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astrobridge
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« on: February 12, 2023, 01:43:03 PM »
Hi everyone! I am new to this site and new to dialysis as well. Does anyone have any advice or hacks on the Liberty cycler noise problem. It’s hard to sleep with the noise. And how do you deal with the awful drain AND fill pains? This is my first month on pd. Any advice would be appreciated!!
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kristina
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« Reply #1 on: February 13, 2023, 02:05:37 AM »
Hello astrobridge (most interesting name!) and welcome to IHD.
I do hope you get very soon answers to your special questions.
My own dialysis-years consisted of having "installed" a tunnelled chest-catheter-dialysis-access, which, with very careful handling (greatest cleanliness, no water near it whatsoever etc.) lasted me for four years without infection etc. (I daresay I was very lucky ...), until my transplant "came along", which, of course, has its own trials and tribulations ...
Unfortunately, I cannot be of any help concerning your Liberty cycler noise etc. But from my own dialysis-experience I know, that a kind and dialysis-friendly diet (in my case vegetarian) plus keeping as fit as is possible, creates, in my opinion, the very best chances.

I wish you the best of luck and please take great care, Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
SooMK
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« Reply #2 on: February 13, 2023, 02:01:24 PM »
Welcome Astrobridge, I'm sorry I can't help as I was not on dialysis. I hope someone will jump in with some advice. I wanted to say welcome.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: February 15, 2023, 03:23:42 AM »
Hi astrobridge welcome to the site  :welcomesign;


I also never used the Liberty, but I used to put a blanket over my Gambro to suppress the noise. I remember to lay on my side to reduce pain, and ask the nurse to put it on tidal (so your peritoneum is never empty, so no sucking) I hope you get some more tips. Tidal  definitely  helped me.


Good luck, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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