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Author Topic: Does Anyone Else Have This Problem???  (Read 7533 times)
sickofbeingsick
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« on: July 28, 2008, 10:38:38 PM »

Nausea and upset stomach after you eat. Almost immediately after I eat the last bite of anything--I feel like I have to puke (thankfully I never do). I've actually had to leave restaurants to go lay down in the car. This has been going on since I've been a patient--10 YEARS with  no end in sight. And I don't overeat either--my appetite never came back since I was diagnosed. I eat very little. Anyone else suffering with this? If so is there anything I can do? I appreciate any info you can give me.
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KICKSTART
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In da House.

« Reply #1 on: July 29, 2008, 03:40:51 AM »

I have bouts where i hardly eat anything then days were i eat like a horse ! Some days i feel sick after food , but mostly im sick in the evening , i tend to put it down to the toxins in our bodies , but sometimes the medication you are on can be the problem.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
peleroja
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I have 16 hats, all the same style!

« Reply #2 on: July 29, 2008, 06:47:36 AM »

I recently discovered that the Phoslo I had been taking for 5 years was causing nausea, but only at breakfast.  I finally figured out to take it after breakfast on a full stomach instead of before on am empty one.  Could it be your phosphorus binder?
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jbeany
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« Reply #3 on: July 29, 2008, 09:49:31 AM »

I was sick to my stomach from the Sensipar - every meal, no matter what one I took it with.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

glitter
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« Reply #4 on: July 29, 2008, 08:38:24 PM »

My husband has nausea after every meal- sometimes he pukes-sometimes not. It used to be so much more incredibly severe, after much med. switching, and his body just having had time to heal and adjust to no kidneys (he had perfect function-  cancer took his last kidney) it has settled down.
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
pelagia
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« Reply #5 on: July 30, 2008, 08:02:39 PM »

Stephen can not take any meds on an empty stomach.  If he does he gets sick.  With even a little food he is usually fine.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
monrein
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Might as well smile

« Reply #6 on: July 31, 2008, 04:01:43 AM »

Same here, especially prednisone.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Jess21
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WWW
« Reply #7 on: August 09, 2008, 11:02:42 PM »

I feel sick for the first about hour I'm awake in the morning, since I take my sensipar before bed.
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
G-Ma
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« Reply #8 on: August 10, 2008, 12:18:47 AM »

Well shoot...I've been having major stomach problems since starting taking Sensipar during my evening meal like I was told by the Dr., so now they said to take it before bed so that's what I will start tonight...now I don't know about that either.  But my PTH has dropped.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
TynyWonder
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Calvin

« Reply #9 on: September 13, 2008, 12:02:22 PM »

I had been taking for Phoslo for almost 2 years, the entire time I have been on dialysis, but just recently, it started making me VERY nausea once I would take it after I ate.   I would eventually throw up and would not feel nausea afterwards but still would feel like crap from just throwing up.  So, after a few times of telling my dietician she suggested to the neph to switch me to Renvela and so far, I think I have only gotten nausea & threw up twice.   You did not say what, if any, binders you are taking?  Are you feeling better?   Let us know how you are doing.    :waving;

~Tammy~    :bandance;
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
G-Ma
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« Reply #10 on: September 13, 2008, 07:19:51 PM »

Hi Tammy...yahoo..Binders....I just got BACK on Phoslo...one neph took me off and put me on Fosrenol for some reason and I hated it..hated it...and finally got back on Phoslo..I take it before I eat and never a problem....this is why I have Fosrenol 1000 to give away as soon as possible...I want it gone....I feel good physically but just can't shake the depression that happens every few weeks....or more....oh and I got to stop the sensipar for now...go figure, just bought another refill...pharmacies are loving us   :rofl;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
TynyWonder
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Calvin

« Reply #11 on: September 14, 2008, 01:10:23 PM »

G-Ma,

I have seen Sensipar mentioned a couple of times now............what is it and why do you have to stop taking it? 
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
twirl
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« Reply #12 on: November 15, 2008, 02:01:48 PM »

I do not take sensipar - I had the surgery
my calcium is low
I forget to take phsolo
I am throwing up about thirty minutes after I eat
last night, I had to pull over to the side of the road and throw-up
I feel a little dizzy and then :puke;
I busted a vein in my left eye from gagging
getting a little worried
I do not need another problem now
who does
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kitkatz
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« Reply #13 on: November 15, 2008, 04:41:11 PM »

 :grouphug; :grouphug; :grouphug;  Giant hugs to you Twirlie!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
jbeany
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« Reply #14 on: November 15, 2008, 04:45:12 PM »

G-Ma,

I have seen Sensipar mentioned a couple of times now............what is it and why do you have to stop taking it? 
TW, Sensipar is a pill for lowering parathyroid hormone levels (PTH).
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

monrein
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Might as well smile

« Reply #15 on: November 15, 2008, 04:56:08 PM »

Twirl, I'm sending you hugs.  You do not need anything else going strange.  :grouphug; :cuddle; :cuddle; :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Budluv
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« Reply #16 on: December 10, 2008, 03:22:25 AM »


   Hi.
   If your on the transplant list this is a bad Idea. but if your not, I highly recommend pot. it has helped me with appetite and insomnia. Lot's more than the crap the doctor give me.
They say there is a mold that grows on weed that can cause you to lose your transplant. I wonder.  There are also a few elderly people at my clinic that smoke. they say that it makes all the difference in the world for them.  Again, if your on the transplant list it's not a good idea.. 
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