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The Wife
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« Reply #175 on: February 15, 2008, 03:06:21 PM »

I signed onto the site just recently and didn't have the chance to converse with Susie.  However, I did read a lot of her posts before I joined.  She always brought a smile to my heart and encouragement when I needed it most.  My heart goes out to Sam, her mom, her brother, friends, and all of the IHD family. 

Rest in Peace Susie. :grouphug;

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2_DallasCowboys
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« Reply #176 on: February 15, 2008, 04:08:15 PM »

So so sad to read we have lost Suzie.
Her posts were the first ones I read on this
site when I was just lurking, and trying to
learn about this terrible trhing that happened
to my husband.
Her humor, sweetness and loyalty were really
something!
Please rest in peace, Suzie- All of us along with
Sam and your family are gonna miss you so much!

Anne
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kimcanada
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« Reply #177 on: February 15, 2008, 04:09:58 PM »

I am speechless,  :'(

My thoughts and prayers are with Sam and family

RIP Nina, you will be missed more then you will ever know, you were so positive... :'( :'(
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« Reply #178 on: February 15, 2008, 04:10:46 PM »

I am absolutely stunned.....can hardly read posts thru my tears.
We have lost a beautiful friend.  Her words always made me laugh.....

kelli
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Sluff
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« Reply #179 on: February 15, 2008, 04:24:49 PM »

Every message in this thread is an out pouring of love and friendship, returned as received from Susie. Everyone special and unique, but no less meaning no matter how simple or well articulated. Susie is smiling down on all of us as she receives her heavenly rewards so justifiably earned.

Bajanne, That poem is so fitting, very special and powerful.

You are all special.
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Slywalker
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« Reply #180 on: February 15, 2008, 05:20:37 PM »

OMG - I just got done reading this thread.  I am so shocked, sad, crying, don't understand how this could have happened.  Goofy's posts always stood out to me when I was a major lurker trying to learn about what I was going to go through with dialysis.  Her posts were funny, friendly, caring, full of information, and everything else that the IHD family has said above me. 
Sluff you posted a beautiful tribute to her and there isn't much else to say after reading that.

Not really much more one can say that hasn't already been said - everyone loves Susie and she will be remembered forever.

Much love to Susie's family.

Sandyb    :grouphug;
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okarol
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« Reply #181 on: February 15, 2008, 06:51:16 PM »

A couple of weeks ago I picked up several get well cards so I could sent Goofynina once every couple of days.
I came across one of those musical birthday cards, and was so excited because it played What a Wonderful World by Louis Armstrong.
I crossed out the birthday greeting and sent it to her, she got it and was so happy, according to her mom.
Here are the lyrics, I too will forever associate them with Susie.

   "What a Wonderful World"

I see trees of green, red roses too
I see them bloom, for me and you
And I think to myself, what a wonderful world

I see skies of blue, and clouds of white
The bright blessed day, the dark sacred night
And I think to myself, what a wonderful world

The colors of the rainbow, so pretty in the sky
Are also on the faces, of people going by
I see friends shaking hands, sayin' "how do you do?"
They're really sayin' "I love you"

I hear babies cryin', I watch them grow
They'll learn much more, than I'll ever know
And I think to myself, what a wonderful world

Yes I think to myself, what a wonderful world
Oh yeah

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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
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Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #182 on: February 15, 2008, 07:04:18 PM »

Karol - that is one of my absolutely all time favorite songs.  The line I like the most is "I see friends shaking hands, sayin' "how do you do?"
They're really sayin' "I love you""
That is certainly what happens on the support boards/forums including this one.  And is true now more than ever.
Take care.

Sandyb   :grouphug;
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glitter
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« Reply #183 on: February 15, 2008, 07:11:57 PM »

A couple of weeks ago I picked up several get well cards so I could sent Goofynina once every couple of days.
I came across one of those musical birthday cards, and was so excited because it played What a Wonderful World by Louis Armstrong.
I crossed out the birthday greeting and sent it to her, she got it and was so happy, according to her mom.
Here are the lyrics, I too will forever associate them with Susie.

