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Author Topic: Epoman Story  (Read 8462 times)
hashim50
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« on: June 09, 2008, 03:16:55 PM »
I would love to read all of Epoman's story but I can't find any of his updates.  Can someone PLEASE tell me how to find them?
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WOW!! What a ride.
Sluff
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« Reply #1 on: June 09, 2008, 07:16:04 PM »
Quote from: hashim50 on June 09, 2008, 03:16:55 PM
I would love to read all of Epoman's story but I can't find any of his updates.  Can someone PLEASE tell me how to find them?

Some of which can be found in his introduction thread: http://ihatedialysis.com/forum/index.php?topic=25.0

and  also through his journey and experience with Nxstage Here:  www.ilovenxstage.com
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kitkatz
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« Reply #2 on: June 09, 2008, 08:34:08 PM »
He added to his story on the one thread entry as he went along.  It is along thread to read. Unfortunately he no longer can update us, although I am sure he is watching us grow.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
hashim50
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« Reply #3 on: June 10, 2008, 11:00:55 AM »
Sorry - maybe I am stupid, but the I read his intro post and it stops at whether or not he will get his voice back.  Then he says he updated but I cannot find those updates.  Could you copy the link and send it to me.  I've tried and tried but without success.
Thanks
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okarol
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« Reply #4 on: June 10, 2008, 11:08:29 AM »

I believe the last update was Dec. 17, 2006 (my birthday!)  :-\
Sadly Epoman passed away nearly 2 months later http://ihatedialysis.com/forum/index.php?topic=2946.0  :'(
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
hashim50
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« Reply #5 on: June 10, 2008, 12:24:37 PM »
Thank you Okarol but when I click on that link it takes me to Goofynina and her tribute to him.  I still can't find the continuation of his intro's. HELP
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okarol
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« Reply #6 on: June 10, 2008, 03:28:19 PM »
His introduction is posted here http://ihatedialysis.com/forum/index.php?topic=25.msg52#msg52 in it's entirety, 1st post, and it begins 08/13/05 and ends 12/17/06.
To answer your question though, he did get his voice back. I spoke to him for over an hour right after my daughter's transplant in January 2007.
There are a few more threads that tell the recent events prior to his death here:
Dec. 2006 http://ihatedialysis.com/forum/index.php?topic=2058.0 !!!!!!!!!!!!!!!!!!! Goofynina & Epoman MEET AT LONG LAST !!!!!!!!!!!!!!!!!!!
Dec. 2006 http://ihatedialysis.com/forum/index.php?topic=2083.0 Amazing gifts I received from some of the IHD members. I am speechless.
Jan 2007 http://ihatedialysis.com/forum/index.php?topic=2369.0 **=== RSNHOPE.ORG Presents: The 2007 8th Annual Renal Teen Prom.===** PICS!
« Last Edit: June 10, 2008, 03:41:42 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
hashim50
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« Reply #7 on: June 10, 2008, 03:39:11 PM »
 :thumbup; THANKS - I understand. I have read it all.  Did he ever get his voice back?
What an amazing story!  I'm sorry I missed him.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #8 on: June 10, 2008, 03:42:58 PM »


Oops I was modifying the message above when you posted. He did get his voice back. check out the above threads. Thanks. We miss him.  :(
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #9 on: June 10, 2008, 03:44:23 PM »

hashim50 - it's YOUR turn to post an introduction!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
hashim50
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« Reply #10 on: June 10, 2008, 06:12:35 PM »
I would tell my story but its boring and not unlike so many others here.  If you know Warren Zevon's song - My Sh*ts F*cked Up - that's my story. You can Google it and hear it for yourself. Enjoy!
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monrein
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Might as well smile
« Reply #11 on: June 10, 2008, 06:24:54 PM »
We don't find anyone's story boring.  Really we don't.  But we do like to know a little bit about your situation.  Like, are you on dialysis?  Failed transplant (like me)?  Caregiver?  You get the idea.  We all do it in the Intro section and you can be quite brief if you must, but I love reading everyone's story and don't find any of them boring.  Details are just fine.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #12 on: June 10, 2008, 06:25:10 PM »
We want to get to know YOU, not just your kidney story. So please take a minute and give us a glimpse! Epoman would like it. He loved intros.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Romona
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« Reply #13 on: June 10, 2008, 06:40:19 PM »
Inquiring minds want to know. Pretty please!
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Sluff
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« Reply #14 on: January 22, 2009, 05:42:30 AM »
Waiting patiently for a documentary on Epomans vision...
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Chris
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« Reply #15 on: January 22, 2009, 07:48:12 AM »
That would be cool to watch Sluff.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Romona
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« Reply #16 on: January 22, 2009, 01:42:55 PM »
i think it would be an inspiring story. Not just for people with kidney disease, but other illnesses.
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coorsbob
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I dont live for dialysis, I do dialysis to live.
« Reply #17 on: January 23, 2009, 02:53:22 AM »
Needs to be on the Lifetime network in a movie. now that one id would watch.
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Diabetic 1990
Discovered Bladder defect 1995
Bladder Surgery 1995
Retinal Hemorrhage 2005
Eye surgery 2005
ESRD February 2008
Perm-Cath installed March 2008
In-center Hemo March 2008
PD Cath installed July 2008
CA PD June 2008
CC PD November 2008
Fistula placed Sept 2009
Training for Home Dialysis on the NxStage System One January 2010
Chris
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« Reply #18 on: February 01, 2009, 09:57:56 AM »
If it's on Lifetime, I would have to reprogram TV. That's one channel I deleted along with the shopping channel, oprah channel, spanish channels and any other channel that isn't guyish  ;D

Wouldn't network TV be better or TNT (they like drama). Ned it on a channel that has maximum exposure and viewers as possible.I could also se it on TLC, Discovery health (wish I still had that one)

Hope for the best, but except what you can get. :2thumbsup;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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