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Author Topic: Help Me Explain Things 2 My Uncle!!!  (Read 7843 times)
TynyWonder
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Calvin

« on: August 27, 2008, 10:25:11 PM »

I have just recently moved to TN to be close to an Aunt & Uncle and they (well my Uncle) has begun to ask me questions about dialysis and kidney failure and he asked me to explain the deal about the dialysis machine only doing 10% of our kidney function.  I cannot really exaplin it to him and I did try but I did not make sense.  Basically, what he would like to know is.........since the machine only does 10% kidney function does that mean a good kidney only needs to function at 10% to do what it needs to do?  I soooo hope someone can help me explain things to him.........send me a link...........tell me what you know in "plain english" where he and I both will understand it............SOMETHING!!!    :banghead;    Thanks so much!!!!

Tammy
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
Chris
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« Reply #1 on: August 27, 2008, 10:48:52 PM »

I'm sure someone can explain it better.
10% is still not enough, but helps. The machine can not clean the body 24 hours a day like a natural kidney can do. So toxin build up that would normally be cleaned out by the kidney and flushed out thru urine. I should read the Baxter packet about the forms of dialysis I have somewhere that explains it in well in a non intelectual way.

I think either Stauff or Zach explained this in an old post or someone did. I can't remember. Hopefully they will see this and reply tomorrow or the next day.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
twirl
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« Reply #2 on: August 28, 2008, 02:02:07 AM »

only 10%
I did not know that :o
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RichardMEL
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« Reply #3 on: August 28, 2008, 05:16:52 AM »

Chris is spot on. Let's say you do 4 hour treatments x 3 a week, so 12 hours of dialysis a week that's 7% of the week doing dialysis. The other 94% of the time you are not having your kidney function replaced by the machine, so yes, it only does 7-10% of the work of a normal functioning set of kidneys to keep you alive - because normal kidneys function 24/7.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Hawkeye
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« Reply #4 on: August 28, 2008, 07:31:22 AM »

Try the article I posted here http://ihatedialysis.com/forum/index.php?topic=9439.msg159088#msg159088 .  It a pretty good basic explanation of dialysis and other things involved with it.
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TynyWonder
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Calvin

« Reply #5 on: August 28, 2008, 09:24:25 AM »

Thanks to everyone who has already responded and I did read the link/article and did not really find any explanation about dialysis only doing 10% kidney function.  I also changed the subject thinking it might help me to get more answers.............I dunno.......... :-\ Also, I feel like this topic is in the wrong forum but how it ended up in this forum is because, I was looking through the FAQ and did not find any info I was looking for and just reacted before I thought and put it in here.  Therefore, if anyone feels this topic needs to be moved then please feel free to do so.  I would move it myself but I don't know how.   You all have a happy little day!

Tammy
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
Chris
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« Reply #6 on: August 28, 2008, 03:27:25 PM »

Have you asked anyone at the clinic who seems smart enough to work there?
I didn't read the link yet, at school and now I was thinking that maybe the two methods can be broken down. Kidney Can Do This and Dialysis Machine Can Do This. We know the kidney has many functions a dialysis machine can not perform, which means more meds in some cases. I'm pretty sure there is material out there on the web or atleast maybe the local hospital library. I'll try searching tomorrow.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
TynyWonder
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Calvin

« Reply #7 on: August 28, 2008, 03:31:28 PM »

Thanks again for your help and I do plan to ask my clinic tomorrow...........I had just forgotten to ask yesterday while I was there............
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
paris
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« Reply #8 on: August 28, 2008, 04:07:29 PM »

I hope you find the right answers.  I do know that at I am at 14% and the neph says I am still functioning at a level better than dialysis.   So, he explained it that right now I have that function 24/7 and dialysis would not match that.  Let us know what your center says.
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TynyWonder
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Calvin

« Reply #9 on: August 28, 2008, 04:18:30 PM »

will do!   :)
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
flip
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« Reply #10 on: August 28, 2008, 04:46:15 PM »

Okay...here's a question for the experts:

If a patient has 10% residual function and dialyzes 3x weekly, does that mean that they are at or near 20% overall?
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boxman55
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« Reply #11 on: August 28, 2008, 05:28:07 PM »

 Maybe this will help


Dialysis removes urea and other waste products from the blood. To find out how well dialysis is working, you will have blood tests that look at the level of urea in your blood. Usually, these tests are done once a month, at the beginning of your session and again at the end. In general, two measures indicate how well dialysis is working: urea reduction ratio (URR) and Kt/V.