   "What a Wonderful World"

I see trees of green, red roses too
I see them bloom, for me and you
And I think to myself, what a wonderful world

I see skies of blue, and clouds of white
The bright blessed day, the dark sacred night
And I think to myself, what a wonderful world

The colors of the rainbow, so pretty in the sky
Are also on the faces, of people going by
I see friends shaking hands, sayin' "how do you do?"
They're really sayin' "I love you"

I hear babies cryin', I watch them grow
They'll learn much more, than I'll ever know
And I think to myself, what a wonderful world

Yes I think to myself, what a wonderful world
Oh yeah




Thats her song in my heart-

Goofy was the first person in my entire life who 'got it' when I talked to her about my weight....her understanding was a great gift- I will never forget her- My heart is hurting for her husband and family, even though I never met Sam, I felt the love when she talked about him (posted ), his heart must be so broken  :'(
I know she could not have loved him more,and I am so glad she was so loved in return. I am so glad she was so special to all of the people here at IHD. I will miss her .
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paris
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« Reply #184 on: February 15, 2008, 07:29:39 PM »

This song was played at my best friend's funeral (friends since the 5th grade-did everything our whole lives together) then played at my daughter's wedding for their bride and groom's first dance. My daughter was named for my friend.  Susie and I referenced it several times in posts----so even today, with tears still flowing and my heart breaking---- "I say to myself, what a wonderful world". :grouphug;
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Wade and I.

« Reply #185 on: February 15, 2008, 07:32:58 PM »

Something over the past few days has been making me think of all you guys, but mostly mah favorite girl GoofyNina. She was such a wonderful, funloving, brave and hilarious person. How heartbreaking to come here and find out. You are all, more than ever, in my thoughts and prayers.

xoxoxoxo
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Yeah .............That's me!

« Reply #186 on: February 15, 2008, 08:24:30 PM »

When I first joined the site and started exploring I found this thread. It was my introduction to Goofynina. The only thing I could think as I read this post was that I could feel the love Goofynina had for Epo. I know most of you have probably seen this one but I could not resist I had to revisit it.

http://ihatedialysis.com/forum/index.php?topic=3034.0

Thank you Goofynina for helping me admire and respect a man I never met.
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*Common Sense is an uncommon thing


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Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
kitkatz
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« Reply #187 on: February 15, 2008, 09:30:10 PM »

Finally, I am here on line.  I was so tired last night when we got home at 9p.m. I could not check in here and had to sleep.  Up almost 48 hours. Then I had work and dialysis today!

We had a nice ride up to Fresno. My husband is a God send because he drove the entire way there and back. We picked Karol up at her home and set out to see Goofynina. Not real sure of the reception we would get by a beginning to grieve family.  When we arrived a 2a.m. in the morning, that family was warm and gracious to us.  They accepted us s part of Goofynina's family.  We sat with them until 2p.m. in the afternoon beside her in the room. I watched a multitude of people who loved Susie come in and out of the room. Memories of her were shared, we would laugh, quiet would come over everyone.  We would look towards her.  Then someone else would share. Her family loved her and she brought them together. There are going to hearts missing a friend all over from now on.  I think Susie knew we were there, she got fairly agitated when Karol and I spoke to her. She was already in a comatose state but her family stated that she could hear us. In my sorrow I am glad we made the trip to see her. I was super angry at God and the unfairness of it all, however when i saw the family's acceptance of her leaving this earthly life, it soothed my anger. 

     I am so glad she was loved right until the end of her life.  To Susie's family, you all are something special!  To Sam, I know she loved you with all her heart and life. 
Susie had heart!


kitkatz,moderator



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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
thegrammalady
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« Reply #188 on: February 15, 2008, 09:55:34 PM »

i too didn't turn my computer on yesterday, i almost wish i hadn't tonight. hopefully tears won't ruin the keyboard, cause it's gettin wet. susie and i e-mailed a lot. she sent the funniest and the sweetest stuff. it hasn't settled in yet that i won't be getting any more. the following does however come to mind, from one susie to another.

May the road rise up to meet you.
May the wind be always at your back.
May the sun shine warm upon your face;
the rains fall soft upon your fields and until we meet again,
may God hold you in the palm of His hand.
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« Reply #189 on: February 16, 2008, 12:41:59 AM »

God Bless you Susie, you are loved by all.. Until we meet again, my friend....

