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cassandra
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When all else fails run in circles, shout loudly

« on: August 01, 2019, 11:26:46 PM »


We’ve had a thread once about fellow-patients dying, and the emotions, and a lot of clinics and staff pretending it didn’t happen etc. There’s better ways to deal with this


   [size=78%]https://homedialysis.org/news-and-research/blog/321-coping-with-death-in-dialysis[/size]
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
iolaire
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« Reply #1 on: August 02, 2019, 06:28:55 AM »

HIPPA is always used for not sharing information. But when we join a center or visit another US center we are presented with stacks of paper to sign.  I’d guess they could develop another page related to do you want your fellow patients to be given limited information Incase of illnesses or death.  Given is not the right word maybe should fellow patients who ask be told limited information. The kind of information shared by family and friends on this form for example.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
cassandra
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When all else fails run in circles, shout loudly

« Reply #2 on: August 02, 2019, 07:57:46 AM »

Good one Iolaire :cheer:
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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