One thing you guys need to be aware of, is that Epoman does not want to start sections that turn into ghosttowns. So if he does start, on your requests, please keep it humming!
We have lots of caregivers and concerned persons on this site, and this could be a very valuable section.
I understand that Epoman would have concerns but can we at least try it -- and if it doesn't stay busy just delet it or fold it into the general discussion later? Is that possible?
There are times I consider posting something as a spouse but hesitate because I can't decide how to title it so other spouse/caretakers could identify it as spouse related, and so that others wouldn't waste their time on a spouse related comment/question -- especially when it actually isn't actually anything medical/kidney/dialysis related but does relate to the problems or solutions we now have in our lives because of them.
This site is mushrooming and it is going to become overwhelming for the Newbies if it isn't finely categorized. BUT, at the same time I want to make it as easy as possible on Epoman. I'm not web savvy, but can't too much detail get unwieldy!?!
Anyway, if we get a special place for spouse posts, can there be a sticky w/ general info and tips for getting started as a spouse coping w/ their special circumstances? Something sorta' like:
1) educate yourself about ESRD, but remember to take care of yourself too.
2) acceptance of a chronic disease often goes through stages similar to the grieving process after a death -- be prepared to deal w/ those emotions if they arise.
3) remember the anger may at times be directed at you but they are really angry at the disease/situation
4) remember that you can support, educate, sympathize, and empathize but they are the one going through it and you can't do it for them, and never forget that they are the one who in the end has to make the actual decisions.
5) be sure you have the paperwork necessary to have access to their medical records and understand that you do have the right to advocate for them when they are too ill/tired to do so for themselves
6) be sure you set up a means of keeping track of all appointment/tests/labs
Well, you get the idea. Can we all add to it w/ someone doing edits and rewrites through e-mail, chats, and/or here, until we get a good introduction for spouses dealing w/ these problems??
Wouldn't it be helpful to have a link to the spouse section in the introduction?
Just my thoughts -- feel free to edit, modify, delete.
Lorelle
I Hate Dialysis Message Board
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