I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: kitkatz on November 27, 2015, 04:51:01 PM
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My social life revolves around dialysis now. I need to get out more often....
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because.. I can't drink a gallon of milk...
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My social life revolves around dialysis now. I need to get out more often....
Oh no!!!!.... Please don't go out more.... The world can't handle you being out and about more!!!!!.....
I hate dialysis because my late mum used to growl about it... Frequently!!!!!..... LOL!...
Darth....
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Darthvadar: The only reason you mother growled wasn't about dialysis. She was growling at you! :rofl; :rofl; :rofl;
Rerun I totally agree. I want a gallon of Diet Dr. Pepper.
I hate dialysis because it ruins a good night's sleep. I am nocturnal in clinic.
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Probably Kitz.,... But she had to keep me sweet.... She needed me to do her D.... LOL!......
Mind you, a certain dragon from California probably contributed too!...
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Here you go.
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Not at all like you, Kits....
That dragon's FAR better looking than you are!!!!..... :rofl;
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Well there is another reason I hate dialysis.....
It gives me brain fade.
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Well there is another reason I hate dialysis.....
It gives me brain fade.
Fade I can FULLY associate.... But erm, Kitz, and brain?????.... :rofl;
As you can see, Folks, Katherine and I love each other really!!!!!.... We take insults as compliments!!!!....
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Well, I know I had one once before dialysis wiped it out!
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Same here since I started taking steroids....
Known to my late mum and I as 'Having a Deltacortril Day'.....
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sometimes that last hour on the machine is the longest hour of my life!
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what I hate is feeling like that Greek Titan whose name I can't spell Sisyphus (I put in sissypuss and spell check spelled it) like rolled the rock to the top of the hill each day and had to start over the next day. It is the unending prospect of three days a week attached to the machine without a break. I have maintained my sanity by dealing one week at a time. Celebrating every Friday the extra day off. Don't get me wrong I throughly enjoy my life but 4 and a quarter hours of sheer boredom attached to that system is a tad too much.
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7 times 3 is 21 hours of chair time. I totally get what you mean. The last hour takes forever and if I am awake all night is seems to take forever!
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You all put me to shame.
Very little social life, and NO night liife unless you want to count petting the Dog and Cat.
Connecting to my PD Cycler @ 7 every evening it's not likely that I'm gonna take my Harley out, stop by the local bar for a few too many, and come hoome in the wee hours. That's history.
I have begun reading a whole lot more than ever before. Also have a laptop sharing space on the table with the Cycler. I don't care for that keyboard near as much as using this one on the first of my Optiplex's (3).
Hhighlites of my evening/night is the Cycler alarm signalling low flow. Waking me up so I can turn off my back onto my left side. Right won't flow well either. But since I'm awake now, and the Cycler finally got to 'Dwell" I'll disconnect, cap off, and shuffle out to the garage for a cigarette. I haven't smoked inside the house in well over 20 years. Allie Cat always goes with me and has her preferred position next to where I stand so she's just at the right height for me to pet her while I out there. Once done she follows me back to bed, watches me reconnect and get in bed. Then she curls up behind my knee til it repeats again in about 2 hours. I rarely sleep three hours at a time.
Still, I should consider myself blessed that I am doing well on PD. My paranoia of even little needles might make me skip hemo treatments. I know I wouldn't do near as well as most of you are doing.
You are a tough breed.
Stay strong, and Take Care,
Charlie B
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of the side effects. I now have stomach issues. I have had major intestinal trouble due to low BP. Migraines. Deafness in my left ear. Numb fingers on the right hand.
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I hate dialysis for the misery and suffering we all go through. The cramps and passing out from too much being taken off. I dislike the weakness that takes over your body so that my poor wife has to do the manly chores around the house. On the other hand I am grateful to dialysis for allowing me to meet some very special people here and at the center, people I cant imagine not living without now. I have met only a few of you here, but please know I follow all your posts and feel for all of you. Getting a kidney is better than dialysis, but I still dont have the big S on my chest anymore.
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I hate dialysis because of the complete take over of my life, I hate the time I have to sit in that chair watching my wife try to get everything around the house done. I hate that I cannot work like I used to. I hate that I cannot use my arms like I used to (fistulas in both). I hate that I think about hiring people to do what I used to be able to do because I do not have the stamina. I hate that taking a trip is a major planning event. I hate that wife cannot "go away" for a trip to her sisters. I hate that I can't go to hunting camp for a week (no electric). I hate having to manage the anemia, the phosphorus, the calcium, etc
Having said all that... I love that I still feel 110% better than the 18 months before I began dialysis and more importantly ..... it keeps me alive. Most people I know would say that is good thing.
