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Author Topic: neck fistula, anyone?  (Read 30577 times)
kevno
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« Reply #25 on: July 21, 2006, 02:28:04 PM »
I am stuck with the caths in my neck. Only one needle can be used in my fistula (when I let them) Have not had a needle for about 6 months now. Just let the nurses use my lines in my neck. Pump speeds crap 220-250.
Less with the needle.
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Panda_9
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« Reply #26 on: July 21, 2006, 06:32:55 PM »
Why dont they use your fistula kevno?
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angieskidney
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« Reply #27 on: July 22, 2006, 04:50:11 AM »
Quote from: kevno on July 21, 2006, 02:28:04 PM
lines in my neck. Pump speeds crap 220-250.
Less with the needle.
Less with the needle? Wow! That is unusual isn't it? Is that why they aren't using the fistula?
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diagnosed ESRD 1982
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kevno
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« Reply #28 on: July 23, 2006, 03:43:21 PM »
My So called fistula got formed in 1980. I got EPS in 2001 and because I got so dry the fistula stopped. The Surgeons had a go at revamping it 2002. After 44 staples up my arm. Only a 2 inch stretch of the fistula worked. Had all test done to see if it can be made to work better, but nothing can be done. All my veins in my arms are to small even to do a graph now. 34 years of needles in both arms have finished the veins off. All I have now are the lines in my neck, which the nurses can never get a pump speed over 250 usually less. I am starting to feel that I am not being dialyized enough. Getting very tired, losing weight plus my URRS are only at 63% Normal for the unit 70 - 75%. Been back on dialysis for 18 years, 12 years on CAPD which I felt great. 6 years on haemo which I feel like crap.
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But this little saying keeps me going!!

"RENAL PATIENTS NEVER GIVE UP!!!!!!"
TrophyWife
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« Reply #29 on: July 23, 2006, 04:29:19 PM »
Hi Kevno!
Your veins are too small even for a graft? oh gosh.....How long do you stay on the dialysis machine each time? I'm scared my father's veins are gong to be too small also. We see Tuesday ??? What is a "normal" pump speed?
You just got back from the hospital right? Welcome Back!
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kevno
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« Reply #30 on: July 23, 2006, 04:58:27 PM »
Four hours 3x a week. That is all that every pateint on the unit gets. When my fistula used to work OK Got about 300 - 350 pump speed. But some patients can get over 400 pump speeds.
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But this little saying keeps me going!!

"RENAL PATIENTS NEVER GIVE UP!!!!!!"
Panda_9
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« Reply #31 on: July 23, 2006, 06:10:37 PM »
No wonder you are feeling like crap kevno, 4x3 just isnt enough. It shits me that this is all most units can offer.
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angieskidney
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« Reply #32 on: July 23, 2006, 06:29:13 PM »
Quote from: TrophyWife on July 23, 2006, 04:29:19 PM
Hi Kevno!
Your veins are too small even for a graft? oh gosh.....How long do you stay on the dialysis machine each time? I'm scared my father's veins are gong to be too small also. We see Tuesday ??? What is a "normal" pump speed?
You just got back from the hospital right? Welcome Back!

I thought top speed was 400 .. everyone is posting their speeds here ;)

Quote from: kevno on July 23, 2006, 04:58:27 PM
Four hours 3x a week. That is all that every pateint on the unit gets. When my fistula used to work OK Got about 300 - 350 pump speed. But some patients can get over 400 pump speeds.

I get 3.5 hrs 3x a week and I feel fine. Just my bp tends to drop low and my pulse is always high.
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PD 2/90 - 4/90, 5/02 - 6/05
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Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
Panda_9
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« Reply #33 on: July 25, 2006, 05:33:31 AM »
Do you have any kidney function left angie?
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angieskidney
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« Reply #34 on: July 25, 2006, 08:05:34 PM »
Quote from: aMbEr_79 on July 25, 2006, 05:33:31 AM
Do you have any kidney function left angie?
absolutely none at all.
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diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
kitkatz
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« Reply #35 on: July 25, 2006, 08:29:33 PM »
So our little Angie
Does not pee
Even when she drinks Pepsi!

Teehee!Teehee!

Could not resist the tease!
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
angieskidney
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« Reply #36 on: July 25, 2006, 08:31:36 PM »
Quote from: kitkatz on July 25, 2006, 08:29:33 PM
So our little Angie
Does not pee
Even when she drinks Pepsi!

