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Author Topic: Kitkatz Status  (Read 4384 times)
Rerun
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Going through life tied to a chair!
« Reply #25 on: April 28, 2019, 06:23:56 PM »
We need an update Sister! 

   :yahoo;
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Charlie B53
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« Reply #26 on: May 01, 2019, 06:29:05 PM »

KK made a Facebook post with this link

https://chronicdiseasecoalition.org/patient-advocate-spotlight-katherine-soto/
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GA_DAWG
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« Reply #27 on: May 02, 2019, 09:47:07 AM »
Hope that mean she is okay, and she is so right about infection. We had a guy, full of life, always with something quick to say. He left on a Friday, his usual self, over the weekend got some kind of infection in the arm with his fistula, and by Monday was gone. It can happen so fast, and that is one of the hardest parts of this whole thing.
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kitkatz
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« Reply #28 on: May 04, 2019, 01:16:29 AM »
I am still around and hitting things with my stick.  I feel like someone beat me with my own stick.  I hurt all over and have a bout of sciatica for the last year or so.  Kaiser managed to give me huge bruises on my right arm from trying to get blood work and IVs.  I do not remember any of it.  I was pretty much out of it most of this hospital stay from Tuesday night through till Thursday morning when they sent me home finally.  I think the ER lost me when they moved me from one room to another.  What a way to go people!  Be assured I am still alive and kicking.
 I am currently working on revising a story I have written.  I have plans to write a book about dialysis from a patient's viewpoint. 
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Charlie B53
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« Reply #29 on: May 06, 2019, 09:54:54 PM »

We are so Glad to hear from you cause we were worried.

Distance makes the worry so much harder when no one is close enough to sit and hold your hand.

Keep taking Care,

Charlie B53
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cassandra
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When all else fails run in circles, shout loudly
« Reply #30 on: May 07, 2019, 12:37:42 AM »
So glad to hear from you honey!!!


   :grouphug;


Lots of love, luck and strength, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
iolaire
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« Reply #31 on: May 07, 2019, 05:54:28 AM »
Quote from: kitkatz on May 04, 2019, 01:16:29 AM
Be assured I am still alive and kicking.

Good, I hope your writing is uplifting your recovery.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
GA_DAWG
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« Reply #32 on: May 07, 2019, 09:20:40 AM »
Hope everything goes well. Your story about being lost by the ER makes me remember a story Richard Pryor used to tell. He was in room 528, and he heard them discussing how the patient in 527 had passed away. He said, now, God knows mathematics and after 527 comes.....
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Riki
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WWW
« Reply #33 on: May 11, 2019, 11:48:43 PM »
Quote from: kitkatz on May 04, 2019, 01:16:29 AM
I have plans to write a book about dialysis from a patient's viewpoint.

If anyone can do that, it's you.  You have plenty stories to fill a book, I'm sure
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
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