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There is one guy who took a raft trip down the Colarado river with his next stage. The outfitter provided a generator and every night he ran his next stage and did his dialysis. So with a generator hunting camp is possible. It's got to be easier then camping in the Grand Canyon.
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There is one guy who took a raft trip down the Colarado river with his next stage. The outfitter provided a generator and every night he ran his next stage and did his dialysis. So with a generator hunting camp is possible. It's got to be easier then camping in the Grand Canyon.
See Bill Peckham:
http://www.billpeckham.com
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Thanks Zach, when I first joined I read that tale it's then I realized what special people there are in the dialysis world, after reading about that adventure I stopped worrying about the limits imposed by dialysis. I am going to keep the reference for if and when I tell somebody about this.
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I don't hate my dialysis-treatments because they assist me to keep alive ...
... Of course, life would be better - and certainly less risky - if I would not need any dialysis-treatments,
but since I am in kidney failure, I am grateful, that dialysis-treatments exist as an option for me to try and continue ...
... And these days dialysis-treatments have become much more patient-friendly in comparison to dialysis-treatments many years ago...
... I know this, because since my kidneys first failed in 1971 and recovered a little until I needed dialysis-treatment in December 2014,
I have met - over the years - many ESRF-patients and their dialysis treatment-options were then not as varied as they are now ...
... I am also grateful that my vegetarian diet and my dialysis treatments are reasonable compatible
and hopefully it continues like that (touch wood !!! ) ...
I also hope that ESRF research continues to find many more ESRF-treatment-options in the future...
Best wishes from Kristina. :grouphug;
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it sometimes creates more problems than it solves.
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it sometimes creates more problems than it solves.
... It is true that dialysis sometimes creates more problems than it (medically) solves
... it is also true that dialysis-users need to try and find their own way to adjust to the new medical situation...
... I had a very "serious talk" with myself when I realized that I could no longer avoid dialysis-treatment
and then I researched the best possible way for me how to approach my new medical situation...
... The most important point for me was to accept my new medical situation and this acceptance eventually
"waved the way" for my adjusting to dialysis and try to make the very best of it ...
Best of luck from Kristina. :grouphug;
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I am 8.3 kilos over my dry weight!!! Now I have to come in three days straight to get the extra fluid off. When am I going to learn my lesson....it's bad enough I have to watch what I drink but now I have to watch what I eat too!! I HATE THIS!!!!!!!
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I am no expert but if your weight gain is mostly caused by over indulging over Thanksgiving than extra days of fluid removal is not going to help and may hurt you. It may not be fluid weight.
You my need an adjustment to your dry weight for a short while and bring it down gradually.
But yes, watching what we eat all the time is another hurdle to overcome. And I hate it.
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I think we all hate dialysis hence the formation of this website and all the members past and present. We all face about the same challenges albeit in different ways with sometimes way different outcomes. We all stand up and confront this disease head on with the help of family, friends, and caregivers. However, in keeping with the title of this discussion, I hate dialysis simply because of the basic family things I miss out on because this machine keeps calling me at 6:30 p.m. every night. I LOVE dialysis as it helps to keep me alive to enjoy the times I do get to spend with my wife and family.
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it has ruined going to holiday parties. They are often scheduled on evenings and time when I am at dialysis.
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All this hate stuff is so depressing. I prefer to consider myself fortunate that I live in a part of the world where I don't have to worry about "pay or die" clinic policies, and have a very helpful care team that does a great job of supporting home hemo.
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All this hate stuff is so depressing. I prefer to consider myself fortunate that I live in a part of the world where I don't have to worry about "pay or die" clinic policies, and have a very helpful care team that does a great job of supporting home hemo.
Best point of the day!!!!
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I hate dialysis because I didn't resolve an alarm fast enough on my husband's cycler the other nite and his blood clotted up and he's already severely anemic. Other than that, "Oh joy!"
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I hate dialysis because it is currently keeping me from going back to school.. which is also keeping me from opening the travel agency that I've been dreaming about for years
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my low BP freaks out dialysis centers when I am visiting. Nocturnal dialysis is not available in Oklahoma so 4 hours is all that is offered to me.
Dear Lord, I hope I make it through the next two weeks.
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IHD because now I'm told NOT to fall off ten boat in the summer heat. I could quite possibly contract a life threatening infection from the river, lake, ocean, etc..
No more diving, pretty much put a damper on everything involving water where I used to get wet. Now I can only wade IF I don't splash.
Also cuts out those spur of the moment week-ends in the woods, no electricity. I 'could' take manual bags but I still need to find a reliable method of warming them in a timely manner.