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Author Topic: marvin's in the hospital  (Read 20798 times)
petey
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« on: January 28, 2008, 05:16:17 PM »

Hey, all!  I haven't been around for a few days because my husband (Marvin) is in the hospital.  Back in December, he had an infection in an old graft site (hadn't used it in two years).  The infection was MRSA and before they could get the graft out, the infection spread to his heart and damaged a valve.  He had to have a pacemaker put in in December.  The pacer hasn't worked right, and he had to have it "re-set" three times.  Last Thursday, it quit all together.  I was at work, and Marvin called me -- terrified.  My neighbor got to our house in two minutes.  Rescue squad next.  To our local hospital -- then on to Duke (Durham, NC).

The pacer isn't working because the leads (epi-cardial -- screwed into the side of the heart) aren't making a good connection with Marvin's heart.  The doctors tell us they usually put this type of pacemaker (device implanted in abdomen, leads run to the outside of the heart instead of down into the heart) in dialysis patients.  The risk of infection with leads (wires) run into the heart is so much greater with hemodialysis patients because we're accessing the vascular system and, hence, the bloodstream with every dialysis treatment.  Anyway, Marvin's heart has scar tissue (explained to us as a "fiber-like thickness").  The docs said this was typical in long-term dialysis patients -- and other organs are affected the same way.  With the scar tissue around his heart, the leads to the pacemaker aren't firing like they should.

The surgeons tried to go into the pacer and revise it on Friday.  No luck.  Now, he will have surgery on Wednesday to implant a whole new pacemaker.  This one will be in the abdomen again but one of Marvin's doctors has researched the whole thing over the week-end and they will now use different leads (wires that run from the pacer to the heart).  The "new" leads will be coated in steroids, thus lessening the chance that the scar tissue will interrupt their conductivity.  They're going into the middle of his chest to be closer to the heart (so they can look for a "good" spot on the heart to attach the leads).  If this doesn't work, he'll have to have a "traditional" pacemaker (one in the chest with leads run down into the heart), but that's our last resort.

Marvin's spirits are good -- as usual.  He says this is just another bump in the road.  Please say a prayer for him.

I haven't had a chance to get caught up on the boards.  How's Goofynina?  How about willieandwinnie's Len?  Even though things have been super crazy for us over the past five days, I've been unable to get my mind off Goofynina and w&w and Len.
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del
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« Reply #1 on: January 28, 2008, 05:19:19 PM »

 :grouphug; Hope everything works out ok!!!  I'll be thinking of you.  :cuddle;
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jbeany
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« Reply #2 on: January 28, 2008, 05:48:41 PM »

 :grouphug;
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charee
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« Reply #3 on: January 28, 2008, 05:49:52 PM »

thinking of you both :grouphug;
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Home Hemo  18 months
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« Reply #4 on: January 28, 2008, 06:58:03 PM »

Hang in there!! Hope things get better soon.  :cuddle;
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The Wife
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« Reply #5 on: January 28, 2008, 07:09:32 PM »

  :grouphug;
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cris
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« Reply #6 on: January 28, 2008, 08:20:27 PM »

Prayers and love are sent your way. Marvin, you have been a lot through, we are with you on this one :cuddle; :cuddle; :grouphug; :grouphug;
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there is no greater love than this: "that a man lays down his life for his friend"
okarol
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« Reply #7 on: January 28, 2008, 09:57:15 PM »

Wow Petey, what a couple of days you've had. Don't worry about anyone else, give Marvin a big hug and let us know how he does please!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
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« Reply #8 on: January 28, 2008, 10:32:14 PM »

Awwwwwwwwww....Petey, I'm so sorry to hear all of this.  I do hope this next prcedure will get him
straightened out.  My prayers are with you both.