Teehee!Teehee!

Could not resist the tease!

LMAO (means = laughing my ass off ;) lol)

I love it :P Though I only drink Pepsi when I sneak sips from Sandman's can ;) :D
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diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
sandman
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« Reply #37 on: July 25, 2006, 08:35:32 PM »
Quote from: angieskidney on July 25, 2006, 08:31:36 PM
Quote from: kitkatz on July 25, 2006, 08:29:33 PM
So our little Angie
Does not pee
Even when she drinks Pepsi!

Teehee!Teehee!

Could not resist the tease!

LMAO (means = laughing my ass off ;) lol)

I love it :P Though I only drink Pepsi when I sneak sips from Sandman's can ;) :D

And fortunately for me, my kidneys seem to work fine.  No insults intended.
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kitkatz
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« Reply #38 on: July 25, 2006, 08:53:10 PM »
Whama! Whamsa!
For Sandmansa.
He can go pee
When he drink Pepsi.
 And he should not tease
Poor little Angie and Me!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
angieskidney
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« Reply #39 on: July 25, 2006, 09:00:44 PM »
Quote from: kitkatz on July 25, 2006, 08:53:10 PM
Whama! Whamsa!
For Sandmansa.
He can go pee
When he drink Pepsi.
 And he should not tease
Poor little Angie and Me!

Or ..

Bad bad man
That's what you are Sandman!

The sa is just .. well I will tell him to tell you ;)
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diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
sandman
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« Reply #40 on: July 25, 2006, 09:03:03 PM »
Quote from: kitkatz on July 25, 2006, 08:53:10 PM
Sandmansa.

Actually, It's suppose to be Sandman[SA] but this forum does not allow anything other then letters in your name.  ::)  But, the [SA] = Server Admins.  The name of my Team Fortress Classic and Natural Selection online gaming team.
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kitkatz
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« Reply #41 on: July 25, 2006, 09:04:39 PM »
or....

Sandman, Sandman
Bad little man
You should not pee
all over me
when you drink tea!
Nor should you offer Pepsi
to me or Angie.

(Waaaaayyyyyy off topic!)
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
angieskidney
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« Reply #42 on: July 25, 2006, 09:06:47 PM »
Quote from: kitkatz on July 25, 2006, 09:04:39 PM
or....

Sandman, Sandman
Bad little man
You should not pee
all over me
when you drink tea!
Nor should you offer Pepsi
to me or Angie.

(Waaaaayyyyyy off topic!)


That is soooo good and funny and true that you should copy that over to the poetry section so we can find it again and again !!! I LOVE IT!!! Woot! :)
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diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
kitkatz
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« Reply #43 on: July 25, 2006, 09:13:38 PM »
Well shoot!  Lost that post in the back of beyond!
Back on topic.
I have never had a neck catheter.  I did have a doctor try to put one in my neck.  He tried at least twenty times and could not get it into the artery.  It hurt like hell too. I was very patient with him.  Then he slipped in the clavicle/ shoulder catheter and managed to nick a lung giving m pleurisy for a few weeks.  Hurt like Hell to breathe for two weeks.  The vascular surgeon who saw me a day later in the emergency room was pissed. The guy had put in the wrong type of catheter to use in the chest area. He had to do it all over again.  More pain for me.  I was pissed by the end of all of this.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
angieskidney
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« Reply #44 on: July 25, 2006, 09:20:29 PM »
what is pleurisy?
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diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
kitkatz
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« Reply #45 on: July 25, 2006, 09:24:09 PM »
When the lining of the lungs get inflamed or irritated.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
angieskidney
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« Reply #46 on: July 26, 2006, 12:39:12 AM »
Quote from: kitkatz on July 25, 2006, 09:24:09 PM
When the lining of the lungs get inflamed or irritated.
ah okay. Thank you :)
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diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
kevno
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« Reply #47 on: July 26, 2006, 06:41:16 AM »
kitkatz you are always inflamed and irritated >:D

Right how to torment the  6th Grade Teacher next :-\ Better watch out for that big stick. When I was at school we got caned. Can not count how many times I got caned off the headmaster. Plus it was never my FAULT ;D
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But this little saying keeps me going!!

"RENAL PATIENTS NEVER GIVE UP!!!!!!"
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