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Author Topic: What do you miss?  (Read 10490 times)
SheilaW
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« on: November 18, 2007, 01:05:53 PM »
What is a regular every day food and/or drink you miss? 

What is a Holiday food and/or drink you'll miss?
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SheilaW
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« Reply #1 on: November 18, 2007, 01:07:11 PM »
I miss potatoes and avocados most.  I also miss "adult" cereals.  And dairy.  For drinks, I just miss the unlimited amounts of whatever I wanted.

For the holidays, I'll be missing ham and eggnog most.
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Adam_W
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« Reply #2 on: November 18, 2007, 01:20:05 PM »
I've missed the nearly unlimited amount of milk I used to drink (I'd go through a full gallon in two to three days). Now that I do daily dialysis I can drink more of it, but I still can't go crazy. No particular holiday food that I miss, because again, I can eat most things (in moderation) with daily dialysis. .

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
KT0930
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« Reply #3 on: November 18, 2007, 01:55:56 PM »
Everyday stuff, dairy for sure. At first I thought chocolate would be the hardest thing to give up, but I'm finding the dairy nearly impossible!

Holidays, I'm sure gonna miss all those chocolate cookies and nuts.
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Razman
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« Reply #4 on: November 18, 2007, 02:41:45 PM »
I miss the French fries and coke and pizza and potato chips and orange juice and ...........  I could go on for a page or two but I guess I will stop here. I just miss all the good stuff. Sometimes I would just like those with good kidneys try to do it for a week. They just don't understand !!
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goofynina
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« Reply #5 on: November 18, 2007, 03:29:45 PM »
Being on PD i am able to eat more of the things i am supposed to be restricted of, but not much,  but when on hemo, i remember craving vined ripened tomatoes with salt, and a tall glass of cold milk, or even a bowl of cereal, (due to lactose intolerance, i cant have dairy anyways anymore)  :-\  :thumbdown;
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Chris
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« Reply #6 on: November 18, 2007, 08:22:21 PM »
What is a regular every day food and/or drink you miss?   
Caffeinated Coffee!, Fries/Hash Browns, and then any food (except fish). After my transplant, I have no appetite like I use to. Hard to eat a lot.

What is a Holiday food and/or drink you'll miss?
Egg Nog
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
jbeany
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« Reply #7 on: November 18, 2007, 08:24:43 PM »
Cheese, cheese, and more cheese.

I miss all the holiday treats made with nuts.  My sis makes these roasted, sugared pecans with bacon crumbles.  Salty and sweet and they totally toasted my phos last year, so I'm going to have to skip them this year!
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« Reply #8 on: November 18, 2007, 10:52:18 PM »
Milk definitely Milk.  I have thought that if I could only have another transplant for a few days so I could chug a few gallons of Milk it would be worth it.

Holiday foods I'll have a tiny bite of everything but a regular size slice of pumpkin pie.  I don't care I'm having it.
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Wattle
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« Reply #9 on: November 19, 2007, 01:50:22 AM »
 :ausflag;  I have never had eggnog or Pumpkin pie. Am I missing something?  8)

It's too hot here at Christmas time. We have salads and turkey cooked in the weber BBQ.

Being on PD I am lucky to still enjoy potassium loaded foods. But I have trouble when it comes to dairy and nuts.  >:D

Oh...... and salt and Vinegar potato chips    :bow; :bow;   


Pass the Caltrate please.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Amanda From OZ
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« Reply #10 on: November 19, 2007, 10:11:51 PM »
I am with you wattle i LOVE salt and vinegar potato chips. mmmmmmmmmmmmmmmmmmmmmm but still got to eat them while on dialysis because of daily dialysis.
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angela515
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« Reply #11 on: November 19, 2007, 10:44:53 PM »
Well, I don't miss anything now. I did miss fluids though, unlimited fluids.

For Holidays, nothing.. because I was on PD so I cheated everyday, I don't see why I wouldn't cheat for a holiday if I was cheating daily anyways.  :lol;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Jamesw
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« Reply #12 on: November 20, 2007, 10:34:19 AM »
Orange juice, I used make my own orange juice every day. And i'd eat oranges all the time, at two or three a day.
This topic is depressing.
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charee
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« Reply #13 on: November 20, 2007, 03:45:57 PM »
Quote from: Amanda From OZ on November 19, 2007, 10:11:51 PM
I am with you wattle i LOVE salt and vinegar potato chips. mmmmmmmmmmmmmmmmmmmmmm but still got to eat them while on dialysis because of daily dialysis.

