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Author Topic: Transplant coordinator called me  (Read 51807 times)
PrimeTimer
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« Reply #200 on: September 09, 2016, 04:02:25 PM »

Words escape me right now. I don't know if the right words exist for this. I know that if my husband wanted a transplant and was told no I'd be hugging him real tight and telling him how sorry I feel about it and that I'd be there for him in whatever way he needs me to be. Your friends here at ihd are here for you and the group never seems to run out of hugs. You're such a strong and very wise lady, kudos for showing the rest of us that however challenging and tough it can be, life is worth living (bumps and all), simply because as people, WE are worth it. 
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
DialysisGoneFOREVER
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« Reply #201 on: September 09, 2016, 08:39:07 PM »

Words escape me right now. I don't know if the right words exist for this. I know that if my husband wanted a transplant and was told no I'd be hugging him real tight and telling him how sorry I feel about it and that I'd be there for him in whatever way he needs me to be. Your friends here at ihd are here for you and the group never seems to run out of hugs. You're such a strong and very wise lady, kudos for showing the rest of us that however challenging and tough it can be, life is worth living (bumps and all), simply because as people, WE are worth it.

We're dealing with an inherently EVIL system that oftentimes SEEKS ways to DENY you rather than approve you! I was denied by THREE different centers eventhough I'm PERFECTLY healthy besides the kidney! I FINALLY found a SANE center that realized I was perfectly healthy and a prime candidate for Tx but my body had to suffer through almost half a DECADE on a machine before I FINALLY got my Tx!
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Rerun
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Going through life tied to a chair!

« Reply #202 on: September 10, 2016, 11:03:03 AM »

Oh, low BP....  I have low BP too.  Who would have thought.  I use to take 3 pills for Hi blood Pressure? 

I'm so sorry Kit.   :pray; 
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nursey66
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« Reply #203 on: September 10, 2016, 11:42:31 AM »

My hubbys BP would get so low after dialysis he had to have IV fluids put back in before he could go home. Then his Neph started him on Midodrine , he would take 1 pill half way through the dialysis and it was very helpful, works great ! It's a RX that raises BP !
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kitkatz
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« Reply #204 on: September 10, 2016, 06:13:21 PM »

I have tried Midodrine. All my bP does with midodrine is give me a huge headache and wave at it as it takes a dive.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
cassandra
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When all else fails run in circles, shout loudly

« Reply #205 on: September 11, 2016, 03:00:25 AM »

Hi Kitkatz I'm just asking cos most times it worked for me. Cayenne pepper. Just a bit on everything you cook (so that it's only just spicy) In lots of articles it says it lowers BP, but it doesn't, it normalizes it (well, it did with me).

   :cuddle;


Love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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