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Author Topic: Scarring after a temporary catheter is removed  (Read 7130 times)
MyssAnne
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« on: March 28, 2007, 11:30:35 AM »

I had a temporary catheter for hemo put in my shoulder after Christmas. It was taken out about 3 weeks ago.
My question? How do I get it to heal without so much pain? It aches, and hurts still, when I use that shoulder.
I was gonna ask my nurse then I thought...I have YOU guys!!!
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Sara
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« Reply #1 on: March 28, 2007, 02:17:33 PM »

Are you asking about the scarring or pain?  If it's scarring, Joe still has a nickel-sized indented scar from when his was put in near his sternum, but I don't think he has a noticeable scar from the ones in his neck/shoulder area. 
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Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
MyssAnne
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« Reply #2 on: March 28, 2007, 04:54:21 PM »

Sara, I was more concerned about the pain. Scarring doesn't bother me. I just talked to my sisters, and a friend tonight, they have had experience with scarring and healing from deep incisions/wounds. They say it takes a long time to heal from the inside out. One sister has a scar on her neck from neck surgery. 2 years later it still 'catches' and causes her to be short of breath for a few minutes. All she can do is try to relax the muscles. I guess that's my answer, really. Only time will fully heal it.
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meadowlandsnj
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« Reply #3 on: March 28, 2007, 05:38:08 PM »

I had a temporary catheter for hemo put in my shoulder after Christmas. It was taken out about 3 weeks ago.
My question? How do I get it to heal without so much pain? It aches, and hurts still, when I use that shoulder.
I was gonna ask my nurse then I thought...I have YOU guys!!!

I just had  mine taken out and it will take a few days to heal.  When they took mine out the guy who pulled it really leaned on my shoulder bone to get at it and that hurt a while. 

Donna
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ILOVEFLUID
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« Reply #4 on: March 28, 2007, 11:56:17 PM »

I had a total of 23 temporary and permanent catheters for hemo.  They were all in my neck or chest.  I had no pain but they all scarred.
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kitkatz
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« Reply #5 on: March 29, 2007, 08:41:54 AM »

A little pain in your shoulder is normal, but a lot of pain, should be checked out.
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« Reply #6 on: March 30, 2007, 04:25:20 AM »

I would be getting it checked out, just to rule out infection or any other problems.
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okarol
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« Reply #7 on: March 30, 2007, 08:51:20 AM »

I agree about getting it followed up on. Pain can mean a blockage due to scarring and that can create problems later on. A good vascular doc can see what's up with ultrasound.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
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Found a swap living donor using social media, friends, family.
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Amanda From OZ
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« Reply #8 on: March 31, 2007, 07:36:40 AM »

Hey,

Does your arm feel saw and swollen? If so i would get a scan done... it could be a blackage (clot) like Karol said.

Amanda
xxoo
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MyssAnne
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« Reply #9 on: April 02, 2007, 04:47:34 AM »

No, my arm doesn't feel swollen, it's just that area where the catheter was implanted. I see my doctor
next week for clinic, I'll talk to him about it. Other wise, I do feel better, so that's the good part!
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Bette
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« Reply #10 on: April 10, 2007, 06:05:18 AM »

Is there anything one can do about the scarring?  I have a horrible scar on my chest from the temp catheter.  I can't wear low cut tops anymore.  I am so mad.  I am thinking about getting a tatoo to cover up the scar.
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Sluff
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« Reply #11 on: April 10, 2007, 07:20:19 AM »

A tattoo would be an excellent choice. i saw a special on tattoos once on the A&E channel about some women who used tatoos to help themselves with self image after a mastectomy.
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okarol
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« Reply #12 on: April 10, 2007, 07:53:17 AM »

There are quite a few ways to deal with scars - this is from a dermatologist http://www.dermadoctor.com/pages/newsletter65.asp
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MyssAnne
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« Reply #13 on: April 10, 2007, 11:13:29 AM »

Had clinic Monday, my nurse looked at the scar, it is healing nicely, just very tender still. The exit site is NOT
doing well, the cuff on the tube is showing and it STINKS! Ugh. So my neph is calling the surgeon to tell him
HE is not happy. I am then to call the surgeon today to set up an appointment hopefully for next week so he
can fix it!!!
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angela515
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« Reply #14 on: April 10, 2007, 11:18:19 AM »

Had clinic Monday, my nurse looked at the scar, it is healing nicely, just very tender still. The exit site is NOT
doing well, the cuff on the tube is showing and it STINKS! Ugh. So my neph is calling the surgeon to tell him
HE is not happy. I am then to call the surgeon today to set up an appointment hopefully for next week so he
can fix it!!!

