Ignorant things people have said to you

[obsidianom]

Dont get me started on Nurse practitioners.   

[Ninanna]

Dont get me started on Nurse practitioners.

I have had 3 really good and amazing NP, so they are not all bad.

[Joe]

My PD cath was below my beltline. In shorts, even without a shirt, you wouldn't have been able to see it.

[Simon Dog]

My PD cath was below my beltline. In shorts, even without a shirt, you wouldn't have been able to see it.

Interesting - I never knew they wen that low.   

I am still amaze at how many MDs and RNs have told me they "never heard of such a thing" when I tell them I am on home hemo.

[jeannea]

I've known some good Nurse Practitioners. Just like doctors, there are good ones and bad ones.

[kitkatz]

I have been nocturnal dialysis almost seven years and am amazed by the amount of health professionals that have never heard of it.

[Charlie B53]

Had a stress test administered by an NP.    I am standing there in shorts with my shirt off facing the NP while she goes over my medical situation, and ask when my dialysis appointments are.   I explain I do it at home.    She's looking right at me, shirt off, and asks "I assume you do peritoneal dialysis".   

Yeah, the surgeon re-routed my urethra.  Instead of connecting to my bladder it provides access through the peritoneal membrane, I fill be connecting to my penis.

When it's time to drain I just go Pee!

Less chance  of infection without using any catheter.

D'oh!

Some people.  I'd almost bet she'd believe it!

[Gerald Lively]

A few years back when my son was 50 years of age, I was telling him about prostate cancer.  He listened intently, waited for me to finish, then asked, "My girlfriend is having pains.  Can she get prostate cancer?"
Well Hell!  Where did it all go wrong?  He must have slipped by the diaphram.   

[Simon Dog]

A neighbor (female) explained that "prostate cancer is more common in men", and she was being serious (although, technically, she was correct).

A few years back when my son was 50 years of age, I was telling him about prostate cancer.  He listened intently, waited for me to finish, then asked, "My girlfriend is having pains.  Can she get prostate cancer?"
Well Hell!  Where did it all go wrong?  He must have slipped by the diaphram.

[PrimeTimer]

My husband recently had to have an angioplasty performed on his fistula. One of our brighter inlaws said it was because we are doing dialysis at home instead of at a professional environment. See, it is remarks like that that motivate us and inspire us to carry on! But remarks like that also make me want to slap the heck out of somebody. 'Nuff said.

[cdwbrooklyn]

My husband recently had to have an angioplasty performed on his fistula. One of our brighter inlaws said it was because we are doing dialysis at home instead of at a professional environment. See, it is remarks like that that motivate us and inspire us to carry on! But remarks like that also make me want to slap the heck out of somebody. 'Nuff said.

Some poeple just don't understand...how ignorance they sound!!! Like my mother use the say, "You so smart until you stupid!" meaning YOU DON'T KNOW EVERYTHING!!!! 

 

[Jean]

One of my " acquaintenances" had a job transporting kidney patients to dialysis, which made her an expert on all things kidney. One day she tired to tell me that the dialysis accesses have to be "removed" and replaced every 2 years. OMG!!! I told her I belong to an online kidney group with over 8 thousand members and not a one had ever mentioned that. Finally, she shut her mouth, and just in the nick of time!!!

[PrimeTimer]

      My husband is diabetic, has ESRD, we are doing home hemo dialysis and...are dirt poor. His mother (a self-centered, delirious shopaholic oblivious to others needs or feelings and who fortunately lives in another state), left him a voice mail wishing him a happy birthday and added that she hopes we can go out for some birthday cake.       Wow...just wow.

[cdwbrooklyn]

One of my " acquaintenances" had a job transporting kidney patients to dialysis, which made her an expert on all things kidney. One day she tired to tell me that the dialysis accesses have to be "removed" and replaced every 2 years. OMG!!! I told her I belong to an online kidney group with over 8 thousand members and not a one had ever mentioned that. Finally, she shut her mouth, and just in the nick of time!!!

Don’t you hate when someone tries to tell you something she or he knows nothing about.  Why not just ask you if that’s true than to put her foot in her mouth.   I had a conversation with one of my friends about AIDS.  I was telling her I know a woman who has it for a very long time and that woman did her research on it in order to stay alive for a long time.  The woman informed me that people are clueless when it comes to having AIDS as people are clueless when it comes to dialysis.   My friend continues to tell me what she thinks she knows instead of listening to what I’m telling her from someone who has it and dealing with it.  She was so adamant about it I just changed the subject.     

[UkrainianTracksuit]

While looking for dresses with sleeves, my attendant asked what happened to my arm.  (AV graft).  I explained it was for dialysis.  She said, "Oh, I didn't know hair removal left scarring like that!"  So, I guess dialysis is a hair removal procedure. 

[jeannea]

Hair removal? How confusing.

[goofball]

Maybe her brain misprocessed "dialysis" into "electrolysis?"

[Sugarlump]

Well what do you know!!!!
Today a dialysis nurse told me I was privileged to be on dialysis.
I understand some countries don't have the same access to dialysis facilities but PRIVILEGED!!!!!!
Heck would someone else like to have this privilege for awhile?

And when i said I don't have any choice, she replied, yes you do. You can either come or die!!!!!
And this is a dialysis nurse who is supposed to look after and support me.

