Ignorant things people have said to you

[Blake nighsonger]

thats great Riki glad husband felt well enough to work ,and transplanted now that's awesome! ooops sorry Rerun.

[Cowdog]

I was hospitalized a couple of years ago with Rocky Mountain Spotted fever. Your typical Dr on a hospital floor has no idea about dialysis or dialysis patients. The Dr ordered a urine analysis. I told the little nurse that came to get it " That's not going to happen" and explained that I am a dialysis patient and don't make urine. She took off back down the hall.
Dr comes down herself to demand that I give a urine sample. I told her "That's not going to happen".
She said I will just have you catheterized. I laughed and asked her if she understood, digging in a dry hole.

[Simon Dog]

"Why don't you want a transfusion"  followed by "I didn't know that" after explaining alloimmunization - at this was from an MD.

[Simon Dog]

"Why don't you want a transfusion" followed by "I didn't know that" after explaining alloimmunization - at this was from an MD.

[Riki]

thats great Riki glad husband felt well enough to work ,and transplanted now that's awesome! ooops sorry Rerun.

Huh?  I think you got me confused... I don't have a husband, never did.. nor has this fictitious husband had a transplant.. *G*

[Blake nighsonger]

First time i was wrong today. A little scattered. was thinking you did and he was doing just great inpart due to having a motivating perpuse ....  sorry aniT to smart sometimes.    Blake how am i doing Rerun.

[kristina]

One of my neighbours asks me on a regular basis if I am getting better from that nasty "kidney-thing"? 
I honestly can't get upset with her because, somehow, she really means well...

[Charlie B53]

Wife has ben nagging me to get my hairs cut.  Weather is hot and humid, my beard is way full.  I thought it may be cooler if I gave in and got ALL my hairs cut.

The Lady at Great Clips was telling me about someone's relative that recently 'finished' dialysis and doesn't have to do it any more.

Oh Really?  He had a kidney transplant?

No, he got better and doesn't need dialysis any longer.

Yea, Right.


Some people haven't a clue and must believe failing kidneys are much like a cold or flu, something that you will get over with and be well again.  NOT.

[Riki]

The Lady at Great Clips was telling me about someone's relative that recently 'finished' dialysis and doesn't have to do it any more.

Oh Really?  He had a kidney transplant?

No, he got better and doesn't need dialysis any longer.

Yea, Right.

actually, that can happen, if the kidney failure was caused by an injury or illness, and the kidney just needs to heal.. dialysis gives the kidney a break, and once the kidney is healed, they don't need dialysis anymore.. one of my teachers in high school was injured in a sporting event of some kind and was on PD for a year until his kidneys recovered.. When he found out that I had been on PD, he felt the need to tell me..

[Cowdog]

Over the years I have seen several of my associates who's kidney function improved and they were able to stop dialysis. They usually had acute failure while being treated in the hospital for another condition. A drug or procedure "stunned" their kidneys and the kidneys needed some help for a while.

[Charlie B53]

There is a huge difference in sudden kidney failure and the progressive demise of the kidneys from so many permanent causes.

It is a wonder that those that do recover are able to lead a normal life again.

It will be a wonder when the medical field finally does develop a 'replacement'' kidney for the rest of us on Dialysis.

[GA_DAWG]

Had to go to ER one time because they gave me enough heparin to wipe out my clotting ability. My doctor was to come after he finished at the office. It is a teaching hospital so he always has the interns and residents with him as he is head of transplant. He has a reputation for sternness, but he and I get on well. Anyway, he comes in and is pissed right away because an ER doctor put a stitch in my graft and on top of everything else did so with no local. Then he tells a student to get him some iodine. Kid comes back, and even though I see what is about to happen, I cannot stop the kid. He tells the Dr he could not find iodine, only these pads as he holds up betadine pads. Needless to say, he will not make that mistake again. Next day, doc calls the dialysis center. His exact words, I do not know to this day, but it has not happened again at our center to the best of my knowledge.

[Riki]

There is a huge difference in sudden kidney failure and the progressive demise of the kidneys from so many permanent causes.

It is a wonder that those that do recover are able to lead a normal life again.

