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Author Topic: What is the longest a recipient has survived with a kidney transplant?  (Read 136520 times)
Fran Unger
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« Reply #100 on: June 23, 2011, 06:33:29 AM »

It is really inspiring to read all of the success stories of patients who had a kidney transplant. It is encouraging to see so many people live long and healthy lives after receiving a transplant. It is nice to read the stories behind the transplants too.


EDITED: Fixed link error - okarol/admin
« Last Edit: January 16, 2013, 01:16:42 AM by okarol » Logged
jersey girl
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« Reply #101 on: June 26, 2011, 10:31:58 AM »

I am having a kidney transplant in 2 weeks.  My husband and I are part of a swap in the Philadelphia area.  I love reading these stories.  This thread has really been an inspiration!
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okarol
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« Reply #102 on: June 26, 2011, 12:32:53 PM »

It is really inspiring to read all of the success stories of patients who had a kidney transplant. It is encouraging to see so many people live long and healthy lives after receiving a transplant. It is nice to read the stories behind the transplants too.

Hey Fran, please go to the introduce yourself section and tell us something about yourself. Posting urls to Indiana University Health in your posts is advertising, and doesn't really help someone outside Indiana.

okarol/admin
« Last Edit: June 26, 2011, 12:34:59 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #103 on: July 01, 2011, 10:41:23 AM »

FORTY years ago, Diane Schulze barely made it through her wedding day without collapsing. She married and was transplanted in 1971 - [July 2011] http://ihatedialysis.com/forum/index.php?topic=23601.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #104 on: July 02, 2011, 05:05:45 PM »

The 50th anniversary for Canada’s longest surviving single kidney transplant recipient is one for the record books.
On Dec. 28, 1960, 12-year-old Lana Nightingale (Blatz) donated her kidney to her identical twin sister Johanna Nightingale (Rempel).
[Jan 2011] http://ihatedialysis.com/forum/index.php?topic=23615.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #105 on: July 04, 2011, 01:40:05 PM »

hi,
luv reading all the stories. I'm celebrating the 35th anniversary of my 2nd cadaver transplant today. Operation carried out in 1974 at cambridge, england when I was 17. I had previously had a kidney from my Dad in October 1970 whici rejected in 1974.

I got a note from Andy today:

Just to update you. I was first diagnosed with haemolytic uraemic syndrome in July 1969 aged 12. Its just a few weeks I went on haemodialysis. I had my first kidney transplant in Adenbrookes Hospital, Cambridge, England on 1st November 1970. Professor Roy Calne carried out the operation which was a live donor with my Dad giving the kidney.
This lasted until July 1974 when it was removed in Cambridge and I went back on dialysis and the waiting list. On 8th November 1974 I received my current kidney in Adenbrookes Hospital, Cambridge. On the 10th day it started to work and I still have very good renal function. This coming November will be my 37th anniversary.

My current kidney was from a cadaver - I know it was a young male from Cardiff, Wales. I've tracked down most of my old medical records including those from 1969 and one day might put pen to paper.... In England there is no usual requirement to keep records after 7 years so really lucky to find them. Unfortunately I cant obtain my records from 1979 - 1993 whilst I was looked after by the Transplant Unit at Guy's Hospital, London. They destroyed the records!! In England there is no requirement to keep them after 7 years. Crazy!

all the best and keep up the good work.

andy demaine
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #106 on: December 20, 2011, 09:08:53 AM »

John Trippe was on dialysis in 1980, at 26 years old. His five siblings were tested to see whether any would be a good match as a donor. The best match was his younger brother Jerry, then just 16. They just celebrated 30 years. [Dec. 2011] http://ihatedialysis.com/forum/index.php?topic=25328.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #107 on: January 27, 2012, 05:13:55 PM »

Harry Greiner has been healthy with a donated kidney for 40 years — making Greiner one of the longest kidney transplant survivors in the United States. At age 20, his uncle, Les, donated a kidney so Greiner could undergo a potentially life-saving transplant. [Jan. 2012]
http://ihatedialysis.com/forum/index.php?topic=25676.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MaryD
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« Reply #108 on: January 27, 2012, 05:52:17 PM »

In the local renal unit just after Christmas I was chatting to a 69 year old man whose transplant was just failing after 39 years.  He had decided he probably wouldn't get another one. He was just starting HD again.
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okarol
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« Reply #109 on: March 10, 2012, 01:56:05 AM »

Steve Brock, 57, was one of the first people in the UK to have what was then a pioneering transplant at Addenbrooke’s Hospital in Cambridge. He was diagnosed with kidney failure when he was 17 and after a short period of dialysis was given a transplant. 1972 [Mar. 2012] http://ihatedialysis.com/forum/index.php?topic=26024.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #110 on: April 13, 2012, 01:16:49 AM »

Brother & sister celebrate kidney transplant of 25 years - John Arriola says giving one of his kidneys to his sister Maria Grijalva in April of 1987 was one of the best decisions he's ever made. http://ihatedialysis.com/forum/index.php?topic=26285.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
dkay42
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« Reply #111 on: April 18, 2012, 11:13:39 AM »