Good job I was hooked up at that point (I could feel a slap coming on in my fingers)

 

[lainiepop]

Oh my goodness sugar what is up with people especially in the nursing career?! I've had a bad experience with nurses after my recent bowel surgery, i was left shouting in agony a couple days after the surgery my bowels uncontrollably exploded I'd pressed buzzer needed help nobody came another lady went to get someone they said they were too busy serving dinner! When she did come she flashed me a disgusted look and said can u not go to the toilet?! She gave me clean pants a pad told me to hold my drip and get to the toilet. I was in agony and felt so undignified!!

And when I had my son I got mild pre eclampsia after , a nurse was saying my bp was up and I remember mumbling in my state why is this happening to me, to which she replied (and I will never forget) well 10 years ago medicine wouldn't have allowed women like u to have a baby, the problem is women like you shouldn't have babies!! It cut me to the core, made me feel so guilty!!

But the winner comes from mother in law, at 20  weeks pregnant with my daughter, knowing the kidney was teetering on the brink I told Hubby's parents that the doctors hoped to get me to 32 weeks, to which she replied, but you can't have a baby at 32 weeks it will be mentally retarded!!!! Seriously?! The kidney had a gfr of 17 we needed to think about me and baby, as it happened we got to 35 weeks and she was perfect but only 3lbs 12. Then when she saw her she was about a month old and only just over 4lbs as her weight had dropped to 3lbs 7 and she kept saying shes so small all mine were more than that born, well duh of course they were, they were full term and u didn't have kidney failure. She also sent me a text when Iwas admitted back to hospital with an infection and slight creatinne rise after tx saying sorry things have gone pear shaped we're having lovely time in Australia! Yes that's right they planned a holiday the time my dad was due to donate, meaning when hubby went back to work my mum was taking care of me dad and 2 kids under 4!

And breathe, can feel my bp rising now

[galvo]

Yes! Deep breaths, lainiepop, deep breaths! My attitude is to tell the lot of 'em to get stuffed! The longer time goes by, the more I'm convinced that only kidney people understand kidney people!

[lainiepop]

See Galvo I have lots of very understanding friends (and husband) who are not kidney people. My sister in law (nothing like her mum) researched my gfr, what i was a t risk from during my pregnancys (pre eclampsia etc) and about pre-term birth and she talked lots with me about it. Its not hard we have the internet now! Some people just arent interested and dont want to know i think. The same sister was diagnosed a few yrs ago after a few yrs of problems with crohns disease, so me and hubby researched it, we talk to her about it, but when i asked mother in law how she was and about the chrons she said they didnt really talk about it. Hubbys sister is pretty health conscious  and when her mums brother had a really serious heart attack, was in hospital for months and nearly died, she suggested that her mum have a cholestrol test (she had found out from crohns testing that hers was slightly high, despite being super fit super think and eating more healthy than everyone!) and her mum replied, oh no i dont want want to i dont like needles and i dont want to know. (do not complain about needles to a renal patient, even one who hasnt experience dialysis!!) Unfortunately his mum did have to face an issue recently she had to have a melanoma removed from her back, she was very worried about it but of course everyone was supportive, she is fine now.

I think some people are just that way, and i think tbh she never wanted steve to marry me because i had things wrong with me. (She was scared i think i wouldnt be able to have children!!)

I would very much like to tell them to get stuffed sometimes (when i am in hospital it always reopens old wounds but all that happens is i end up arguing with my hubby about them. ) Its hard because they are my childrens grandparents and as i was admitted in an emergency the did come down the day after surgery to take andrew to school and look after elena, (only as my mum was still with dad who'd had the heart bypass op!), but their e-mails were almost like it was an inconvenience, they said well we have nothing specific on the next few days... They stayed the thursday and friday and wanted to go back saturday morning, but elena had her first ballet show and it was 2 performances and someone needed to take andrew home after the first one so they agreed to stay to do that and leave sunday. My parents were gutted they didnt see her on stage, so was i!! They had to get back t decorate their house to sell. Luckily for them it was half term so hubby was off then my mum came up for the forseeable. They didnt visit in hospital, they dont text to ask how i am and even tho we've been married 9 yrs they have never called our home telephone (i guess in case i answer?!?)

I don't think they'll ever change i just think its sad as they are missing out with their grandkids, but at least my kids are close to my parents and know they love them and that my dad gave a very special gift to me so i can raise them.

I dont think its just me tho, and being a 'person with something wrong with them' (altho that makes it worse), lots of my friends have issues with their hubbys mums being weird with them and their kids, and they dont help out lie the girls mum does i think its a mother in law thing. And i will be one one day, but my daughter in law will love me, anyone who takes on my son deserves a meadl, and his sister is whipping him into shape, poor boy will be hen pecked before he gets wed

[Sugarlump]

I do have some good friends.
I like the ones who accept I only ever drink half of my cup of tea and coffee and never comment.
(My way of fluid control only ever drink half!!!) because NO-ONE makes a half of a cup of tea properly so I like a full cup thank you 

[Jean]

One of my neighbors does PD and was recently taken out in an ambulance. They said her face was all puffy and she couldn't pee. Well, REALLY!!!!!

[Sugarlump]

"Dialysis ? That's once a month isn't it?" a well-meaning friend...
Ha ha,  I wish!!! 

[PrimeTimer]

lainiepop:  Either we've both been very blessed or else we share the same MIL! Funny thing, when I first met mine she complained that her other DIL never speaks to her. I suppose that should've been my clue.