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Author Topic: Fistula revision  (Read 5445 times)
kitkatz
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« on: November 06, 2016, 12:43:46 PM »
I just spent two days in hospital having a fistula revision.
I went in on Friday becasue my fistula blew a scab and bled like a murder scene.
I had on Friday:
1. A stitch put into the fistula.
2. Interventional radiology ballooned my fistula.
3. Five hours of dialysis in the ER. Longest five
hours of my life.

Saturday:
Fistula revision  Because of my blood pressure acting crazy, they did most of it under a local with some meds gvien.  I had a panic attack in the middle of it and burst into tears from hurting, that was when they finally gave me more meds. 

Then sent home to recover.

I am sore this morning, but am okay.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Xplantdad
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« Reply #1 on: November 06, 2016, 01:40:49 PM »
Glad that you are doing a bit better. None of what you described sounded like fun :(
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
Rerun
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« Reply #2 on: November 06, 2016, 01:42:13 PM »
OMG that is awful.  No sedation?  I'm usually under a general with a revision.  I'm so sorry Girl Friend. 

Here is a hug and a beer!    :cuddle;   :beer1;  Get better soon....

Love, Rerun
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willowtreewren
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« Reply #3 on: November 06, 2016, 01:50:57 PM »
Sounds simply awful! I'm so sorry!  :'(

Hopefully this will take care of you for a good while!  :cuddle;

Aleta
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Wife to Carl, who has PKD.
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
Simon Dog
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« Reply #4 on: November 06, 2016, 02:14:26 PM »
Quote from: willowtreewren on November 06, 2016, 01:50:57 PM
Sounds simply awful! I'm so sorry!  :'(
Awfully, but also good news - it sounds like they saved his fistula so it can live to flow another day.
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Michael Murphy
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« Reply #5 on: November 06, 2016, 05:53:12 PM »
Sounds like it sucks, good thing you are tougher then it was.  Sorry you had to go through the procedure hope it lasts a long time.
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PrimeTimer
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« Reply #6 on: November 06, 2016, 06:37:43 PM »
Sorry to hear this, kitkatz. My husband knows about that whole "murder blow out scene" all too well. He had to have emergency surgery last year and then a blood transfusion. Because of it, his fistula was shortened in length but it's still working like a dream. Glad they were able to save yours. Every few months or so he has to be ballooned to keep it. They give him one shot to numb the area. If it were me I'd probably need more than that. If I don't have to feel pain I'd rather not. 
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
cassandra
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When all else fails run in circles, shout loudly
« Reply #7 on: November 06, 2016, 09:38:15 PM »
Sorry to hear about the ordeal, but glad they could save it.

Healing vibes coming your way.

Lots of love, luck and strength, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
iolaire
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« Reply #8 on: November 07, 2016, 04:58:00 AM »
Best of luck.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Charlie B53
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« Reply #9 on: November 07, 2016, 05:35:43 AM »

There isn't enough meds.   I would have passed smooth out, and tried to sleep through the whole thing.  If they would let me.

The sad part about passing out is the Med team seems to panic and grab that aromatic ammonia, wave that vileness under my nose and wake me back up.   I often have to wonder if they get some sort of enjoyment out of inflicting this types of tortures upon us?

You are one tough Lady to sit and endure this.   I Pray this will not be needed again for a very long time.  If ever.
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kitkatz
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« Reply #10 on: November 08, 2016, 01:55:13 PM »
And once again I was back at Kaiser yesterday for fistula revision for the second time.  Woke up to no thrill in the arm.
So I spent the day In kaiser mainly waiting and waiting for  another declot procedure to be done by my surgeon.
I finally had the declot procedure at 7 pm and then went to dialysis for 5 hours afterwards.  So finally home around 5 am this morning.
My arm is sore but the pain meds seems to be working.
« Last Edit: November 08, 2016, 01:56:52 PM by kitkatz » Logged


lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
PrimeTimer
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« Reply #11 on: November 09, 2016, 04:24:32 PM »
Quote from: kitkatz on November 08, 2016, 01:55:13 PM
And once again I was back at Kaiser yesterday for fistula revision for the second time.  Woke up to no thrill in the arm.
So I spent the day In kaiser mainly waiting and waiting for  another declot procedure to be done by my surgeon.
I finally had the declot procedure at 7 pm and then went to dialysis for 5 hours afterwards.  So finally home around 5 am this morning.
My arm is sore but the pain meds seems to be working.

Hope it's an "all clear" for you this time.   
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
willowtreewren
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« Reply #12 on: November 09, 2016, 04:46:47 PM »
Geeze, Louise! You have been through it, Kit!  :banghead;

Hopefully this will do it.

Sending love.

 :cuddle; :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cassandra
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« Reply #13 on: November 10, 2016, 03:00:42 PM »
Sending more healing vibes Kitkatz

     :grouphug;


Love, luck and strength, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kitkatz
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« Reply #14 on: November 12, 2016, 09:47:43 PM »
So here is a picture of my arm revision and the 20 staples that the doctor put in it.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Simon Dog
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« Reply #15 on: November 12, 2016, 10:07:42 PM »
All I can say is wow.     I sure hope that did the job for you.
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Charlie B53
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« Reply #16 on: November 13, 2016, 05:28:36 AM »
Oh Owie Zowie, I can feel that from here!

And they didn't knock you OUT?

I would have tried to watch, for a second, then passed smooth out.

I don't doubt  that I could watch this be done to someone else, but when it comes to myself being cut open,  Well, I really don't think I could.  And I hope I don't have to find out.   This is one of those things I don't really need to know.

I hope whatever Dr is giving you is working well.   Be SURE to eat LOTS more fruits and softer veggies.  You know how those opiates can turn food into concrete in the bowels.

Take Care
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kristina
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« Reply #17 on: November 15, 2016, 12:50:57 AM »
Hello kitkatz,
I send you my best wishes and hopefully it is working well for you.
Good luck from Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
justagirl2325
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« Reply #18 on: November 15, 2016, 06:05:18 AM »
Amazed everyday at the things you and others on dialysis have to go through just to survive.   I hope that heals well and works properly for you. 
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Simon Dog
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« Reply #19 on: November 15, 2016, 06:18:22 AM »
Quote from: Charlie B53 on November 13, 2016, 05:28:36 AM
I don't doubt  that I could watch this be done to someone else, but when it comes to myself being cut open,  Well, I really don't think I could.
Unfortunately, the OR team often sets up drapes making it impossible to watch even with a local.  I had some hand surgery and all I could do was listed to someone in the OR talk about getting their kid  dog - and I really wanted to see what was going on.
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cassandra
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When all else fails run in circles, shout loudly
« Reply #20 on: November 15, 2016, 01:21:23 PM »
Quote from: Simon Dog on November 15, 2016, 06:18:22 AM
- and I really wanted to see what was going on.

Don't know about that, when my fistula was removed 31 yrs ago under local, there were no drapes, and I happend to turn my head, and looked straight into my arm as there were clamps keeping my skin up. Meat, purpely veins, creamy things, I nearly fainted. Feel a bit sick just thinking about it. More than 30 yrs ago and it still makes me feel queezy.

Be careful what you wish for  ;D
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Charlie B53
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« Reply #21 on: November 15, 2016, 03:50:08 PM »

That had to be a sight.  I wouldn't have a problem looking inside someone else.   ME,  Nap time.  Most likely.
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