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Author Topic: Started itching Tuesday  (Read 4190 times)
racko
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« on: October 24, 2015, 09:17:20 AM »
does it ever go away?
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cassandra
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When all else fails run in circles, shout loudly
« Reply #1 on: October 24, 2015, 03:37:12 PM »
It's probably your phosphates being high, you could ask for phosphate binders, and reduce your intake of phosphate rich foods (like cheese, nuts, meat milk         :angel; )

Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Rerun
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Going through life tied to a chair!
« Reply #2 on: October 25, 2015, 05:10:56 PM »
Yes... what Cass said.

               :flower;
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smcd23
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The patient, the baby and the donor - October 2010

WWW
« Reply #3 on: October 30, 2015, 05:42:31 PM »
How is your PTH? My husband got itchy when his PTH was out of whack because it caused everything else (calcium, phosphorus) to go out of whack too.
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
kitkatz
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« Reply #4 on: November 23, 2015, 09:46:42 PM »
I notice I itch if they are not rinsing the dialyzer really well.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
PrimeTimer
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« Reply #5 on: November 24, 2015, 10:32:40 AM »
Quote from: kitkatz on November 23, 2015, 09:46:42 PM
I notice I itch if they are not rinsing the dialyzer really well.
Are you talking about a "pre treatment" rinse when they prime the machine or rinsing the dialyzer in-between uses..?? I don't understand.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Alex C.
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« Reply #6 on: November 24, 2015, 02:33:21 PM »
Itching gets worse in the colder months. You could try one of those eczema itch cremes that go for about $10 at the drugstores.
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kitkatz
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« Reply #7 on: November 25, 2015, 11:10:31 PM »
Quote from: PrimeTimer on November 24, 2015, 10:32:40 AM
Quote from: kitkatz on November 23, 2015, 09:46:42 PM
I notice I itch if they are not rinsing the dialyzer really well.
Are you talking about a "pre treatment" rinse when they prime the machine or rinsing the dialyzer in-between uses..?? I don't understand.


The pre treatment rinses to get the chemicals out of it.
I do not use reuse.  Allergic to renalyn.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Michael Murphy
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« Reply #8 on: November 26, 2015, 03:23:04 AM »
The first 6 months I was on dialysis I was in toment from the itching on my fistula arm.  It was constant,they kept looking at my blood work and making diet changes.  I had a scheduled Dermatoligist visit and he looked at my arm and said two words contact  dermatitis. It turned out I was allergic to something being used on my arm.  They stopped using bedadyne and I bought my own tape and it got better very quickly.
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PrimeTimer
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« Reply #9 on: November 26, 2015, 09:38:33 PM »
Quote from: kitkatz on November 25, 2015, 11:10:31 PM
Quote from: PrimeTimer on November 24, 2015, 10:32:40 AM
Quote from: kitkatz on November 23, 2015, 09:46:42 PM
I notice I itch if they are not rinsing the dialyzer really well.
Are you talking about a "pre treatment" rinse when they prime the machine or rinsing the dialyzer in-between uses..?? I don't understand.


The pre treatment rinses to get the chemicals out of it.
I do not use reuse.  Allergic to renalyn.

Thanks for answering, kitkatz! I learn something new here every day! 
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Bungarian
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« Reply #10 on: November 27, 2015, 06:45:15 AM »
I am allergic to the tape and it itches every time. They tried every type of tape they had including the non allergic type and it still itches. I clean my arm with alcohol after removing the tape and it goes away.

Sometimes I get a rash and have to put a cream on it. I cannot remember the name of the cream.
« Last Edit: November 27, 2015, 06:46:28 AM by Bungarian » Logged
kitkatz
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« Reply #11 on: November 27, 2015, 02:07:01 PM »
I have to use the non-allergenic tape on my arm. By after a night of sweating that tape wears to me like iron.  I have tape "crap" on my arm constantly.
I literally have to take Purell to my arm and wipe it down to get the tape residue off of me.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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