              
                   Walking Her Home


http://www.youtube.com/watch?v=PVZiWTmKNc0&feature=related

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Meinuk
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« Reply #190 on: February 16, 2008, 04:35:34 AM »

Last year, when I had a cloud of dread and darkness hovering over me, I met this woman, Susie, and she was a ray of sunshine.

Quickly as I came to know her, I discovered that she had this unlimited capacity for love. From her computer in her home in Madera, she traveled the world, touching lives far far away, me in New York, others in Canada, England, the Caribbean, Australia and all over the United States.

As I got to know Susie, I found that this was common.  She loved her husband so much, she married him three times.  Susie saw the best in people. In the children that she cared for in her Day Care Centers – to her loving family who were always at her side.  I remember one night when we were speaking on the phone and she’d say “here, say hi to my mom” and she’d hand the phone to her mother.  Susie wasn’t shy about using the telephone and she wanted everyone in her life to know each other.  Susie shared. Susie was easy to love because she had such capacity for love.

When I finally “met” Susie in Las Vegas, she was a vision in a purple boa, tiara and sash.  What joy she brought when she walked into the room, the strength of a hug, the sound of her laughter, the depth of her compassion.  Susie touched my life, and I am so happy to have known and loved her.

Her words are silenced now, and she lives on in our memories and our hearts.  In that sense, the love that she brought into our world will live forever.

I miss you Susie, you left us too soon.
« Last Edit: February 16, 2008, 07:46:29 AM by Meinuk » Logged

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52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #191 on: February 16, 2008, 04:51:57 AM »

Last year, when I had a cloud of dread and darkness hovering over me, I met this woman, Susie, and she was a ray of sunshine.

Quickly as I came to know her, I discovered that she had this unlimited capacity for love. From her computer in her home in Madera, she traveled the world, touching lives far far away, me in New York, others in Canada, England, the Caribbean, Australia and all over the United States.

As I got to know Susie, I found that this was common.  She loved her husband so much, she married him three times.  Susie saw the best in people. In the children that she cared for in her Day Care Centers – to her loving family who were always at her side.  I remember one night when we were speaking on the phone and she’d say “here, talk to my mom” and she’d hand the phone to her mother.  Susie wasn’t shy about using the telephone and she wanted everyone in her life to know each other.  Susie shared. Susie was easy to love because she had such capacity for love.

When I finally “met” Susie in Las Vegas, she was a vision in a purple boa, tiara and sash.  What joy she brought when she walked into the room, the strength of a hug, the sound of her laughter, the depth of her compassion.  Susie touched my life, and I am so happy to have known and loved her.

Her words are silenced now, and she lives on in our memories and our hearts.  In that sense, the love that she brought into our world will live forever.

I miss you Susie, you left us too soon.


I hadn't cried about Susie until I read your post, so now I'm sitting here crying  :'(  :'(  :'(  :'(   :'(

Beautiful Words and Description of a Beautiful Lady  :grouphug;  :cuddle;  :grouphug;
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after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!

« Reply #192 on: February 16, 2008, 05:36:24 AM »

I am so deveastated, jeez where do I start? To Sam and her family my deepest sympathy and codolences. Susie was an inspiration to us all. I too in my lurking days used to especially look for Goofynina posts. Her kindness, generosity of spirit and her hilarious sense of humour were spellbinding. So many of us have never met her and damn well wish we had had that honour but even so we all knew and loved her though her posts and work for IHD. I did speak to her once on the phone around the time of the Vegas meeting and I'll treasure that memory.

I  think the thing that struck me the most about her apart from her genuine concern she had for us was how overjoyed and grateful she was when any of us showed concern for her. Susie I wish you could read these posts but really you don't have to because you must have known already how much we all love you. Rest in Peace Susie, we'll never forget you. :grouphug;     
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« Reply #193 on: February 16, 2008, 05:52:20 AM »

Finally, I am here on line.  I was so tired last night when we got home at 9p.m. I could not check in here and had to sleep.  Up almost 48 hours. Then I had work and dialysis today!

