Ignorant things people have said to you

[Simon Dog]

I said: "Whole wheat has way high phosphorous. Remember dialysis patient here."

My cardiologist tells me to avoid white bread and eat only whole wheat.   The renal team tells me the opposite.  The only way to follow medical instructions is to stop eating.

[Jean]

Same here, what is up with these people anyways. I would rather follow my renal dieticians advice, but, she could be wrong also.

[cattlekid]

I begin to wonder sometimes how many cardiologists treat renal patients.  My thought would be enough that they should know at least a little bit about each other's patients. 

I had another experience where my cardiologist wanted to switch me to a fenofibrate for my triglycerides after my heart attack.  I told him that I would have to check first with my nephrologist (they were not in the same medical group at the time so I had to play go-between).  When I called my nephrologist, he about fell off his chair and gasped "DON'T TAKE THAT!!"  Okee dokee, I'll let cardiologist know, thank you kindly.  You would think that something that seemed so basic should have been known by my cardiologist.  Even my gastrologist seems to have at least some sort of a clue about what renal patients should and shouldn't be prescribed.

My cardiologist tells me to avoid white bread and eat only whole wheat.   The renal team tells me the opposite.  The only way to follow medical instructions is to stop eating.

[Angiepkd]

After canceling my transplant 5 days before surgery, my nurse coordinator called to see how I was handling the disappointment.  I told her not at all well.  I had weeks worth of meals in the freezer, my in-laws were driving home early from Florida in the ice storm, and my husband and mom were already scheduled off work.  Her response was that I could still use the food since it was frozen.  I politely told her that I am not allowed to eat any of it, since it was made for someone not on dialysis.  She didn't get it.  I told her it was all food that was full of phosphorus and potassium, things I can't eat on D.  Things I was looking forward to eating after transplant!  Still don't think she got it.  Made me want to reach through the phone like a cartoon and punch her lol.   

[galvo]

White bread is the go, according to the Mayo Clinic.  (White bread and mayo.....hehehe!!)

[Simon Dog]

I work for a large corporation that hires a company to have people call and do "health coaching".  I mentioned I was on dialysis and looking into a kidney transplant.   The "coach" responded with "at least it's only the kidneys, and you don't have ESRD".

A new standard for ignorance.

[cattlekid]

Holy flying spaghetti monster. 

Our company has those health coaches too.  I would be on the phone to HR in a hot minute letting them know just the kind of service they are getting for the money they are paying.

I work for a large corporation that hires a company to have people call and do "health coaching".  I mentioned I was on dialysis and looking into a kidney transplant.   The "coach" responded with "at least it's only the kidneys, and you don't have ESRD".

A new standard for ignorance.

[MooseMom]

Cattlekid is right.  The corporation you work for is getting conned.  What did you say to the stupid health coach?  Or were you too shocked to reply? 

[Simon Dog]

Holy flying spaghetti monster.

The next time I am admitted to the hospital I will answer Pastafarian on the religion question.  If they ask, I will explain it means they have to feed me spaghetti on Wednesdays.

As to the coach, I explained that the terms kidney failure and ESRD are redundant.    Still not sure if she understood what redundant meant though

[Jean]

 I know it is not funny, but I just have to laugh at the stupidity these people display. And you guys are hysterically funny about it.

[Joe]

We have to be Jean, otherwise you just cry.

[Punkybruister84]

" we'll, maybe it's better you don't get a transplant"

I'm 29, been on the transplant list fir 5 years and have never had a transplant before.

The woman who said this was a former friend of my mom's. she was a NICU nurse working with pre mature babies ( like myself).

[iKAZ3D]

" we'll, maybe it's better you don't get a transplant"

I'm 29, been on the transplant list fir 5 years and have never had a transplant before.

The woman who said this was a former friend of my mom's. she was a NICU nurse working with pre mature babies ( like myself).

Can I kill her? Like...knives and all?

[Punkybruister84]

Go for it!!!  

[UkrainianTracksuit]

I told a couple friends about some family members coming over to the same clinic (hopefully) for HD.  My friend said, "You should just get married at the clinic!  It seems like everyone will be there!  And it's catered with sandwiches and cookies!"

I have to admit that the image did pass through my head what it would be like. 

[jeannea]

Not terribly romantic.

[Deanne]

I'm post transplant. My pack rat/hoarder neighbor invited me over for snacks. I've been in her house many times. It's impossible to see her kitchen counters under the cr*p piled on them. Her fridge and microwave are coated with grime. She commented to me earlier this year that when she moved into her house about 20 years ago, she didn't realize carpeting needed maintenance. I didn't want to hurt her feelings, but I had to tell her that her kitchen has too much bacteria in it for it to be safe for me to eat food that was prepared there. She emailed me today that she hopes to have her kitchen cleaned up next fall and she hopes that by then cleanliness won't matter as much for me. I had to tell her that immune suppressants are forever.

[Rerun]

My Dermatologist asked me today if the needles were still in my arm.  I had 2 squares of gauze where they had been. 

I should have said "yes, they just shove them under the skin and dig them out when needed". 

[Sugarlump]

White bread is the go, according to the Mayo Clinic.  (White bread and mayo.....hehehe!!)

Hah! My renal dietician told me I couldn't have mayo!
When I asked why she said because it has raw egg in it 
Unless you make your own fresh mayo all brands of bottled mayo contain cooked egg!!! so fine!!!!

[cariad]

I told a couple friends about some family members coming over to the same clinic (hopefully) for HD.  My friend said, "You should just get married at the clinic!  It seems like everyone will be there!  And it's catered with sandwiches and cookies!"

I have to admit that the image did pass through my head what it would be like.

Wow. Surely that suggestion should win some sort of award? It reaches new depths of cluelessness.

[UkrainianTracksuit]

I told a couple friends about some family members coming over to the same clinic (hopefully) for HD.  My friend said, "You should just get married at the clinic!  It seems like everyone will be there!  And it's catered with sandwiches and cookies!"

I have to admit that the image did pass through my head what it would be like.

Wow. Surely that suggestion should win some sort of award? It reaches new depths of cluelessness.

Oh it's true, cariad!  Cause you know, dialysis is where you get to lay in bed a few hours, watching tv and be waited on.     Besides, I can't get married at the clinic.  All our techs wear white!

[Sugarlump]

Now I have got the giggles cos our dialysis nurses wear blue  but they don't have anywhere to put a buttonhole (of the flower variety!!!!) 

[gothiclovemonkey]

lol this tread cracks me up
make some bouquets out of rubber gloves LOL

i have one for u,
i post a lot about my health on my fb, apparently my aunt thinks this is "airing my dirty laundry" ohhhh how badly i wanted to seriously air some dirty laundry on her, but thought better of it. if telling my friends how my health is going is dirty laundry then damn, what would she do if i said i was sick of the crappy way she has always treated me. THAT to me would be airing dirty laundry.

[Charlie B53]

Started PD may 2013, age 60, so far so good.  I don't get out much and even tho we've lived here 18 years we barely know the neighbors.

I'm shocked by the general public's lack of what should be common knowledge, but I am more shocked at everyone's capability to handle all the stupidity without breaking out in violence and seriously hurting some of the idiots you have encountered.

You all have developed a special strength that far surpasses other so called 'normal' people.

I only hope that I become worthy of your friendship.

[Simon Dog]

Had a stress test administered by an NP.    I am standing there in shorts with my shirt off facing the NP while she goes over my medical situation, and ask when my dialysis appointments are.   I explain I do it at home.    She's looking right at me, shirt off, and asks "I assume you do peritoneal dialysis".