I had my cuff showing for almost a whole year while on PD... they left it like it was because once it was out and showing, we taped it up differently so that it would no longer be tugged or moved, and it stayed the same length out, meaning it never came out anymore than that.  If it had, they would of eventually fixed it... however, depending on the type of tube they put in, there is *usually* (not always) 2 cuffs... if this is only your first cuff out, you should and may still have another one in there to hold it just fine.  :twocents;
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Live Donor Transplant From My Mom 12/14/1999
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MyssAnne
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« Reply #15 on: April 10, 2007, 11:41:36 AM »

Angela, did it smell? Mine does. It's a nasty smell. I cover it with a bandage and yes, it is just the first one
it's not only that...the exit site is not growing right over it.  Altogether, it makes for an uncomfortable
area!
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angela515
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« Reply #16 on: April 10, 2007, 11:46:58 AM »

No, mine didn't smell. I was just trying to save ya from having to have to have it fixed... hehe...  I hope it feels better once fixed hun :)
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
MyssAnne
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« Reply #17 on: April 11, 2007, 07:07:16 AM »

Thank you Angela! I hope so too. Oh! I gotta call! Thanks for reminding me!! I'll do that right now!
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Chicken Little
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« Reply #18 on: April 11, 2007, 02:54:38 PM »

How did they remove your temp catheter from your neck?  Was it done in the doctor's office, hospital?  Where you out or was the site anesthized?
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Adam_W
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« Reply #19 on: April 11, 2007, 03:25:36 PM »

I just had to have my catheter replaced because the suture came loose, and I was also getting very bad blood flow (even for a permacath). The site was injected with Lidocain, and I was given a sedative. The procedure itself didn't hurt at all, except for the Lidocain injection (and even that wasn't too bad), but right now I'm having a fair amount of pain, especially when I move my right shoulder, or turn my head all the way to the left. I hope the pain eases, at least somewhat, by tomorrow when I have my next treatment. I'll be getting my fistula on Monday, so I'll be able to ditch the permacath for good (hopefully) in a few months. Take care.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
MyssAnne
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« Reply #20 on: April 11, 2007, 05:20:57 PM »

Chicken (and Adam),
Adam has just described how they take the temporary
catheter out very well, all I will add is that you have to
wait about 2 days before you can get a shower. I would
also suggest saline solution if the gauze padding is stuck to
the inscision. Mine was, it took a lot of soaking with
the solution to get it off. Mine has been out for almost
a month now, it's still sensitive, and every now and then
my shoulder is sore. It does go away though.
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Rerun
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« Reply #21 on: April 11, 2007, 07:22:33 PM »

I had a total of 23 temporary and permanent catheters for hemo.  They were all in my neck or chest.  I had no pain but they all scarred.

You must look like a machine gun victim.

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Chicken Little
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« Reply #22 on: April 11, 2007, 07:35:41 PM »

Chicken (and Adam),
Adam has just described how they take the temporary
catheter out very well, all I will add is that you have to
wait about 2 days before you can get a shower. I would
also suggest saline solution if the gauze padding is stuck to
the inscision. Mine was, it took a lot of soaking with
the solution to get it off. Mine has been out for almost
a month now, it's still sensitive, and every now and then
my shoulder is sore. It does go away though.

The hemo tech I had in the hospital used Biopatch on me, because my diabetes make me a slow healer and an infection magnet. http://www.jnjgateway.com/home.jhtml?loc=USENG&page=viewContent&contentId=09008b9880e667ac&parentId=09008b9880e667ac

They are great.  They don't stick at all and absorb any oozing.  I got a bunch free in the hospital, but my prescription coverage won't cover them, so I'm paying about $10 piece for the little buggers now.  It's worth it to me though.  I plan on using them on the site when they take the cath out of my neck.
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