This was a very interesting, delightful post. My husband just lost his 24-year-old cadaver transplant. He is 51. His kidney is 60. Must mention that he told me this past week, that now on daily dialysis (training for home), he feels better than he has felt in years. He says he's not sure he wants another transplant. I say, "we'll see."
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Debbie Craig, home hemodialysis care partner
Clara
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« Reply #112 on: August 17, 2012, 09:20:35 PM »

These stories are truly inspiring.  I am doing the work up to go on the list for Kidney-Pancreas transplant.  Thanks everyone for sharing  :flower;
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natnnnat
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« Reply #113 on: August 18, 2012, 07:36:09 AM »

This was a very interesting, delightful post. My husband just lost his 24-year-old cadaver transplant. He is 51. His kidney is 60. Must mention that he told me this past week, that now on daily dialysis (training for home), he feels better than he has felt in years. He says he's not sure he wants another transplant. I say, "we'll see."
Oh!  My hustand's 20 year old cadaver transplant is failing at the moment; he is 45.  I hope that we find he feels really well, when he finally goes back on dialysis.  I know its not the case for some but you can always hope.  I'm glad I saw your post.  :waving;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
okarol
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« Reply #114 on: August 18, 2012, 05:54:37 PM »

‎30 years ago Lorraine Campbell was given a kidney by her sister Denise Boyd. [1982] http://ihatedialysis.com/forum/index.php?topic=27321.0
« Last Edit: August 19, 2012, 02:23:39 AM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #115 on: August 19, 2012, 02:22:48 AM »

 
Woman marks her 33rd year as a kidney transplant recipient
When she was 18 years old, Joan Waddell got kidney dialysis for the next year and a half. Back in 1974, Waddell�s brother, Daniel White donated a kidney to her.
[2007] http://ihatedialysis.com/forum/index.php?topic=27325.msg436974#msg436974
« Last Edit: March 28, 2013, 11:22:57 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #116 on: October 26, 2012, 02:23:23 AM »

83-year-old Clark Beck will celebrate the 40th anniversary of his kidney transplant on Oct. 29 (from deceased donor) [Oct. 2012] http://ihatedialysis.com/forum/index.php?topic=27729.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
DialysisGoneFOREVER
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« Reply #117 on: January 01, 2013, 04:13:15 AM »

Great stories! So the longest surviving kidney transplant is 45 years from the lady who got it from her father at 13?

I don't consider identical twin transplants to be in the same league as us since they have a lot more compatability than the rest of us.
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okarol
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« Reply #118 on: January 16, 2013, 01:08:33 AM »

63-year-old Neil Tubb celebrates a hearty kidney 30 years later (deceased donor) - [Jan. 2013] http://ihatedialysis.com/forum/index.php?topic=28271.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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Be good to yourself when nobody else will.

« Reply #119 on: January 16, 2013, 05:22:55 AM »

This is amazing to read! At the pediatric clinic I used to go to, one of the nephrologists had a tx from her father when she was a teen and it lasted until she was in her 40s, I believe. What's more is her brother also had a tx from their mother around the same time. This is all what I heard through another clinic patient. The neph didn't like too many people to know, I guess she thought it made her look weak in the medical field. I found it quite inspirational.
« Last Edit: January 16, 2013, 05:28:27 AM by Lexxtech18 » Logged

Diagnosed with Bilateral Hypoplastic Kidney Disease - 1990
First Livinig Donor Transplant (from my mommy!) - October 3, 1996
Transplant Failed/Put on Hemodialysis - May 2005
Second Kidney Transplant (deceased donor) - July 2010
Transplant Failed/Restart In-Center Hemodialysis - February 2011
okarol
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« Reply #120 on: February 04, 2013, 12:00:43 AM »

Julie O’Neill (nee Sammon, Erriff) received a kidney transplant (she was 30) from her brother Padraic Sammon (he was 19) 30 years ago [Jan. 2013]  http://ihatedialysis.com/forum/index.php?topic=28387.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #121 on: February 04, 2013, 12:03:49 AM »

On Feb. 3, 1983, after 14 months on dialysis, Walt Erwin received a kidney from his older brother, Frank. [Feb. 2013] http://ihatedialysis.com/forum/index.php?topic=28386.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #122 on: March 29, 2013, 11:39:50 PM »

42 years ago a Eloy Romero gave his brother Fred a kidney. 1970 [Mar. 2013] http://ihatedialysis.com/forum/index.php?topic=28713.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #123 on: June 12, 2013, 04:41:45 PM »

FOR the last 35 years, Valerie Coombe has been living life to the full – thanks to a kidney transplant.
The 77-year-old got a new kidney on June 7, 1978.

http://ihatedialysis.com/forum/index.php?topic=29148.0
« Last Edit: September 27, 2013, 01:36:19 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #124 on: July 13, 2013, 08:30:18 AM »

Fifty+ years after kidney transplant, Nightingale twins still healthy - Johanna Rempel received a kidney from identical twin Lana Blatz when they were 12 years old. [June 2011]
http://ihatedialysis.com/forum/index.php?topic=29311.0
« Last Edit: July 08, 2014, 01:12:10 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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