They want to remove transplant

[Keith L WOOLFORD SR]

Here in West Virginia they want to remove my rejecting transplant! What are your thoughts on this? Should I get second opinion,or go wit it.
They said they want to remove it so I'm not having pain ,or have to take the anti-rejection meds.

[iolaire]

What are your thoughts on this? Should I get second opinion,or go wit it.

If you have the resources to do so I'd say yes. (I assume you would need to go to another state for a few days to another transplant center for a second opinion?  Or maybe they can do it remotely with records from your center?)  That sounds like a huge major event so it doesn't hurt to get a second opinion.

[kristina]

Here in West Virginia they want to remove my rejecting transplant! What are your thoughts on this? Should I get second opinion,or go wit it.
They said they want to remove it so I'm not having pain ,or have to take the anti-rejection meds.

Hello Keith,
It is very sad to read about your predicament. Such bad news always come at the wrong time and at this time of year it is particularly the worst possible time !
... Why do the doctors want to remove your transplanted kidney and why don't you have to take your anti-rejection medication any longer?
Did the doctors give you any explanation about it all ?
... I agree with iolaire, a second opinion does not hurt, especially since it sounds such a huge step to take...
I wish you the best of luck for the right decision.

[GA_DAWG]

I've not had a transplant yet, so it is not from experience, but they tell me the anti-rejection medicines are pretty rough, and in addition, purposely so as to prevent it from attacking the new organ, they kill the immune system leaving you more susceptible to some pretty major illnesses. I would definitely research it though and ask for a second opinion. Would it still be viable to put a new kidny in the same location would be one thing I would want to know.

[Riki]

I would wonder why they want to take the transplanted kidney out.  Usually, they just leave it there, unless it's causing any issues.  I have had two transplanted kidneys left in me.  I was told that if I was ever to get another transplant (highly unlikely at this point) that they'd just take one out and put the new one in it's place.

As for antirejection medications, if the kidney is left and it's still functioning, it's best to continue taking it.  Also, even if it has failed, a kidney that has some function is good.  It helps with fluid retention, blood pressure control, and the balancing of hormones and other electrolytes.  Removal of the kidney leaves you without any of that.

I would think long and hard before allowing them to remove the rejected kidney.  I would say that a second opinion would not hurt at all.  A removal of the kidney without any real issue seems like a waste of time and money, and would probably be hard on the body, as taking out a kidney is as big a surgery as putting one in.

[Keith L WOOLFORD SR]

Update
They still haven't contacted my transplant team as of this writing.
I have a chair ,they want me to be a patient representative,they also want me to speak with patients about my transplant experience......

[kristina]

Update
They still haven't contacted my transplant team as of this writing.
I have a chair ,they want me to be a patient representative,they also want me to speak with patients about my transplant experience......

Hello Keith and best wishes for 2020 from Kristina. 
P.S. Did you go for a second opinion and did you find out what is what & what is going on? Is your transplanted kidney still functioning? Has your weight gone up i.e. water retention etc. ? What does the doctor/nephrologist say ?

Take care and best wishes !

[MooseMom]

Keith, do you have any updated information you'd care to share with us?

[Keith L WOOLFORD SR]

After my standing up for myself they no longer want to remove my transplant.
How ever the Dr. wants to ween me off of cellcept ( because of covid19) but that would cause painnin my transplant area causing me to get the transplant removed wouldn't it or is it just me thinking this