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monrein
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« on: April 14, 2008, 03:48:41 PM » |
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They did my fistula surgery this morning and everything went well. It's in my inside elbow area and is buzzing loud and clear. My arm feels a bit sore but nothing hard to take and the worst thing was the botched IV insertion which has left my right hand purple. So, one small hurdle over.  |
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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twirl
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« Reply #1 on: April 14, 2008, 04:03:37 PM » |
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Keep on buzzing!
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bolta72
Sr. Member
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my best friend
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« Reply #2 on: April 14, 2008, 04:46:55 PM » |
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gotta do what I gotta do.. 2 yrs in ctr hemo
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mark m
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« Reply #3 on: April 14, 2008, 04:55:01 PM » |
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Life is good.
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flip
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« Reply #4 on: April 14, 2008, 05:13:25 PM » |
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Good deal, Monrein. Don't forget to do your squeezing exercises, it will mature much faster.
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That which does not kill me only makes me stronger - Neitzsche
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boxman55
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« Reply #5 on: April 14, 2008, 05:25:03 PM » |
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Make sure you don't lift anything over 10-15lbs for a while...Boxman
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 "Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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monrein
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« Reply #6 on: April 14, 2008, 07:38:15 PM » |
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Gee Boxman you mean I can't enter that weight lifting competition at the gym that I signed up for. I'm crushed.  Thanks for the reminders. I promise to squeeze and not lift. They told me that it might take longer for this one to mature because of all the drugs I've been taking for the past 23+years. We'll see. |
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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Rerun
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« Reply #7 on: April 15, 2008, 07:24:41 AM » |
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Sit down and take a deep breath before you take off the bandage. They cut me from my elbow to my arm pit and I about passed out when I saw it. I was fine before that.
Best of luck.
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2_DallasCowboys
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« Reply #8 on: April 15, 2008, 07:37:16 AM » |
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Very happy to read your fistula surgury went well.
I hope it matures quickly for you, and keeps rite on
buzzin away!
Anne
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monrein
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« Reply #9 on: April 15, 2008, 07:40:55 AM » |
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Rerun, that sounds like a nightmare. I only have about a three inch slash across the inside elbow pit area. Three steristrips and a small gauze cover it right now. Sounds like they had to bring your vein to the surface or something. They told me that would be plan B if the vein seemed too deep. Another year another scar. Lord we go through a lot.
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Logged
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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twirl
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« Reply #10 on: April 15, 2008, 07:43:34 AM » |
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 don't worry people will be looking at your face; not your arm
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flip
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« Reply #11 on: April 15, 2008, 04:32:16 PM » |
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Sit down and take a deep breath before you take off the bandage. They cut me from my elbow to my arm pit and I about passed out when I saw it. I was fine before that. Mine is on the wrist, about 1" long and hardly visible. |
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That which does not kill me only makes me stronger - Neitzsche
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kellyt
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« Reply #12 on: April 15, 2008, 04:39:21 PM » |
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Sit down and take a deep breath before you take off the bandage. They cut me from my elbow to my arm pit and I about passed out when I saw it. I was fine before that.
Best of luck.
You and I must have had the same surgeon, Rerun. I have the same thing. |
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
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Ang
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« Reply #13 on: April 15, 2008, 06:22:09 PM » |
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if its a good strong buzz it can put you to sleep.
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live life to the full and you won't die wondering
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monrein
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« Reply #14 on: April 15, 2008, 06:53:23 PM » |
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Yeah no need to go to the beach to listen to the ocean. Whoosh whoosh man those waves are powerful.
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Logged
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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NolaGail
Jr. Member
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Posts: 78
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« Reply #15 on: April 16, 2008, 12:00:14 PM » |
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 Keep on buzzin' monrein! Glad to hear it went well. NolaGail
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In His no-slip grip!
Living donor has one more test to go (4-14-2008). Her left kidney could be mine in a few months. No surgery date yet.
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KR Cincy
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Home hemodialysis since May 07
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« Reply #16 on: April 16, 2008, 12:30:32 PM » |
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Very happy to hear the fistula is in and buzzin' along. It makes for a fun party conversation..."hey, feel this!"
