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chuckdims
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« on: December 10, 2014, 01:44:46 PM »
I have been a long time reader of the forums, but finally decided to join because I wanted to get involved and also I have a few questions.  Here is a little bit about me.

I am 28 years old, am married, and have two children (four and eight years of age).  I have Stage V FSGS with little to no residual kidney function left.  I was born with a defect of the ureters which caused Stage V reflux of urine on both sides.  Once I began to be potty trained, the urine backed up from my bladder into both kidneys.  I had some sort of an infection, it backed up into my kidneys, and caused scarring.  The scarring slowly took over my kidneys, I lost function, and started dialysis in September 2013.

I did In-Center Hemo for a while before switching to Home Hemo on NxStage.  I have been on NxStage for a while now and really like it.  I have no plans to ever go back In-Center if I can help it.
« Last Edit: December 10, 2014, 01:46:06 PM by chuckdims » Logged
1986 - Born w/ Deformed Ureters
1989 - Bilateral Reimplantation of Ureters (Emory University -- Atlanta, GA USA)
2004 - Reduced Kidney Function Noted on Bloodwork, Kidney Biopsy Performed, Diagnosed w/ Stage III FSGS
2012 - AV Fistula Placed (University of Kansas -- Kansas City, KS USA)
2013 - Started In-Center Hemodialysis (September)
2014 - Started Home Hemodialysis on NxStage (July)
Zach
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"Still crazy after all these years."
« Reply #1 on: December 10, 2014, 01:50:22 PM »
Welcome to our community!
 :beer1; :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
chuckdims
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« Reply #2 on: December 10, 2014, 01:52:16 PM »
Thanks, Zach!
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1986 - Born w/ Deformed Ureters
1989 - Bilateral Reimplantation of Ureters (Emory University -- Atlanta, GA USA)
2004 - Reduced Kidney Function Noted on Bloodwork, Kidney Biopsy Performed, Diagnosed w/ Stage III FSGS
2012 - AV Fistula Placed (University of Kansas -- Kansas City, KS USA)
2013 - Started In-Center Hemodialysis (September)
2014 - Started Home Hemodialysis on NxStage (July)
Darthvadar
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« Reply #3 on: December 10, 2014, 01:54:33 PM »
Hello Chuckdims....

Thanks for moving on from being a lurker to a member.... Great to see you, and you're very  :welcomesign; to IHD...

You'll like it here... We're friendly, and helpful....

Visit and post often.... We love the chatterboxes!...

God bless....

Darth... Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Rerun
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Going through life tied to a chair!
« Reply #4 on: December 12, 2014, 09:48:57 PM »
Hi, so glad you joined us. 

Rerun, Admin.    :welcomesign;
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SooMK
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« Reply #5 on: December 13, 2014, 05:40:49 AM »
Welcome Chuckdims!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
cassandra
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When all else fails run in circles, shout loudly
« Reply #6 on: December 13, 2014, 08:32:40 AM »
Welcome to the site Chuckdims

       :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #7 on: December 13, 2014, 07:24:58 PM »
Welcome, chuckdims! You certainly have your hands full with 2 kids and doing home-hemo. Kudos! Staying active and keeping busy probably helps your overall health. My husband does home-hemo using the NxStage cycler and works fulltime. We started the day after Christmas last year. So far, so good. Good luck to you!
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
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