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Author Topic: Halloween and Dialysis  (Read 2094 times)
kitkatz
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« on: November 03, 2016, 08:47:56 PM »

I sit in a dialysis center on Halloween.  They used to give us treats. I brought 50 bags of treats in to share with patients and wanted them passed out third and fourth shift.  I think they made it to only fourth shift, which has around 12 to 15 patients.  Now I know they are busy, but the secretary could have passed things out for me.  I am also mad that here I sit another celebration time of the year gone  And looking forward to changing my schedule around for the next two holidays.  Plus I miss nocturnal dialysis hours.  2pm to 9 pm is not too God awful but I still do not like it.  My sleep is all mixed up most days.  Just complaining I guess.  18 years of this crap and just more to look forward to.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: November 05, 2016, 07:21:34 AM »

Dear Kitkatz I'm sorry.
And as you know we're nearly in the same boat, only I'm at home, so I don't miss anything and am less dependent on people like that. I looked through your and my posts to find why you didn't do HHD, but couldn't find it (I suppose we're posting too much  ;D ) But I seem to remember needling and home turning into hospital. Well it is still 1 room that looks like a spare bedroom with a D machine, and a landing that looks like a warehouse. It's  not a perfect home, but it's mine to serve my life.
Needling is (in my case poor eyesight) a question of being very pissed of with situations like you mention, being even more pissed of with healthy people you are dependent on like you mention and sticking those needles in.

Lots of love, luck and strength, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #2 on: November 05, 2016, 02:23:55 PM »

That was a nice thing you did, doing up all those treat bags. Bet people love being around you. I see a lot of unhappiness in society these days but then when we come across someone like you it feels really great.  :thx;
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
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