I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Potential Donors => Topic started by: lola on May 06, 2009, 04:32:57 PM
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Well I have decided to join the paired exchange program at the UofM. Talked to them and will have my work-up in June as a living donor. They did tell us he now HAS to have a 6/6 antigen match and no antibodies so we are in need of a miracle :bow;. I can't watch him do Dialysis for the kids and I and not do everything possible to find him his HERO. Wish us luck
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lola, we will all be there with you the whole way. Bless your heart. :cuddle;
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Lola,you are an angel.
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we all need someone like you
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You are an amazing person - I pray this is the answer to finding Otto a kidney. :grouphug;
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The paired donor program is a wonderful thing, and your generosity is extraordinary.
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This is wonderful, Lola! :cheer:
We are cheering for you every step of the way.
Aleta
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:clap; :clap; :clap;
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Wonderful, Lola! ...and, hey, miracles happen every day...so, keep that in your mind. Certainly, if there's anyone who deserves a miracle, it's Otto. We're pulling for you. Keep us informed.
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Lola.... L O L A.... Lola ;musicalnote;
You will be someone's heroin. I think this is wonderful and I pray everything works for the best for all who are involved.
:yahoo;
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We're with you and Otto and the rest of the eventual donor/recipient chain all the way Lola. I know you'll keep us updated and we'll keep you supported with good wishes and prayers.
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That is awesome Lola and I really do hope Otto finds his perfect match. There is not much more a person can do. You are one helluva individual. :-*
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Miracles happen every day! We're with you all the way! You're amazing! GOOD LUCK OTTO! WE'RE PRAYING FOR YOUR PERFECT MATCH!!!! :cheer:
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Lola, you are a hero! :cuddle;
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Lola you are amazing, I hope it all works out for you and Otto (and the others in the 'chain') - you certainly deserve your miracle :cuddle; I will be thinking of you :cuddle;
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Amy,
You make me so proud to know you.
All of my positive thoughts are headed your way.
xoxo
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You are an amazing person. You spend all you time and energy making this transplant happen and keeping your family together. You just keep putting one foot in front of the other, and you keep making things happen. What a wonderful heart you have :bow; :cuddle;
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:bow;
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:thx; :grouphug;
But I see a straight jacket in my future. Or if Otto is on here searching for me I've run away to a Island with lots of fufu drinks >:D
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I start my test on June15th. They again stressed to me that this is a long shot, they are worried I am not being realistic and understanding the chances. :boxing; I do understand that this probably won't help but you just never know. Miracles happen
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I agree, doing something keeps your options open, you never know where it will lead. :thumbup;
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Miracles do indeed happen! You keep that positive attitude of yours and know that we are ALL pulling for you and otto!!!
:flower;
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Lola, it's awesome that you're doing this! Best of luck to you and Otto!! :flower;
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I start my test on June15th. They again stressed to me that this is a long shot, they are worried I am not being realistic and understanding the chances. :boxing; I do understand that this probably won't help but you just never know. Miracles happen
You understand the chances probably more than anyone. We all live with HOPE. You are such an angel and we are all very proud of you. I relate to "long shot", so let's both prove all of them wrong!! :2thumbsup;
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Lets get them Paris :boxing; :grouphug;
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I start my test on June15th. They again stressed to me that this is a long shot, they are worried I am not being realistic and understanding the chances. :boxing; I do understand that this probably won't help but you just never know. Miracles happen
I believe in miracles. You rock Lola! This is for you and Otto: :grouphug;
I hope you are successful and I hope the wait is short.
Alene
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Good Luck Lola. :bow;
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:banghead; :banghead; well just got home from Dani's appt at the U and told her Dr I'm joining the paired exchange program and he's not real happy :banghead; :banghead; even though Dani is doing good he's concerned that when it's her time to need a kidney I will regret this if we find Otto a kidney this way. :banghead; :banghead; I am soooooooooo confused as to what to do
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I don't have any real advice, just a gut reaction. You and your family need Otto, NOW! So many things will change before Dani needs a kidney. And when that time comes, there is no guarentee that you will be there to give her one. Nothing is a given in the future. One step at a time, and right now it seems like the step is to get Otto healthier. Now, as a mother, I know how much you are worried about Dani's future. You are torn between husband and child and no one should be in that position. The neph seems more worried about what might happen instead of what is happening. I am sorry you are in such internal conflict. What are family and friends telling you? What does Otto think? We are here for you, whatever you decide and we love you. :grouphug;
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I agree with Paris. So much can change over time in the area of research that it may be easier for Dani to be treated when the time comes.
