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Author Topic: NxStage dialysis overnight on a 36' Grand Banks in WA's beautiful San Juans  (Read 8613 times)
Bill Peckham
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« on: May 23, 2008, 10:44:57 PM »

Yaaarg I'm back at sea this time doing extended nocturnal treatments on the same boat I had last summer. You can follow along at my blog.
http://www.billpeckham.com/
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
jbeany
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Cattitude

« Reply #1 on: May 24, 2008, 10:24:56 AM »

Sounds wonderful, Bill!  Wishing you smooth sailing!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Romona
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« Reply #2 on: May 24, 2008, 10:38:17 AM »

Sounds fun.
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Meinuk
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« Reply #3 on: May 24, 2008, 10:47:59 AM »

15' waves, gale force winds and that was just the first night?  (and some people think that dialysis is scary)

You know Bill, for many people with CKD 5 just leaving the house is an adventure.  You manage to Captain a boat through a storm for 9 hours, Captain two tables at the NKC  Breakfast of Hope (attended by 800 people) and then sail off on vacation, all in a 24 hour timespan.  I hope that the rest of the week is calm and relaxing.

Thanks for sharing your adventures.  I can't wait for pictures
« Last Edit: May 24, 2008, 10:52:06 AM by Meinuk » Logged

Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
Bill Peckham
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« Reply #4 on: May 25, 2008, 09:12:54 AM »

All in a day's work Anna.

We saw whales yesterday! :bandance; :bandance; :bandance;

http://www.billpeckham.com/from_the_sharp_end_of_the/2008/05/friday-harbor-t.html
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Meinuk
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« Reply #5 on: May 25, 2008, 09:20:02 AM »

All in a day's work Anna.


And all of your hard work is deeply appreciated.....   :)

But, yesterday would have been a good time to pull out the video camera.  (I'm just sayin')



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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
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A meow massages the heart.

« Reply #6 on: May 25, 2008, 09:24:36 AM »

Sounds like you are having an excellent time!
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kitkatz
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« Reply #7 on: May 25, 2008, 11:45:32 AM »

That is awesome!  We saw some hopping but not breaching when we went whale watching in the San Juan Island area.  How cool!
« Last Edit: May 26, 2008, 12:06:08 PM by kitkatz » Logged



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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

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« Reply #8 on: May 25, 2008, 03:33:20 PM »

Best of luck with all your adventures Bill.  And thanks for the blog so we can do a little vicarious living.  The storm is all yours though.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Bill Peckham
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« Reply #9 on: May 25, 2008, 04:14:08 PM »

All in a day's work Anna.


And all of your hard work is deeply appreciated.....   :)

But, yesterday would have been a good time to pull out the video camera.  (I'm just sayin')

My little digital camera doesn't do a great job in that situation - example see my attempt at video of the seals earlier this year http://video.google.com/videoplay?docid=-7719155830391117703

Photographing whales is pretty hard to do because by the time the whale comes up and you get the camera around it's back down. If I had a good video camera I could get the a photo from a single frame. Someday I'll break down and buy a decent digital video camera.

The other frustrating thing is that unlike the old film cameras there is a second or two delay between pressing the button and the camera actually taking the picture. THis drives me nuts and I can't understand the reason for it. Is there a reason for it? It seems like many of the digital cameras have this delay.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Meinuk
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« Reply #10 on: May 25, 2008, 04:41:33 PM »


The other frustrating thing is that unlike the old film cameras there is a second or two delay between pressing the button and the camera actually taking the picture. This drives me nuts and I can't understand the reason for it. Is there a reason for it? It seems like many of the digital cameras have this delay.


It is the auto-focus.  Only way to get around that is to have someone on your boat with a Nikon D200 or the equivalent with manual override.  Even still, it is a difficult shot to get.  You did the right thing by just relaxing and enjoying the show.  As a current landlubber, I reserve the right to tease! If the boat had been sail, I'd be completely beside myself with envy.

I feel your pain with regard to the action shot.  I've never snapped a whale breaching, but I have gotten some amazing dolphin shots.  (my theory is that Dolphins are hams for the camera)   

All teasing aside, the updates and the pictures really are appreciated.  For me, it is vicarious armchair travel while listening to the hum of my NxStage.
« Last Edit: May 25, 2008, 04:56:34 PM by Meinuk » Logged

Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
Sluff
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« Reply #11 on: May 25, 2008, 05:50:08 PM »

Thanks for sharing your adventures with us.
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Zach
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« Reply #12 on: May 25, 2008, 06:59:35 PM »

Bill, you are certainly proving that being a person on dialysis is not the end of the world.
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Bill Peckham
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« Reply #13 on: May 25, 2008, 07:24:23 PM »

I don't know Anna - why didn't the old SLRs need time to auto focus?

I've updated the blog with a video that shows my set up. The video is bit dark but it is shot with my four year old Olympus. I'd really like to upgrade my equipment from the camera to the laptop but I expend energy to not want things.

Omm. Omm. The computer is fine. the camera is fine. Omm. Omm.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Meinuk
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« Reply #14 on: May 26, 2008, 05:40:29 AM »


I don't know Anna - why didn't the old SLRs need time to auto focus?


I actually don't remember shooting with an auto focus SLR, so I can't comment on their lag times. (I know that I have used AF with friend's cameras, but I just don't remember) All of my 35mm were manual/manual override, then I gave up and switched to point & shoot digital.  First camera Nikon EM (I love that camera) then I graduated to a Nikon F3.  I used the F3 for photographing Showjumpers when I was living in Belgium.  Snapping a horse mid-air isn't as elusive as a whale breaching but it is still a challenge.  Now, the EM sits on a shelf, I sold the F3 and I use a Canon S400 point & shoot.

Zach?  Do you have any insight on digital shutter lag?

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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
Zach
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"Still crazy after all these years."

« Reply #15 on: May 26, 2008, 08:26:46 PM »


Zach?  Do you have any insight on digital shutter lag?


Nope. I'm just an analog guy in a digital world.
 8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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