Urea reduction ratio
One way to measure how well hemodialysis is removing urea from the body is to measure blood urea nitrogen (BUN) level. The BUN is measured before and after your treatment session. Then, the two numbers are compared to see how much the urea level in the blood has decreased. This difference is called the urea reduction ratio (URR), and it is usually expressed as a percentage. An adequate dose of hemodialysis should result in an average URR of 65%.1

Kt/V
Another way to measure the effectiveness of hemodialysis is to compare the amount of fluid that is cleared of urea during each dialysis session with the amount of fluid that exists in the body. This is called the Kt/V.

Kt represents the amount of fluid that is cleared of urea during each dialysis session. It is measured in milliliters per minute (mL/min).
V represents the volume of water a person's body contains.
The Kt/V is the most accurate measure of hemodialysis because it also measures the amount of urea removed with excess fluid and takes into consideration other factors, such as weight loss during dialysis. An adequate dose of hemodialysis should result in an average Kt/V of 1.2.1

What to think about
An adequate dose of dialysis can usually be delivered in 3 to 5 hours.
Inadequate doses of hemodialysis (hemodialysis URR percentages that average below 65% or Kt/V values below 1.2) increase the risk of complications and death
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
flip
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« Reply #12 on: August 28, 2008, 05:42:04 PM »

I'm familiar with URR and Kt/V. I'm wondering how accurate a GFR measurement is when a person is on dialysis.
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TynyWonder
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Calvin

« Reply #13 on: August 28, 2008, 05:44:01 PM »

Thanks boxman, I am going to send that to him and see what he says...........thanks so much!
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
Wallyz
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« Reply #14 on: August 28, 2008, 05:54:19 PM »

Yes, you can get along with 10% kidney function, but its like trying to breathe with 10% lung function.

Flip, i think so, because they tried to add my residual function to my clearance to say that 3 days was enough in center.  I argued that I needed 4 ,as it was decreasing rapidly,and they relented.
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Rerun
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« Reply #15 on: August 28, 2008, 06:51:14 PM »

Just tell your uncle that he can live with one kidney just fine!  That is all he needs to know!  Get It? 

                                                                                                          :waving;
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okarol
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« Reply #16 on: August 28, 2008, 07:03:32 PM »

Just tell your uncle that he can live with one kidney just fine!  That is all he needs to know!  Get It? 

                                                                                                          :waving;

Yeah, tell him he can give you one and see it in action!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #17 on: August 28, 2008, 07:18:08 PM »

Just tell your uncle that he can live with one kidney just fine!  That is all he needs to know!  Get It? 

                                                                                                          :waving;

Yeah, tell him he can give you one and see it in action!

Ummmm, you might want to rephrase that one.  :rofl; :rofl; :rofl; :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
flip
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« Reply #18 on: August 28, 2008, 07:38:31 PM »

If I take my serum creatinine from the latest labs and plug it in to the GFR calculator, I come up with 19. I'm assuming that reflects my 10% from dialysis plus my residual kidney function.
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That which does not kill me only makes me stronger - Neitzsche
TynyWonder
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Calvin

« Reply #19 on: August 28, 2008, 07:41:50 PM »

Thanks guys for so many responses!   :rofl; I am sure I can just tell you all that he was/is beginning to irriate with me all his questions like in "how" he asks them...........it's kinda like in disbelief of everything to do with the dialysis machine and kidney failure?????  WTF?!!!  U KNOW?  Anyway, I am definitely going to ask them tomorrow at dialysis and I will report back to yall and him, deal?    :)  Until then, tho, keep the responses coming, I am enjoying them!

Tammy
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
twirl
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« Reply #20 on: September 05, 2008, 04:11:54 PM »

you will be tired
you may come home with bloody clothes
your arm will change as time goes on
you will be cranky
but you will be alive :flower;
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