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Author Topic: Just an update  (Read 2319 times)
pagandialysis
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« on: December 30, 2015, 08:51:52 AM »

Hi there everyone, long time no see.

Sorry that I haven't been around but I thought my S.S.I. was ending very soon so I went into full on job hunt mode and ignored everything that wasn't related to job applications or networking.

Luckily my S.S.I. didn't end! It turns out that it doesn't actually end one year after your transplant it just comes up for review. After my evaluation, they cleared me to stay on S.S.I. even though they know it's been one year since my transplant (I was VERY insistent about them knowing that). So I can relax just a little while I continue my job hunt.

Tomorrow is the one year anniversary of my transplant and I'm not sure what I want to do, but I know I want to do something special.

That's about it really.
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Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: December 30, 2015, 10:07:21 AM »

Great to hear from you! Great luck on that SSI! You certainly dodged that bullet!

Here is hoping for a wonderful 2016!

 :2thumbsup; :yahoo;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
SooMK
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« Reply #2 on: December 31, 2015, 05:47:49 AM »

Congrats on your kidney-versary! Happy new year.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
MooseMom
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« Reply #3 on: December 31, 2015, 08:51:51 AM »

So, how did you decide to celebrate??   :yahoo;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cassandra
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When all else fails run in circles, shout loudly

« Reply #4 on: December 31, 2015, 12:00:51 PM »

All the stress that must have caused! Sorry for everyone who has to go through that.
But happy kidneyversary, and all the best for 2016 honey.

Lots of love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
pagandialysis
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« Reply #5 on: December 31, 2015, 08:50:24 PM »

I went out and had a nice non-dialysis safe meal which was a steak sub, fries, and a milkshake. Then I bought a six-pack of beer and sat around writing and reflecting on my life all day. All and all it's a nice to be able to combine New Year's Eve and this anniversary, it really makes me stop and think.
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Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
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