It must be a Aussie thing i LOVE salt and vinegar chips  too and if i wasn't trying to loose weight i would be still eating them yum :ausflag;
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Home Hemo  18 months
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from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
MyssAnne
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« Reply #14 on: November 20, 2007, 03:50:23 PM »
Cheese. Sausage. Pickles. My favorite snack was cheese, pickles, smoked sausage on a cracker, sometimes with a dab of hot mustard. Oh I love my hot mustard.
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glitter
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« Reply #15 on: November 20, 2007, 05:01:43 PM »
Quote from: charee on November 20, 2007, 03:45:57 PM
Quote from: Amanda From OZ on November 19, 2007, 10:11:51 PM
I am with you wattle i LOVE salt and vinegar potato chips. mmmmmmmmmmmmmmmmmmmmmm but still got to eat them while on dialysis because of daily dialysis.

It must be a Aussie thing i LOVE salt and vinegar chips  too and if i wasn't trying to loose weight i would be still eating them yum :ausflag;


not just Aussies love them- I love them too!! they are the only flavor chip I am fond of.  :)
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« Reply #16 on: November 20, 2007, 09:13:27 PM »
I really miss CHEESE!  I never realized how many dishes I made that had cheese in them.  Pizza and Coke are on the top of my list of things I want to eat after my transplant. 

My potassium and phosphorus are actually on the low side right now so I got permission to eat more bananas and orange juice, just not cheese.

Now I'm hungry!
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Learned of kidney failure--2000
Met with transplant team--Jan 2007
1st transplant surgery canceled--Sept 20, 2007
New donor found--October 2007
Started PD--October 16, 2007
Transplant scheduled for Nov 29, 2007!
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« Reply #17 on: November 20, 2007, 09:34:05 PM »
The only thing I miss is being able to drink all the fluids I want.  My diet is not particularly changed.  Thank goodness, my potassium has always been a bit low, so I can take a banana, etc. every now and then.  But I steer clear of orange juice, and that is probably because it was never a favourite.  I miss the yogurt, but I never was a milk drinker.
My dietitian always felt that you should take a small amount of some forbidden things, especially on the day that you dialyze.
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I LOVE  my IHD family! :grouphug;
Robby712
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« Reply #18 on: May 31, 2008, 09:01:08 PM »
Quote from: Chris on November 18, 2007, 08:22:21 PM
What is a regular every day food and/or drink you miss?   
Caffeinated Coffee!, Fries/Hash Browns, and then any food (except fish). After my transplant, I have no appetite like I use to. Hard to eat a lot.

What is a Holiday food and/or drink you'll miss?
Egg Nog

What's in caffeinated coffee? 

For the record Dr. Pepper, Pizza, baked potatoes, cheese, etc...

Ironically I eat much healthier now than I ever did before.
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Chris
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« Reply #19 on: May 31, 2008, 09:05:42 PM »
Quote from: Robby712 on May 31, 2008, 09:01:08 PM
Quote from: Chris on November 18, 2007, 08:22:21 PM
What is a regular every day food and/or drink you miss?   
Caffeinated Coffee!, Fries/Hash Browns, and then any food (except fish). After my transplant, I have no appetite like I use to. Hard to eat a lot.

What is a Holiday food and/or drink you'll miss?
Egg Nog

What's in caffeinated coffee? 



Caffeine is the answer.
I am no longer allowed to have caffeine according to the transplant center protocol because the caffeine is said to overwork the kidney's and raise blood pressure. But there is a taste and smell difference to me in cofee between caffeine and decaf.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Robby712
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« Reply #20 on: May 31, 2008, 09:19:28 PM »
Quote from: Chris on May 31, 2008, 09:05:42 PM
Quote from: Robby712 on May 31, 2008, 09:01:08 PM
Quote from: Chris on November 18, 2007, 08:22:21 PM
What is a regular every day food and/or drink you miss?   
Caffeinated Coffee!, Fries/Hash Browns, and then any food (except fish). After my transplant, I have no appetite like I use to. Hard to eat a lot.

What is a Holiday food and/or drink you'll miss?
Egg Nog

What's in caffeinated coffee? 

Ah.  Well I have no working kidneys and my blood pressure is always low.  So I suppose I'm safe.



Caffeine is the answer.
I am no longer allowed to have caffeine according to the transplant center protocol because the caffeine is said to overwork the kidney's and raise blood pressure. But there is a taste and smell difference to me in cofee between caffeine and decaf.
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