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Author Topic: So what would you do  (Read 60096 times)
Charlie B53
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« Reply #125 on: July 27, 2017, 04:54:36 AM »


I want to know more about being 'geriatric' simply because you are 'over 50'.

If this is so, then what am I?   I think I am still a 'kid' at almost 64!

When I get old and losing my hair
Many years from now
Will you be sending me a Valentine
Birthday Greeting, Bottle of Wine
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smartcookie
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LMSW

« Reply #126 on: July 27, 2017, 08:21:35 AM »

I think most people think over 65 being "geriatric."  I don't think that at all.  It depends on the person and how they are doing.  BTW, I love that song!  My hubby and I are big Beatle fans!
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I am a renal social worker.  I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
cassandra
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When all else fails run in circles, shout loudly

« Reply #127 on: July 27, 2017, 12:12:53 PM »


I want to know more about being 'geriatric' simply because you are 'over 50'.


Sigh, Charlie honey, my SKIN is geriatric because Renal Replacement Therapy for most of my life, and the other treatments and miraculously actually reaching an age over 50 do make my skin look very old (especially on places where surgeons have been 'having a go' like my arms)

Me personally still think I'm a girl. An older girl though. And it's getting harder every day to keep fooling my self. And I'm proud to have made it to being old.
What's wrong with old anyway?

    :angel;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
smartcookie
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« Reply #128 on: July 27, 2017, 01:13:00 PM »

Nothing is wrong with old, that's what!  My hubby is going grey prematurely, and he looks devilishly handsome with it!  I walk like an old woman with my back, but I am mostly pain free and can actually walk!  So who cares?  Age is a number, that's it.
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I am a renal social worker.  I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
Charlie B53
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« Reply #129 on: July 27, 2017, 04:05:11 PM »


Nothing wrong with 'fooling yourself' a bit.  Personally, I enjoy fooling around.  Being a fool actually comes quite easily, after all, I am a 'Guy', and not yet an old one. Or so I keep fooling myself into believing!  My body, often has moments of disagreement, some of which last for days at a time.  Fortunately, none of those times has killed me, yet.
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cassandra
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When all else fails run in circles, shout loudly

« Reply #130 on: July 28, 2017, 11:15:11 AM »


Yup fake it till we make it  ;D

Today I managed to get myself on and off all by myself. Hubby back to being hubby.
He cooked today though, I'm not stupid

    :angel;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kristina
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« Reply #131 on: July 28, 2017, 11:16:27 AM »


Yup fake it till we make it  ;D

Today I managed to get myself on and off all by myself. Hubby back to being hubby.
He cooked today though, I'm not stupid

    :angel;

 ;D
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
cassandra
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When all else fails run in circles, shout loudly

« Reply #132 on: February 28, 2018, 11:11:47 AM »

And finally today I have a date for "bringing to the surface' of the new fistula  :laugh:
Fantastic she sais. It's next Tuesday 6' March. I'm slightly apprehensive to say the least.


To be continued.  ;D


Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kristina
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« Reply #133 on: February 28, 2018, 11:33:02 AM »

Hello Cas,
I wish you good luck for next Tuesday and hopefully everything goes well and I keep my fingers crossed.
Best wishes from Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
MooseMom
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« Reply #134 on: February 28, 2018, 12:11:23 PM »

And finally today I have a date for "bringing to the surface' of the new fistula  :laugh:
Fantastic she sais. It's next Tuesday 6' March. I'm slightly apprehensive to say the least.


To be continued.  ;D


Love, Cas

I suppose this is good news, although I do feel apprehensive on your behalf.  I'm sure everything will go well.  I look forward to hearing from you once the procedure is over and how you are doing!

This thread is a tad old, and I'm sure I've missed something along the way, so could you refresh my memory and tell me where the new fistula is?  My apologies for being a bit thick.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
kickingandscreaming
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« Reply #135 on: February 28, 2018, 12:15:48 PM »

Best wishes to you, Cas.   I hope it goes without a hitch.  Keep us posted.
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Xplantdad
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« Reply #136 on: February 28, 2018, 12:35:44 PM »

Great luck to you, Cas!
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
cassandra
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« Reply #137 on: March 01, 2018, 12:56:42 AM »


This thread is a tad old, and I'm sure I've missed something along the way, so could you refresh my memory and tell me where the new fistula is?  My apologies for being a bit thick.


Thank you Kristina, MM, KaS and Xplantdad  your well wishes mean a lot.


And MM I'll remind you. The new fistula was created in my left arm. That arm had the cephalic vein removed (previous fistula) This one goes from above elbow to arm pit.


Thanx again, love y'all, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
JW77
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« Reply #138 on: March 01, 2018, 02:16:46 AM »

I'm not sure what I'd do..  My fistula was made in 89...So  nearly 30 years old..  It works.. Recently new consultants wanted to do new buttonholes/locationes etc.. There is quite a lot of calcification, but not impossible. 

I've known patients to have a leg graft.. A lot of bleeding.. 

But if there's a way..  Coming onto the thread a bit late..  I haven't been on here for ages..

But much luck....
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Medical stuff, includes 3 kidneys, cancer, meningitis, 1 heart attack and its long and not that interesting! Maybe one day I'll write a book.! `

I have an eclectic taste in music, I fly kites, I read, write, tog, blog and have a bit of a passion for multicellular eukaryotes, and kites.

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MooseMom
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« Reply #139 on: March 01, 2018, 12:34:07 PM »

Nice to "see" you again, JW77!

Cass, thanks for the reminder.  You've certainly been through the wars, haven't you!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cassandra
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« Reply #140 on: March 01, 2018, 12:54:48 PM »



Cass, thanks for the reminder.  You've certainly been through the wars, haven't you!