Mimi
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« Reply #9 on: January 28, 2008, 11:02:42 PM »

 :grouphug;
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« Reply #10 on: January 29, 2008, 12:44:46 AM »

 :grouphug;
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"The history of discovery is completed by those who don't follow rules"
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« Reply #11 on: January 29, 2008, 02:58:06 AM »

Sending prayers for your Marvin, Petey! 
Will be thinking about you both! :cuddle;

Anne
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« Reply #12 on: January 29, 2008, 06:27:52 AM »

Prayers to you both.  I hope Marvin gets out of the hospital soon.
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #13 on: January 29, 2008, 06:48:18 AM »

Petey, I am so sorry.  Is there anything I can do to help?  Is anyone there with you to help you while you are helping Marvin?   Take care of yourself during all of this. :cuddle;
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lola
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« Reply #14 on: January 29, 2008, 08:07:07 AM »

Hang in there :grouphug;
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kidney4traci
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« Reply #15 on: January 29, 2008, 08:22:40 AM »

Pray the surgeons get it right this time and no more problems.  Thank goodness for his attitude!!!  Very inspiring.   I don't know if I would be the same in your shoes.  I hate hospitals!  But, again - this is almost over and everything will be good again soon...
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willieandwinnie
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« Reply #16 on: January 29, 2008, 09:15:29 AM »

Marsha,  :cuddle; I am so sorry. I've been thinking about you a lot also. Did you get the email I sent you? I had to call the rescue squad again for Len so I haven't been much up to posting much either.  :( I'll say extra prayers for Marvin and please if you need to talk or just a shoulder to cry on, know that I'm here. Please take care of yourself as well as Marvin. Lots of thoughts and hugs.

Kathy
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« Reply #17 on: January 29, 2008, 09:34:41 AM »

Thinking of you both and hoping all goes well for you.  :cuddle;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
donnia
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« Reply #18 on: January 29, 2008, 10:18:45 AM »

Prayers to you both!   :grouphug;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Deanne
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« Reply #19 on: January 29, 2008, 10:53:30 AM »

I'm sorry Marvin and you had to endure such a terrifying incident! I hope the Dr's fix it for good this time!  :grouphug;
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
petey
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« Reply #20 on: January 29, 2008, 05:33:02 PM »

I came home early tonight to get a good night's sleep -- surgery for new pacemaker is at 8:45 a.m. (EST) tomorrow.  Please say a prayer for my Marvin.  Say one for me, too -- I'm exhausted!  I'm trying to stay strong -- and sane -- for both of us.

Thanks for the love and support from all -- Where do ESRD people who don't know about IHD go for support?  They must wander around lost.  What did I do before I found this site?  I must have been lost, too.  Love you guys!  :grouphug;

Kathy -- got your email but haven't had time to sit down and respond.  Sounds like you've had your hands full, too.  I declare, we MUST have been sisters in a previous life -- our paths are so similar!  Maybe we're going to be sisters in the next life. Or maybe we were sent to be cyber sisters right here and now.  I keep thinking about Len and wondering how he's doing and how you're managing.  Will write soon.

petey (Marsha)

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paris
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« Reply #21 on: January 29, 2008, 05:50:57 PM »

Petey, we will say lots of prayers tomorrow for Marvin.   :grouphug; :grouphug;
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« Reply #22 on: January 29, 2008, 06:39:55 PM »

Thank you for sharing this with us.  We are with you in this - you are not alone.  Be assured of my caring thoughts and prayers.  :grouphug;
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I LOVE  my IHD family! :grouphug;
willieandwinnie
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« Reply #23 on: January 30, 2008, 03:36:15 AM »

Marsha, I woke up praying for Marvin. I hope you got some rest last night, as I know just all the road running is so exhausting. You are strong/sane and everyone here is praying for the both of you. Hug Marvin extra tight this morning and know that my thoughts will be with you. By the way, I'd love to have a sister.  :cuddle;
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Amanda From OZ
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« Reply #24 on: January 30, 2008, 03:46:51 AM »

Sending prayers and good thoughts both your way.  :grouphug;

Amanda
xxoo
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