Otto is in need right now.
I know this is a hard decision. My daughter is going to need a kidney, too. I am not able to donate, but I wrestled with whether to wait to give her one before I knew that and decided that it did not make sense for me to wait.
Caring thoughts for you. :grouphug;
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Otto has really never wanted me to give up a kidney 4 him, but he knows once I put mind on something there is NO changing it. I have no real support from either sides of the family as they are worried sick that I will give up a kidney and Otto's new one will explode. It sucks that we saw the worst side of things as we ALL are scared of it happening again. Like I said I'm sooooooooo confused, I NEED Otto and would go to the ends of the earth for him but this sucks to have no real support but also have Dani to think about. I have so much HOPE for Dani but the reality is she also will need a kidney also. Thanks for the advice as I said I don't really have anyone on my side :banghead; :banghead; :banghead;
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You might want to post your situation on Living Donors Online - there are many people who have varying stories regarding their attempts to donate - with many different reasons and outcomes too - I know you'd get some good support there. http://www.livingdonorsonline.org
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Mt heart is heavy as I have decided to not go threw the testing. Otto was never trilled with me doing this, but we just heard from Dani's Dr and it looks like we need to do another 24hr on her in August as her counts are back to where they were before we started to new meds so we will need to increase her dose. Thanks for all the Love you guys mean the world to me......... :grouphug;
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Lola - hang in there. Your answer is out there somewhere. Keep the faith, you are strong.
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Oh Lola, I know you are so stressed with worry for Otto and Dani. It is just too much for one person. We love you and your family and wish there was an easy answer. With other diseases, there is a clear cut course of action. With kidney disease, it seems like there is a lot of trial and error and Otto has lived through some of the "error" part. We are here for you and support you 100% in any decision you make. :grouphug;
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Sorry lola honey - I know you'd do anything you could to help Otto. I was thinking about Dani last night too, and what a tough dilemma you've got. There's no easy answer. You can always explore options later if things change. Sending you lots of LOVE. :grouphug;
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Mt heart is heavy as I have decided to not go threw the testing. Otto was never trilled with me doing this, but we just heard from Dani's Dr and it looks like we need to do another 24hr on her in August as her counts are back to where they were before we started to new meds so we will need to increase her dose. Thanks for all the Love you guys mean the world to me......... :grouphug;
Lola,
I've looked at this thread many times never quite sure how to comment. The question is the kind that takes the wisdom of Solomon to answer.
I wish you (and Dani) the best for her 24hr test in August. I have a question, are you a match for Dani or is that something that remains unknown until... ? Hopefully Dani will take forever to progress to that stage.
:grouphug;
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You might want to post your situation on Living Donors Online - there are many people who have varying stories regarding their attempts to donate - with many different reasons and outcomes too - I know you'd get some good support there. http://www.livingdonorsonline.org
I have read a lot on this site, and I find many older posts (2007) before I noticed the dates I thought I was learning a lot- is most of it still relevant in 2009? I looked up donor buddies and all the posts I found her old- I felt odd emailing someone who posted something two years ago, yanno?
Sorry to intrude on someone elses post.
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Lola at your age 99, you are amazing :rofl;
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You might want to post your situation on Living Donors Online - there are many people who have varying stories regarding their attempts to donate - with many different reasons and outcomes too - I know you'd get some good support there. http://www.livingdonorsonline.org
I have read a lot on this site, and I find many older posts (2007) before I noticed the dates I thought I was learning a lot- is most of it still relevant in 2009? I looked up donor buddies and all the posts I found her old- I felt odd emailing someone who posted something two years ago, yanno?
Sorry to intrude on someone elses post.
Are you taliking about www.livingdonorsonline.org? I am not sure what you mean. If you went to find living donor buddies http://www.livingdonorsonline.org/buddies/ldbkidney.htm the posts are older because they donated a while ago. That's what is helpful, someone who has been through donating and is living with one kidney.
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Lola at your age 99, you are amazing :rofl;
Twirl- Ancient Chinese secret :bandance; :bandance; :bandance; >:D
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eating bananas and acting like a devil..... I am going to be 120 then.
:)