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Author Topic: I spent the last two weeks with my doctors trying to kill me  (Read 2545 times)
Michael Murphy
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« on: September 26, 2020, 09:06:45 PM »

Two weeks ago blood began pouring out of my butt,  went to urgent care and was sent to a hospital.  Imeadiately  no food just broth for the first 3 days.  Followed by 4 liters of water based laxitive.   Day 2-4 large amounts of saline were introduced. I went to dialysis on Wednesday and Friday. 
On Thursday I was scoped from top to bottom.  Nothing was found.  But it was concluded a diverticulum was responsible.  At that point my hemo went from a 11.8 to a 6.5.  So on Friday and Saturday I was given 4 blood transfusions and some more saline. Late Saturday I was released.  Went home and by 11:00 PM I was unable to breath.  Sunday was moved to CCU Monday morning a code blue was called for me since I passed out.  I was in a-fib and my ICD internal cardiac defibrillator fired 3 times. My wife was called and informed and it was serious.  The ICD returned me to normal sinus rhythm.  Then from Tuesday thru Thursday I was given amiadarone and heparin both constantly and in a saline bag. I was then more than with it to discover after my Wednesday dialysis I was over 8.5 kilos over my dry weight which considering the lack of food the previous week could have been over 10 kilos over.  The only mistake made was they needed to check my dry weight during this whole process.  The doctors said the scale in the hospital bed was inaccurate however Thursday I had a scale brought in to check my weight and the bed scale and the hospital scale were the same weight. If your bed has a scale have it zeroed out each day and have the weight recorded so your weight can be checked daily. So that you won’t have enough fluids pumped in and have your heart damaged like mine was.(my ejection fraction dropped 10 points).
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cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: September 27, 2020, 06:07:20 AM »

Jeeez Michael, awful to be in this position. Sending lots of healing vibes to you, and common sense vibes to your drs et al.


Lots of love, and get better soon, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Cupcake
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a good year for Chevys

« Reply #2 on: September 27, 2020, 07:42:57 AM »

Holy Cow! you sure have been through the ringer. Once again a dialysis patient knows more about fluid/electrolyte balance than most doctors. I hope you are not considering a transplant-those necessary transfusions will unfortunately increase your risk of antibody formation. Best of luck to you as you recover.
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PD for 2 years then living donor transplant October 2018.
MooseMom
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« Reply #3 on: September 27, 2020, 07:46:47 AM »

Oh, my God!  Are you OK now?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Michael Murphy
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« Reply #4 on: September 27, 2020, 12:06:50 PM »

Better, I had 2 extra kilos taken off on Saturday and my breathing is easier, Monday I am planning to pull 4 Kilos which should get me below my old dry weight.  The reason for the post is that if a hospital is pouring fluids in you that you demand they track your weight. At a minimum zero your bed scale when you are out of your bed and check the accuracy of the bed scale by bringing in a rolling certified hospital scale and seeing if both results are the same.  The fact that this is not a standard practice for dialysis patients is a disgrace,
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MooseMom
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« Reply #5 on: September 27, 2020, 02:04:07 PM »

Better, I had 2 extra kilos taken off on Saturday and my breathing is easier, Monday I am planning to pull 4 Kilos which should get me below my old dry weight.  The reason for the post is that if a hospital is pouring fluids in you that you demand they track your weight. At a minimum zero your bed scale when you are out of your bed and check the accuracy of the bed scale by bringing in a rolling certified hospital scale and seeing if both results are the same.  The fact that this is not a standard practice for dialysis patients is a disgrace,

Oh sure, I get your point.  This shouldn't even be an issue.  I'm all for being the captain of your own ship and being your own best advocate, but sometimes you have to trust the crew, and when you can't trust the crew, you can get into a world of trouble, as you've seen.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
kristina
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« Reply #6 on: September 27, 2020, 02:28:00 PM »

Hello Michael, I am very sorry and send you lots of get-well-soon-wishes.
Take great care and all the best from Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
UkrainianTracksuit
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« Reply #7 on: September 29, 2020, 07:19:37 AM »

It is infuriating that you had to endure this. Hope you are doing better right now and we appreciate your warning.
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