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Author Topic: I knew this was coming  (Read 4175 times)
Adam_W
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Me with Baron von Fresenius
« on: October 23, 2007, 01:45:16 PM »
Well, my graft seems to have clotted again, so I'm scheduled to go in to the kidney institute tomorrow to have a catheter put in. I hate catheters but at least I'll be able to safely dialyze until my graft can be revised. I have a consultation from my vascular surgeon a week from tomorrow, and hopefully he will schedule the procedure soon after that. Oh boy this really sucks needles.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
MyssAnne
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« Reply #1 on: October 23, 2007, 01:48:19 PM »
Oh, Adam. It doesn't help to know that it was coming, darn it. Yeah, it does suck needles.
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Joe Paul
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« Reply #2 on: October 23, 2007, 02:05:37 PM »
Thats sucks Adam, I hope they get you squared away this time.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
angellady07
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« Reply #3 on: October 23, 2007, 02:22:26 PM »
Adam, I'm sorry to hear about your graft. I hope your graft revision is a success. Take care and keep us posted.  :waving;
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Rerun
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Going through life tied to a chair!
« Reply #4 on: October 23, 2007, 02:23:50 PM »
Adam, I'm so sorry for you!  I hate catheters!  Hate, Hate, Hate, them!

ON the bright side you can be a "Juice Box" for Halloween!  get it?

                 :waving;
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Sluff
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« Reply #5 on: October 23, 2007, 02:30:14 PM »
Sorry to hear this Adam. I hope the best for you.
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paris
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« Reply #6 on: October 23, 2007, 02:31:01 PM »
Sorry Adam.  Take care :grouphug;
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angela515
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« Reply #7 on: October 23, 2007, 03:15:08 PM »
Sorry to hear it... but like you said, at least you can safely dialyze. until it's fixed.  :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
2_DallasCowboys
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« Reply #8 on: October 23, 2007, 03:24:29 PM »
Adam,
So sorry to hear of your graft problem.  I hope
it will be OK for you, and that there will be
no more problems with it.
Darn access-  just makes all of this so much more
frustrating

Anne
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kitkatz
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« Reply #9 on: October 23, 2007, 03:57:49 PM »
Well crap, crap, crap.  That sucks for you.

I wish you well and a speedy vascular access.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Black
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« Reply #10 on: October 23, 2007, 06:15:58 PM »
That's awful, Adam, but yes, it is about what you expected.   :(  Let's hope you get a great new access after all of this.  :2thumbsup;  Remember, if you don't like what the vascular surgeon says, get a second opinion.

I like the "juice box" costume idea.   ;D  Ought to be good for a first place win.
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
Adam_W
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Me with Baron von Fresenius
« Reply #11 on: October 24, 2007, 12:46:26 PM »
The catheter is in, and I just finished dialyzing. It hurts a lot right now, and I'm having a little bit of bleeding from the exit site, but I'm not too concerned because that's not that uncommon. When I first started my treatment, I was getting alarms out the wazoo, but I reversed my lines and didn't get a single alarm after that. I hate this thing, but hopefully I'll only need to use it for no more than a month.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Joe Paul
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« Reply #12 on: October 24, 2007, 12:52:54 PM »
Good luck Adam  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
MyssAnne
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« Reply #13 on: October 24, 2007, 01:58:27 PM »
I'm so glad it working (somewhat) okay for you Adam. I get mine tomorrow but only have to use it for a couple of weeks til my catheter (PD) heals.  Did you get anything for the pain afterwards? 
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goofynina
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He is the love of my life......
« Reply #14 on: October 24, 2007, 04:52:33 PM »
Adam, hang in there, i am sure there has got to be an end to this madness  :banghead;
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....and i think to myself, what a wonderful world....

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KR Cincy
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Home hemodialysis since May 07
« Reply #15 on: October 24, 2007, 04:59:42 PM »
Sorry about the struggles Adam. Good luck with the cath and, as lame as it sounds, hang in there.
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Not giving up...thanks to Susan.
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