What Do You Miss The Most?

[LightLizard]

oh yeah, i miss pepperoni pizza, too.
with anchovies and lotsa cheese.
and beer.
lots of beer.
and bar fighting.
 

[TynyOne]

I miss peeing well, you asked

GoofyNina,

I am still urinating but I have been told that I too, may eventually been unable to urinate and I was wondering how long after your diagnosis were you unable to urinate?   Also, I was wondering how does it eventually start?  For instance, did it start out where you only "peed" very little or how did it start out?

[TynyOne]

Well, I know I got off the topic by sending GoofyNina a question about urinating so I thought I would come back and tell what I miss the most.  I miss how my dialysis has had to come first in my life and I cannot miss treatments due to the fact, that I get real sick.   I know that personally because I missed ONE treatment and I felt lousy; therefore, I don't think I will ever do that again.  So, what do I miss?  I miss that I can't just get up and go out with friends spontaneously like I use to be able to do.  Now, my dialysis takes preference over anything.   I hope that makes sense and I said that right. 

Tammy from Alabama

[LightLizard]

you said it right, tammy. i know how you feel, too.

love

~LL~

[Bajanne]

I miss peeing well, you asked

GoofyNina,

I am still urinating but I have been told that I too, may eventually been unable to urinate and I was wondering how long after your diagnosis were you unable to urinate?   Also, I was wondering how does it eventually start?  For instance, did it start out where you only "peed" very little or how did it start out?

I have been on dialysis for nearly 2 years and I still pee (a bit).  I too used to wonder when it would stop., but now it doesn't really matter.

[goofynina]

I miss peeing well, you asked

GoofyNina,

I am still urinating but I have been told that I too, may eventually been unable to urinate and I was wondering how long after your diagnosis were you unable to urinate?   Also, I was wondering how does it eventually start?  For instance, did it start out where you only "peed" very little or how did it start out?

Hi Tammy,   Everyone is different, but as for me, i stopped peeing about 1 year after dialysis.  You just stop having the urge to go, to tell you the truth, i didnt even realize it was slowing down until they asked when the last time i went and i couldnt remember    But then again, there are those that have been on dialysis for quite some time and is still able to urinate (go figure huh)    Good luck to you...

[imacrash]

Oh, the things I miss.  I miss potatoes, I miss many other foods.  I miss drinking water by the gallons.  I miss having energy.  I miss my freedom.  I miss working.  I miss playing golf.  I miss washing my car and waxing it and feeling proud about it.  I miss having my kitties in my bedroom ( I do PD in my room).  I miss feeling well.  I miss not having to go to the doctor's all the time.  I miss peeing.
However, I'm grateful for living, my family and friends, the wonderful foods I still can eat, the days where I can walk the entire market.  Most of all, I am thankful for dialysis.   

[LightLizard]

well, i was told (before i went on the cycler) that if i wanted to eat potatoes, to dice and soak them in water for a few hours before cooking to get the excess potassium out of them.
now, on the cycler, they tell me that P/D can remove potassium, so i need to eat more foods with potassium to balance it out, potatoes, bananas, tomatoes, and the like.

[angela515]

well, i was told (before i went on the cycler) that if i wanted to eat potatoes, to dice and soak them in water for a few hours before cooking to get the excess potassium out of them.
now, on the cycler, they tell me that P/D can remove potassium, so i need to eat more foods with potassium to balance it out, potatoes, bananas, tomatoes, and the like.

You still cannot go over board on your potassium... even being on the cycler it does not take all the potassium off, so just watch your labs.

[TxGuyTx]

The only thing I really miss is working! Everything is is the same. I try Not to deprive my self of things. I still eat lot of cheese I LOVE CHEESE!!. Still drink beer. Really i just act normal. Oh yeah somthing else I miss is the fact that I will prblly never have a family. Being sick as long as I have I tend to not let anybody get to close.  Basiclly I just live my life.

[goofynina]

The only thing I really miss is working! Everything is is the same. I try Not to deprive my self of things. I still eat lot of cheese I LOVE CHEESE!!. Still drink beer. Really i just act normal. Oh yeah somthing else I miss is the fact that I will prblly never have a family. Being sick as long as I have I tend to not let anybody get to close.  Basiclly I just live my life.

Oh but wait my friend,  you have US and we are family   We are here for you always   

[kitkatz]

I miss the hours dialysis takes up especially when on vacation.   It is like having a second job, only you HAVE to go and no sick days per se.

[TxGuyTx]

The only thing I really miss is working! Everything is is the same. I try Not to deprive my self of things. I still eat lot of cheese I LOVE CHEESE!!. Still drink beer. Really i just act normal. Oh yeah somthing else I miss is the fact that I will prblly never have a family. Being sick as long as I have I tend to not let anybody get to close.  Basiclly I just live my life.

Oh but wait my friend,  you have US and we are family   We are here for you always   

Thanks, Means alot goofynina. 

[RichardMEL]

I miss my body. I miss not having stamina. I miss not being able to sleep well.  On the other hand. I have grown as a person, and
am actuallly a lot nicer now than before. More patient, more understanding, more compassionate.

Yess MyssAnne, I miss your body too!

Seriously though you make a valid point. I think this has made me a bit of a better person. I think I am a bit more relaxed about the "smaller" things in life (you know those trivial things that you might worry about but really isn't worth it) - I think it's called having perspective?

I know this will sound strange, but I think having to deal with hemo and being in the unit and interacting with quite a few people when I'm there - nurses, patients, family and friends of the patients etc... I think I've become a bit more sociable and learned to have a bit of fun.. I mean if you can't laugh in the middle of diaialysis you might as well throw it in I reckon...

So yeah I think I've become a better more accepting and relaxed person (except when I see the machine set wrong !!! lol).