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Author Topic: To eat or not to eat. It might be dependent on the person/clinic/country?  (Read 3666 times)
cassandra
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When all else fails run in circles, shout loudly

« on: March 27, 2017, 02:52:58 AM »

https://ajkdblog.org/2017/03/14/nephmadness-2017-agarwal-lays-down-the-law-on-eating-during-dialysis/
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Charlie B53
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« Reply #1 on: March 27, 2017, 05:50:10 AM »


I can agree with the Dr to an extent. The digestability of the food can cause differences in blood flows within the body, eating much harder to digest foods can cause negative effects on Dialysis.

HOWEVER, smaller 'snacks' of more easily digested foods do not cause this effect near as much and still allow adequate Dialysis.

My clinic allows 'snacks' but I don't think they would like me to bring in a three piece Kentucky Fried Chicken Meal with 2 sides and a biscuit.
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iolaire
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« Reply #2 on: March 27, 2017, 05:54:27 AM »

So I feel like in the US they don't really like people eating on dialysis - unless your protein is low then they are happy giving you the dialysis friendly Ensure like drink which must be nasty because when the previous patients spill it it sticks to the chair/table like wax and doesn't come off easily...  So I think eating on dialysis really is just fine as long as it meets the center's goal...
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
smartcookie
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« Reply #3 on: March 27, 2017, 08:08:45 AM »

I think it is different for each patient.  If you are a patient who experiences drops in blood pressure frequently when on dialysis, then eating a meal or even a snack is probably not the smartest.  Also, patients who choke easily should not eat on dialysis.  However, I have patients who need a snack due to diabetes.  That should be allowed.  If you can avoid eating, then you should. 

I have a patient who eats popcorn on the machine every treatment.  Like a pretty large bag.  She complains when staff asks her not to eat (we have a no eating policy that all patients sign when they are admitted) or if she has taken her binders with her snack (she has extremely high phosphorus).  She recently complained to me that staff do not bother other patients when they are eating, only her.  I know this isn't true, and other patients on her shift don't bring snacks very often at all.  She also throws up often after or during treatment due to her popcorn.  That type of patient should probably avoid food, too. 
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I am a renal social worker.  I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
kristina
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« Reply #4 on: March 27, 2017, 01:11:50 PM »

I also think it is different for each patient. For example my own dialysis-treatments take place during the evenings and start when it is time for my evening-meal and I enjoy every time - after being connected -  a nice evening-meal-portion of my favourite potato-salad (cooked salad-potatoes mixed with cut gherkins and olives & mixed with vinegar and olive-oil), all prepared at home. It also has a welcome psychological effect, because these delicious potato-salads actually make me look forward to my dialysis-sessions and that helps a lot to make my dialysis-life a little easier. Mind you, I have no idea how things would turn out if my treatments would take place at a different time of day or night... Fortunately I have had no problems with my blood pressure (not yet anyway) and I also have been lucky so far that my dialysis-treatments don't make me nauseous either. I should add here that I "stick" consequently - every day - to my vegetarian kidney-friendly-diet and liquid-restrictions...
Best wishes from Kristina :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
LorinnPKD
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« Reply #5 on: March 27, 2017, 07:35:27 PM »

Wow, I can't imagine not being able to eat while on session during the dinner hour.

Like kristina (hi kristina!), I look forward to enjoying a dinner meal during my session (usually a non-messy, non-stinky, picnic-like meal of a sandwich, chips or fruit, a grape soda, and some after-dinner candies).  It helps with the nausea I sometimes have and it also helps pass the time wonderfully -- it takes me a long time to eat and by the time I'm finished I only have two hours left!

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