The scar will merely be a sign of another little victory on the road to stayin' alive! (insert Bee Gees singalong here!)
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Not giving up...thanks to Susan.
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oleboy
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« Reply #17 on: April 19, 2008, 04:31:11 PM » |
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My grandchildren thinks it's cool, pappaw buzzes, my oldest granddaughter who is 14 went to CCPD training with us, I call her Boofull[
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'hold fast your dreams for if dreams die life is a broken winged bird that connot fly.'
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Yvonne
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Yvonne
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« Reply #18 on: April 24, 2008, 12:00:29 AM » |
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Hi Good news about your fistula, and hope your well on the way to recovery. John wasn't told to listen for the buzz, we found that out for ourselves. He had to go to our local doctor to have the dressing change because he got it wet. The nurse at the surgery had never seen one before and jumped away when she felt the buzz. However John's was put into the out side wrist, and the scar is just under an inch long. Yvonne |
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
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Adam_W
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« Reply #19 on: April 24, 2008, 12:18:47 AM » |
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Glad your fistula is buzzing away! I've had two fistulas and and neither of them ever made so much as a peep. I have a left upper-arm graft and it works (when it wants to). As for scars, the ones from the actual access aren't that bad. It's just the one big "scar" from me sticking the thing six days a week in different spots each time, since I can't do buttonholes with a graft. I've had a few curious questions, including one from a guy who thought I'd burned myself really badly. I hope your fistula works well for however long you need dialysis (some have lasted 30 to 40 years).
Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007 -Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix) -Started in-centre dialysis Feb 6th 2007 (Fres. 2008H) -Started home hemo June 5th 2007 (NxStage/Pureflow) -PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now) -Started CAPD July 4th, 2008 -PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage -Kidney function improved enough to go off dialysis, Feb. 2011!!!!! -Back on dialysis (still NxStage) July 2011  -In-centre self-care dialysis March 2012 (Fresenius 2008K) -Not on transplant list yet. "Don't live for dialysis, use dialysis to LIVE" |
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G
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Let's go steal some pic-nic baskets Boo-Boo
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« Reply #20 on: May 24, 2008, 03:39:48 PM » |
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Nut'n like a robust fistula to lull you to sleep at night. My eight year daughter loves to put mine against her ear. Wierd little girl!  |
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No kidneys
No spleen
No parathyroid
On list as of 10/07
Still fun
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jbeany
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« Reply #21 on: May 24, 2008, 05:34:54 PM » |
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My cat loves to put her head on mine. She thinks I'm purring. Hope your new "wave machine" keeps on buzzing!
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality. |
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Lori1851
Full Member
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Posts: 363
This is me Lori , Dustin's mom
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« Reply #22 on: May 30, 2008, 06:30:50 PM » |
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Monrein,  Glad yours is buzzing. Dustin had 2 failed fistula surgeries they never did buzz and were put in by a Vascular surgeon. He still has his chest permcath and does very well with it. Talked about pd one time but like I told him if he is talkin about trying to get on the transplant list why bother when the permcath works great. Loir/Indiana |
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monrein
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« Reply #23 on: May 31, 2008, 04:54:53 AM » |
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Lori, I'm so sorry that both of Dustin's fistulas haven't worked. That was my fear going in too and it's awful to have any procedure and not get the expected result. I have been lucky both this time and the last time I was on dialysis many years ago with my fistulas and I'm grateful. My first cath didn't work and was changed after the first attempt to use it.
Although I'm not a big fan of them, the catheters certainly do work to dialyze with and some people have them a long time. As I understand it, it's a matter of how long a person has one and the risks are infection or damage to the vessel from long term use but if one can't get access through a fistula then thank god for the cath. I hope he gets a transplant since he's decided to go for it and that the wait isn't too long, not just because of the cath but just so he can get back into his life and feel better.
Some people love doing pd and would never want to have to do hemo but the main thing I think is that we have several options since whatever our preferences are they don't always work out.
My fistula is getting stronger all the time but I'm still not sure about when I'll begin actually using it.
Best of luck to Dustin (and a big hug to you for all the support you give him).
Gail
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Logged
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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jamoman
Newbie
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« Reply #24 on: May 31, 2008, 07:25:19 AM » |
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congrats, buzz on.
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