Yes lovely to see you JW77 :cheer:  and thanx.


And MM that's my problem. More than 50 surgeries and that's just the ones under general anaesthetic. I must be running out of luck at some point.


I've actually bought myself a pretty expensive relaxing candle. The scent of that and some extra Diazepam will have to get me through this week  :angel;


Love y'all, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
GA_DAWG
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« Reply #141 on: March 01, 2018, 09:14:01 PM »

Amazing how at 18, I thought of 30 as one foot in the grave. Now, I look at people who are 30 and think how young they are. Also remember thinking anyone over 30 knew very little, as I had all the answers. Now I think they were remarkably well informed.
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PrimeTimer
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« Reply #142 on: March 07, 2018, 10:15:51 PM »



Cass, thanks for the reminder.  You've certainly been through the wars, haven't you!


Yes lovely to see you JW77 :cheer:  and thanx.


And MM that's my problem. More than 50 surgeries and that's just the ones under general anaesthetic. I must be running out of luck at some point.


I've actually bought myself a pretty expensive relaxing candle. The scent of that and some extra Diazepam will have to get me through this week  :angel;


Love y'all, Cas

Sorry to be late with this Miss Cas but hope your fistula surgery went well. Hope you are resting and when you feel up to it, can give us good news. I use to keep a small lemon/lime candle to carry around just to take a whiff of whenever I needed a pic-me-up. Mobile pocket aromatherapy. Does wonders for the mood. Especially when stressed. Need not be lit, just sniffed. Create yourself a collection of "moods" you want and various states of being and enjoy! Hurry and heal up! Take care. Will be thinking of you.  :angel;
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Simon Dog
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« Reply #143 on: March 08, 2018, 07:33:53 AM »

Amazing how at 18, I thought of 30 as one foot in the grave.
I am a bit disappointed - my state's government just relegated me to "elderly" status..    If someone assaults me, they get an extra charge because I just turned 60.
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cassandra
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When all else fails run in circles, shout loudly

« Reply #144 on: March 08, 2018, 09:18:00 AM »



Sorry to be late with this Miss Cas but hope your fistula surgery went well. Hope you are resting and when you feel up to it, can give us good news. I use to keep a small lemon/lime candle to carry around just to take a whiff of whenever I needed a pic-me-up. Mobile pocket aromatherapy. Does wonders for the mood. Especially when stressed. Need not be lit, just sniffed. Create yourself a collection of "moods" you want and various states of being and enjoy! Hurry and heal up! Take care. Will be thinking of you.  :angel;



Hi PT thanx for asking, but I'm back home cos the anaesthetist wanted updated haert scan and ecg. Than surgeons in transplant surgery. So I'm back home, no pain, knowing that my heart is as good as it was before second fistula was created. And await the next date. 😷
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
MooseMom
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« Reply #145 on: March 08, 2018, 10:25:31 AM »

That's good news about your heart health!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cassandra
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When all else fails run in circles, shout loudly

« Reply #146 on: March 08, 2018, 10:47:00 AM »

That's good news about your heart health!


Thanx MM I think so too


   :cheer:     :cheer:
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #147 on: March 08, 2018, 11:17:00 AM »

That's good news about your heart health!


Thanx MM I think so too


   :cheer:     :cheer:

One way of keeping medical staff on their toes is to show up as if you are there for an appointment, making them realize they are not adequately prepared to perform a procedure and having to reschedule you. Good job, Miss Cas! Tell them next time won't be a drill.  ;)
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
cassandra
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When all else fails run in circles, shout loudly

« Reply #148 on: March 18, 2018, 11:23:09 AM »

I have the new date for a week or so, and have been pretty good in pretending it's not actually happening. I was informed by one of the surgeons (not the one who'll be doing me  ;D ) that it's going to be very painful. Yeah, but don't we have morphine for that? I replied. The pump that I just use at will? It still is going to be very painful she kept saying. So I left it at that.


I have to go in the 5' of April. Favourite vasc surgeon is scheduled to do it probably the 6'.


So now I'm wondering how I'm supposed to put my needles in with my left arm with two long cuts and stiches in? Hubby is really not going to do that. I suppose I'm going to need a slot in the clinic or the hosp.


Anyone?


I don't want anyone to mess up my BH's before the left arm can be used.
And how long does it take for this 'changed location' fistula to be usable?


I asked of course in hosp, nurses, drs, they don't know either. The closest I got to an answer was: probably not as long as a newly created fistula.


If anyone knows who's had a fistula moved from one side of the arm (armpit to inside elbow) to the other side (biceps area they said) please enlighten me.


 ;D


I'm trying to be prepared    :cheer:


Love y'all, Cas
« Last Edit: March 18, 2018, 11:24:26 AM by cassandra » Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Charlie B53
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« Reply #149 on: March 18, 2018, 02:04:16 PM »


Prior to Wife's lumbar puncture I placed a strip of one of my 5% lidocaine patches on the site to pre-medicate and help numb the area.  Afterwards she told me she didn't even feel the needle stick.

Perhaps prior to admission for your procedure you can paint the bicep inner and outer with that same 5% lidocaine used to numb prior to clinical treatment that other use, wrapping to painted area with plastic to keep it there.  Once in the hospital unwrap and wash it off.  Viola! Pre-medicated, slightly numbed.  Hopefully the procedure won't be near as painful.

I like fentenyal, no brain cloud, and it works very well to mask pain.  Morphine IV works O.K. but still clouds my head.  I often feel like I could have done just as well with a bunch of alcohol, and maybe would have enjoyed drinking it as it has been a number of years since I've fallen off that wagon.
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