It will be a wonder when the medical field finally does develop a 'replacement'' kidney for the rest of us on Dialysis.

My grade 11 geometry teacher stopped me in the hall one day and started asking me about the transplant I'd had about a year and a half earlier.  I'm not sure where he heard about it, possibly one of the other teachers.  It wasn't exactly a secret.  Anyway, he was asking all these very specific questions about my time on dialysis, like hemo or pd, and copd or ccpd, things you wouldn't expect a general person to know.  He finally told me that he'd been on capd for about a year until his kidneys came back.  He never said what caused his kidneys to fail, but he's fairly active in sports, (he was also one of the gym teachers. Suffice to say, my mom loved parent teacher interviews while I had him *L*) so I'm guessing it was some kind of sporting injury.

[GA_DAWG]

I agree the worst two are people asking if I have checked into a transplant. Like gee, never thought of that. The other is being told of a person knowing someone who died while waiting for a transplant. Not exactly the mental image being cultivated.

[kitkatz]

I was out the other day getting lunch for my sister and her kids and had a lady come up and ask me "Are you all right?"
I must have looked ragged, but I felt okay.

[kitkatz]

Uber driver picked me up form dialysis: If you don't get a transplant, isn't being on dialysis just waiting to die?"

Gut reaction:  What an ass.  Here I am vacationing for a week in Vegas.  Do I look like I am waiting to die?

[Cupcake]

My favorite so far is when I told my niece's mother-in-law I was on peritoneal dialysis, she asked some really weird questions until I realized she thought it was 'perineal' ... So I said No, I'm not doing dialysis through my vagina! And she's a psychologist. Gotta love it!

[freddagg]

One of my favourites is "I am praying for you" or "you are in my prayers" or similar inane comments
My standard response ".......well you can save your breath because it clearly ISN'T working!" 

[IOnlyGet5]

Keep being asked why don't I do Hemodialysis like it's the most natural thing in the world...they don't seem to believe me when I tell them I can only do PD because surgeons say my veins are too small for HD &

[PrimeTimer]

Husband has had Diabetes several years and is on insulin and dialysis. His family and my side all know that. Few years back he had to have the tip of a toe amputated (found bone infection). It was mentioned at a family gathering. Someone on my side said "Yup. Dialysis is one of those diseases that slowly takes a person limb-by-limb". And he said this not just to me but in front of my husband. My heart sank and I felt so bad for my husband hearing it being put that way. In mixed company no less. There are just some people who have absolutely no filters. 

[Charlie B53]

I Believe that family member confused Dialysis with Diabetes, which shouldn't really surprise anyone as the common person hasn't much of a clue about either disease until they themselves are diagnosed.

The high sugars of diabetics destroy nerves in the body, reducing feeling in the extremities to the point of near total numbness.  Patients cannot feel even a minor 'sore' of an ingrown toe nail thus even the slightest of infection which would be no problem in a more 'Normal' person, can easily rapidly become life threatening and require amputationn to the diabetic.

The sooner we all realize that we are surrounded by idiots, and learn to ignore their lack of education, which is NOT included in most any school other than life experience, The sooner we can ignore their ignorance and move on.

But sometimes you just want to reach out and SLAP someone!

[Paul]

I Believe that family member confused Dialysis with Diabetes

To be fair, I have both and sometimes accidentally use one word when I mean the other.

[PrimeTimer]

Yes, I meant the family member said "diabetes" takes (kills) a person limb by limb. As if my husband didn't know. He didn't need someone reminding him what diabetes can do to a person. My husband wouldn't do this but he should give himself his insulin injection in-front of that person sometime...and while they are at the dinner table about to take a bite. And then remind that person that it's to avoid the diabetes from you know, taking him limb by limb... 

[Paul]

When I was young, fat, and not physically active, I was shown amputees in wheelchairs and told I would get diabetes and that would happen to me if I did not exercise more and eat less.

Didn't work, I still got diabetes.

[cattlekid]

Every time I got one of those "you're in my prayers", I rolled my eyes so hard I sprained my brain.   

One of my favourites is "I am praying for you" or "you are in my prayers" or similar inane comments
My standard response ".......well you can save your breath because it clearly ISN'T working!"