Summer and Fluids

[kitkatz]

I love my friends, I really do, but when they tell me all about their thirst, and having to drink fluids, and needing refreshment throughout the day, I get a little frustrated.
I am going to make them do a fluid restriction on a hot day just to see what it is like and to get the complaining at me to stop.
I remind them that I am on a fluid restriction, so I am the LAST person to want to hear a complaint about drinking fluids all the time! 
I only wish I could have the amount of fluids they drink on a hot day or even a cool day.
Some days I want to scream, "who do you think you are complaining at?"
When I do say something it is like guilt is there because I complained at them.
Sigh!

[Charlie B53]

I am so fortunate on PD that I am not fluid restricted so much.   I quit drinking sodas I don't know how long ago.  Somewhere around 2000.  Switched to lemonade at the soda machine for a few years.  Since maybe 08 it's only been ice water.   I LIKE ice water.

I wouldn't know what to do if my fluids were restricted.  I don't know how much ice I could suck on.

In the hot weather growing up in the desert a wet light towel like a dish towel, hung around the neck, makes a big difference and helps cool me down.   Here in the humidity of the mid-West that doesn't work so much.   When out in the yard, garden, I can stop by the water faucet, run it a half minute then rinse my hands and forearms, that helps a bunch.


even the wrong shoes, seem hot.   

[kristina]

Sorry kitkatz, but sometimes even good friends have an "unsensitive day" and fail to understand our constant dilemma...
... For me the most important point is to resist "falling" for any offered food,
because most of it is cooked/baked with an enormous amount of salt and sugar and some other unspeakables...
... and the combination of it all creates a terrible thirst and makes life extremely difficult for anyone on liquid-restrictions ...
Avoiding any offered food has helped me a lot to "put up" with my own fluid restrictions and it really helps me to avoid getting overly thirsty...
... Mind you, this situation really "rubs it in" sometimes when I see all the others eating the most delicious looking food whilst I can only stand there looking at it
and sometimes a sad feeling "creeps in" and I feel a little sorry for myself...
Best wishes from Kristina.

[Charlie B53]

We need to start a movement to change they way we socialize.  How we treat guests.  Instead of

" Would you like a soda, cookie, etc.."    it should be more like


"Would you like a few ICE chips".     Or a lemon wedge.

[SutureSelf]

I love my friends, I really do, but when they tell me all about their thirst, and having to drink fluids, and needing refreshment throughout the day, I get a little frustrated.
I am going to make them do a fluid restriction on a hot day just to see what it is like and to get the complaining at me to stop.
I remind them that I am on a fluid restriction, so I am the LAST person to want to hear a complaint about drinking fluids all the time! 
I only wish I could have the amount of fluids they drink on a hot day or even a cool day.
Some days I want to scream, "who do you think you are complaining at?"
When I do say something it is like guilt is there because I complained at them.
Sigh!

I would be stunned (and happy) if my good friends and family  just remembered the nights I go in for dialysis.  Try to not let this bother you so much.  It's not that big of a deal.  Next time this happens try saying something like "yep, I remember those days well and hopefully after my transplant, I'll be bitching again just like you!  Having fluid restrictions is so overrated!"   It's our disease - not theirs.  Do you really want everyone to walk on egg shells around you? 

[kitkatz]

Not eggshells, but a little bit of knowledge would go along way wth family and long lasting friends.
Like when my Mom asks me before I travel for a week away from home: "Did you arrange your dialysis?"  Every damned time!
I am 53 years old and have traveled one to two times a year for the last 17 years on dialysis.  Sigh!

[Charlie B53]

LOL

Mothers are like that.  Yeah, they are.

It doesn't matter  how old you are, you're still her Baby Girl.

Get used to it.


I teash the hell out of my 40 y.o. Son.   On occasion he goes with me to the bank.  I be sure to ask the teller for a bolloon or sucker for my 'Baby Boy'.

He curses, but when I hand it over,     He takes it!


It is just a sign that she really cares about you and wants to be sure that you will be fine without her.

And no matter what we say and do, we are NEVER ready to lose a Parent.