We had a nice ride up to Fresno. My husband is a God send because he drove the entire way there and back. We picked Karol up at her home and set out to see Goofynina. Not real sure of the reception we would get by a beginning to grieve family.  When we arrived a 2a.m. in the morning, that family was warm and gracious to us.  They accepted us s part of Goofynina's family.  We sat with them until 2p.m. in the afternoon beside her in the room. I watched a multitude of people who loved Susie come in and out of the room. Memories of her were shared, we would laugh, quiet would come over everyone.  We would look towards her.  Then someone else would share. Her family loved her and she brought them together. There are going to hearts missing a friend all over from now on.  I think Susie knew we were there, she got fairly agitated when Karol and I spoke to her. She was already in a comatose state but her family stated that she could hear us. In my sorrow I am glad we made the trip to see her. I was super angry at God and the unfairness of it all, however when i saw the family's acceptance of her leaving this earthly life, it soothed my anger. 

     I am so glad she was loved right until the end of her life.  To Susie's family, you all are something special!  To Sam, I know she loved you with all her heart and life. 
Susie had heart!


kitkatz,moderator


Thank you to you and Karol for including me in your visit. Karol held the phone to Susie's ear and it gave me a chance to tell her how much I and the members of IHD love her and how she would be missed. I truly love you all here at IHD, and I knew how much she loved us all, and I needed her to know that.


God Bless you Susie, you are loved by all.. Until we meet again, my friend....

                Walking Her Home

http://www.youtube.com/watch?v=PVZiWTmKNc0&feature=related

Thank you Kathleen for posting such a nice song and video. Susie had a way of making us all feel 10 feet off the ground when she visited with us .
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tweetykiss
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« Reply #194 on: February 16, 2008, 11:03:39 AM »

 >:( >:( >:( >:( :banghead; :banghead; :banghead; :banghead;

This is just too crazy and sad off course.  Here after a very hectic week, I log on to find this thread and I thought What in the world.  Susie was always there for me no matter what.  I felt bad I couldn't go to Vegas.  Now it bothers me I won't see her.  I feel so much for her family and I don't know what to say but how very sad and sorry I am that this has happened.
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Neo
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Dont let dialysis stop you...

« Reply #195 on: February 16, 2008, 11:08:12 AM »

I havent been on lately cuz Ive been busy with school and all. So I come on here and hear about goofynina.......... Im shocked!!  She has always been the firswt person to write after I posted something, and even tghough Ive never met her in person, this feels like a family loss.. Being young and on dialysis its nice to know that whenever your not feeling good and have to get somethiung off your chest that I could count on her to write back almost immediately and offer some kind words.. So I will miss her a lot!! I dont have any details on what arrangements have been made funeral wise. So if you all could let me know whats going on and if there is anything I can do to help I would do whatever is needed thanks...Matt :'(




EDITED: Merged threads - Sluff/ Admin

« Last Edit: February 16, 2008, 12:37:56 PM by Sluff » Logged
rose1999
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« Reply #196 on: February 16, 2008, 11:47:15 AM »

Sluff has posted the funeral details, if you type funeral into the search it will come up (sorry I can't remember the link).  It's hard to lose her isn't it, even though like you I never met her I always felt as if I knew her.  Look after yourself and keep posting, it's what she would have wanted. :cuddle;
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Sluff
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« Reply #197 on: February 16, 2008, 12:39:28 PM »

Here ya go Matt.  http://ihatedialysis.com/forum/index.php?topic=7019.0   :grouphug;
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kitkatz
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« Reply #198 on: February 16, 2008, 12:56:15 PM »

Memories of Susie:

I see in my minds eye this lady with a purple boa around her neck. She has a sash that says Drama Queen.  I had sent her to the drugstore in Vegas for that one. She is wearing a tiara and a button that says Queen of the entire F**ing Universe.  She has a smile on her face and a hug for everyone.  She would flip the boa back around her neck and get anyone sitting near her with a feather or two.  The feathers would rip off of the boa and you could follow them from the elevator to her room.  It made me laugh to follow a trail of feather sin that hotel in Vegas. 

I see her and JillD taking a shot of Tequila in the hotel room.  They both were almost in tears from it.  Laughter.
« Last Edit: February 16, 2008, 01:01:44 PM by kitkatz » Logged



lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #199 on: February 16, 2008, 01:21:16 PM »

My heart is hurting.  Even though I never personally met Susie, I felt close to her.  I looked up to her like my big sister.  She was one of the first person to greet and provide me advise about PD.  I feel as I owe her my knowledge of PD.

Thank you Susie where ever you are.  Until we meet again in God's heaven. :angel;

My love and prayers.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
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