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Author Topic: New to the site  (Read 3650 times)
grego439
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« on: September 06, 2007, 02:15:06 PM »
 :welcomesign;   :bandance;
Hi, My name is John. I'm 27 years old from Chesterfield .
I was born with Polycystic Kidney Disease and currently on haemodialysis 3 days a week.
It has been a difficult 27 years with plenty of ups and downs, but with lots of support from my family and very good friends they have helped enable me to stay positive and enjoy life as much as i can.
I've had one transplant when i was 6 years old which failed after 9 excellent years, i had a tough time for a number of years after it failed and now finally settled and doing well on haemodialysis.
It can be hard at times but i try hard not to let it get me down and always look at the positives out of life.

I am new to this site and would really like to talk to others suffering from Kidney Failure, so please reply to my post.  :2thumbsup;
« Last Edit: September 07, 2007, 08:58:13 AM by grego439 » Logged
Ohio Buckeye
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« Reply #1 on: September 06, 2007, 02:27:54 PM »
 :welcomesign; John to the IHD Family!
You'll find lots of helpful info here, lots of support and make many good friends.
Best wishes to you!
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If I must do this to live, I must strive to live
while I am doing this.
paris
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« Reply #2 on: September 06, 2007, 02:36:29 PM »
John, we are so glad you found us. This is a wonderful place with great people who are always willing to help.  It is a good place to vent, scream, cry and laugh.  Looking forward to hearing more from you. :welcomesign;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
aharris2
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Volcan Pacaya, Guatemala
« Reply #3 on: September 06, 2007, 02:51:37 PM »
 :welcomesign; to IHD you can certainly talk to us, so if you have any questions please feel free to make them.


cheers,

Rolando :grouphug;
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Laurie
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May 13, 2008
« Reply #4 on: September 06, 2007, 02:58:06 PM »
 :welcomesign; John. Glad you found this site. This is a great place for advice and support.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
goofynina
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He is the love of my life......
« Reply #5 on: September 06, 2007, 02:58:40 PM »
Hey Grego439,  Welcome to ihatedialysis.com.  Usually we do all our talking in the chatroom ;)  You can locate it towards the bottom where it says: IHD Chat Users - Click here to Chat,  if you see names under this (on the main page) then there are people in there, come on in and join us sometime, we'd love to get to know ya.  Looking forward to hearing more from you, in the forums and in chat.  :2thumbsup;


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
bolta72
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my best friend
« Reply #6 on: September 06, 2007, 03:28:38 PM »
 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #7 on: September 06, 2007, 03:51:11 PM »
:waving; grego439 -
I am sorry you've been through so much at an early age, but happy to hear that your life has stableized a bit. My family has PKD too, somehow it missed me but my daughter had renal failure due to a defective bladder. I hope you find lots of friends and support here. We can learn a thing or two from you, I'm sure!


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Redbomb
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« Reply #8 on: September 06, 2007, 04:07:33 PM »
:welcomesign;  I'm new here myself and have found the people here absolutely wonderful and supportive!

I pop in and out of chat when I'm home (I do Dialysis M,W,F, nights so those nights I'm not on-line).  Look for me on T, R, Sat & Sun though. :)

Again ..  :welcomesign;
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Roxy
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« Reply #9 on: September 06, 2007, 04:12:26 PM »
  :welcomesign;
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Wattle
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« Reply #10 on: September 06, 2007, 04:17:35 PM »


 :waving;  Welcome John
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Sluff
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« Reply #11 on: September 06, 2007, 04:58:46 PM »
Welcome John,

There is a lot of information here for you to read, you will be reading for awhile because the threads here are practically endless. I hope you learn or find whatever you need. If you need help just ask and someone will help you out.

Feel free to ask questions and post as often as you like.

Hope to chat with you soon.

Sluff/ Admin

 

 
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brenda
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« Reply #12 on: September 06, 2007, 08:27:32 PM »
 :welcomesign;
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Life is what happens while your making other plans.
kitkatz
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« Reply #13 on: September 06, 2007, 09:26:50 PM »
Welcome. Sit a spell and read the posts and discussions. Like any group we have opinions and are not afraid to tell them.





kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
keefer51
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« Reply #14 on: September 07, 2007, 01:46:19 AM »
 :welcomesign; john. i was born with only one kidney which was found when i was eleven. I am now on dialysis for the second time. I hope you enjoy this site.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
Romona
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« Reply #15 on: September 07, 2007, 03:51:27 AM »
Hi John!  :waving;
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #16 on: September 07, 2007, 04:04:05 AM »
Hi John,

 :welcomesign;

Great to see you here!

Just like to mention love the idea that you have put your "story" the way you have in your signature line such a great idea, gives you in a glimpse what you have gone through.

Hope to see you around

Take Care

Tamara xxxx ooo  :beer1;  :waving;  :beer1;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Hawkeye
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« Reply #17 on: September 07, 2007, 06:23:22 AM »
Hello and  :welcomesign;
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It's not easy being green.
lola
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I can fly!!!
« Reply #18 on: September 07, 2007, 09:57:59 AM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
KICKSTART
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In da House.
« Reply #19 on: September 07, 2007, 12:57:07 PM »
 :ukflag;   ?????   :welcomesign;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
grego439
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« Reply #20 on: September 07, 2007, 01:51:05 PM »
 :ukflag;

Hi all, thanks for the huge welcome you've given me since joining the site.

I visited the chat room last night and really enjoyed talking to everyone!   :bandance;
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Zach
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"Still crazy after all these years."
« Reply #21 on: September 07, 2007, 02:09:14 PM »
Good to have you with us!!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
del
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del and willowtreewren meet
« Reply #22 on: September 07, 2007, 05:07:38 PM »
 :canadaflag; from  :canadaflag;
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Don't take your organs to heaven.  Heaven knows we need them here.
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