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Author Topic: Things, they are a changing  (Read 3423 times)
kitkatz
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« on: March 14, 2016, 10:39:28 AM »
The news from my dialysis center is they are dropping the nocturnal program from the clinic.
So I had to choose new hours.  Either MWF for six hours or a guarantee of the full seven if I got TTHSat 10-5.
I took TTHSAt 10-5.   This going to steal three days out of my week now. 
I really do not want to make the change, but no choice was given to us, the nocturnal patients.
I really do not know what to think of it but am having to make peace with it.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
iolaire
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« Reply #1 on: March 14, 2016, 11:07:01 AM »
Quote from: kitkatz on March 14, 2016, 10:39:28 AM
Either MWF for six hours or a guarantee of the full seven if I got TTHSat 10-5.

Are you non US? I'm surprised to see a six or seven hour option...
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
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« Reply #2 on: March 14, 2016, 11:51:43 AM »
Quote from: kitkatz on March 14, 2016, 10:39:28 AM
The news from my dialysis center is they are dropping the nocturnal program from the clinic.
So I had to choose new hours.  Either MWF for six hours or a guarantee of the full seven if I got TTHSat 10-5.
I took TTHSAt 10-5.   This going to steal three days out of my week now. 
I really do not want to make the change, but no choice was given to us, the nocturnal patients.
I really do not know what to think of it but am having to make peace with it.

That you are in good humor as you read this.......................................
As I recollect, there are only a few 'Constant's ,  'Change' is one of them.
The getting used too process, is what trips my circuit breakers.    :banghead;
Ha, often times reaching the 'peace' stage is a huge undertaking, that disturbs ones peace.
Along with 'iolaire', wasn't aware of more than the usual four hour dialysis sessions.
Did some one , some place, get hit by the famous/infamous, kitkatz cannons!   :Kit n Stik;
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Be Well

"Wabi-sabi nurtures the authentic by acknowledging three simple realities: nothing lasts, nothing is finished, and nothing is perfect."

Don't ever give up hope, expect a miracle, pray as if you were going to die the next moment in time, but live life as if you were going to live forever."

A wise man once said, "Yesterday's the past, tomorrow's the future, but today is a gift. That's why it's called the present."
cassandra
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« Reply #3 on: March 14, 2016, 01:43:42 PM »
Hi Kitkatz did I miss a reason why you don't want to choose home hemo?

Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kitkatz
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« Reply #4 on: March 14, 2016, 01:58:19 PM »
Hubby and I would kill each other trying to do home dialysis.  He is Mr. Persnickety and I am not that picky.  He HATES technology so a dialysis machine would irritate him no end.
I just hate that my three days are being taken away from me.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Michael Murphy
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« Reply #5 on: March 14, 2016, 02:09:00 PM »
I know changes in routine stink, dialysis hands us the dirty end of the stick too often.  I deal by looking at the positives, you loose three days but still have four left. Take care of your self any change in routine increases stress.  I will say a prayer that this transition is as stress free for you as possible. 
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MooseMom
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« Reply #6 on: March 14, 2016, 03:55:24 PM »
Oh, I am so sorry to hear this.  I am assuming they are dropping the nocturnal program because there wasn't enough profit in it?  How many other patients at your clinic are affected?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Charlie B53
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« Reply #7 on: March 14, 2016, 10:47:23 PM »

I also hate change, unless I can find some good in it.   Otherwise I'm of the opinion that change is a necessary EVIL.


I hope you can find some good in this to help make it easier to accept.

Take Care,

Charlie B53
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willowtreewren
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« Reply #8 on: March 15, 2016, 12:25:53 PM »
Just absolutely stinks!  :embarassed: :boxing;

Yep, it will definitely cut into your days. I wish there were a better option.

 :grouphug; :cuddle; :grouphug; :cuddle;

Aleta
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
BobN
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« Reply #9 on: March 15, 2016, 01:01:21 PM »
So sorry kk.  We dialysis patients are definitely creatures of habit.  Something works for us, we don't want any alterations.

Hope something positive comes of this.  Hang in there.
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Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
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Laugh Every Chance You Get.
Rerun
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« Reply #10 on: March 17, 2016, 07:00:43 AM »
OMG I hope they don't drop ours.  Have you checked to see where the closest Nocturnal Center is from there?

I would hate to lose my days.  10 to 5?  Can you have lunch?  Then you won't sleep at night! 

That is just poopie!              :stressed;
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