him. I went thru the stash and ended up having to throw it all out. :embarassed: As for intestinal flaura being killed off, try eating some Activia yogurt. Comes in many flavors.
As for DialysAid, I have no idea but Zach's Chunky Chili sure can make a person feel good! :P
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Sucralose (aka Splenda) isn't a sugar alcohol. All sugars end in "ose" while all sugar alcohols end with the suffix "ol" as in xylitol, erythritol, maltitol, etc. Many of these alcohols have "unfortunate" intestinal effects (diarrhea). I can tolerate erythritol, but only minute quantities of xylitol (which is a more effective sweetener).
Sucralose is subject of continuing controversy about its safety. I'm a Type 2 diabetic and I avoid sugar, but find a combination of erythritol and stevia to do the trick.
Dialysaid seems to be a variant of Wallser's amino acid products (also from Calwood) that are used to supplement a very low protein diet for pre-dialysis CKD patients. They are all very high priced.
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I became Diabetic about 6 months into Dialysis. My first almost 2 years I was quite insulin resistant having to take almost twice the 'normal' dosage. After losing about 100 pounds on PD, the constant 2 liter 'fill' putting enough pressure on the stomach that I do not feel the need to eat very much before felling 'full', my insulin resistance is GONE, and almost sensitive. I haven't taken but a couple shots of fast acting in the last two months, my regular nightly shot of slow is doing quite well.
I am still adicted to sugar. I have been doing well at keeping it in moderation with only occasional indulgences.
I do have a big bag of Stevia and those times I use sugar in say a hot cup of tea, I halve the sugar and use the Stevia for the other half. It does NOT leave me with that nasty chemical aftertaste.
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Sucralose (aka Splenda) isn't a sugar alcohol. All sugars end in "ose" while all sugar alcohols end with the suffix "ol" as in xylitol, erythritol, maltitol, etc. Many of these alcohols have "unfortunate" intestinal effects (diarrhea). I can tolerate erythritol, but only minute quantities of xylitol (which is a more effective sweetener).
Sucralose is subject of continuing controversy about its safety. I'm a Type 2 diabetic and I avoid sugar, but find a combination of erythritol and stevia to do the trick.
Dialysaid seems to be a variant of Wallser's amino acid products (also from Calwood) that are used to supplement a very low protein diet for pre-dialysis CKD patients. They are all very high priced.
You're right about Splenda -that's the only one my husband can handle with no unwanted side effects. There are a few hard candies made with Splenda but harder to find.
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Getting back to the original subject.
I have to ask the original poster,
Heisenburg, do you now, or have you been taking this supplement?
Have you noticed a benefit?
If you don't mind, how is the cost versus the benefit of taking this product?
Please enlighten me.
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Heisenburg has had some difficulties with his email and password to the site. I have emailed him and he should be back with us to answer your questions further. I am watching tis thread, so no advertisements allowed about this product. Discuss it.
kitkatz-Admin
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Getting back to the original subject.
I have to ask the original poster,
Heisenburg, do you now, or have you been taking this supplement?
Have you noticed a benefit?
If you don't mind, how is the cost versus the benefit of taking this product?
Please enlighten me.
Thank you for your patience.
It was never intended to be spam.
It seems to be sham though as my pharmacist could find very little info.
It is too good to be true.
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This product isn't even on the companies main website. Seems like a scam because I found 0 information about this product. Any info I found was from the website itself. Also, the website isn't typed up by professionals it looks like.