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Author Topic: New here and to dialysis.  (Read 5995 times)
Zero
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« on: November 01, 2014, 12:45:13 PM »

Hello there.
I am 31yrs old and just started dialysis 2 weeks ago. I have had les than 10% for the last year and went to the hospital 2 weeks ago super sick and it ended up that my potassium was 10. Needless to say I started dialysis the next day. I found out my kidneys were junk when I was 24 because I was denied life insurance when I was having my 2nd kid. I was told I had a year or two of function and its lasted till now. I work full time and am taking a few weeks off for my in home training and then intend to go right back to it. I love my job btw. I feel way better now that I am on dialysis other that the headaches. I have 2 kids an 8 year old daughter and a 6 year old son. I can't think of anything else to say now, lol. I hope to learn and make good friends here.


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cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: November 01, 2014, 12:50:39 PM »

Welcome to the site Zero


            :welcomesign;


I'm always impressed with D'ers working FT, and raising a family.

Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Darthvadar
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« Reply #2 on: November 01, 2014, 01:19:23 PM »

 :welcomesign; Zero, and Hello!...

Good that you've found us... Hope things get better for you soon... Visit and post often... We're here for each other!....

Darth... Moderator....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
SooMK
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« Reply #3 on: November 01, 2014, 03:43:16 PM »

Welcome! You have a wonderful "can do" attitude.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Joe
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« Reply #4 on: November 01, 2014, 04:11:00 PM »

Hi there Zero, and welcome to the site.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
Zero
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« Reply #5 on: November 03, 2014, 02:20:38 PM »

Thank you all.  I actually feel better since starting then I remember for a long time, other than the new diet.  Lol
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iolaire
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« Reply #6 on: November 04, 2014, 05:50:54 AM »

Welcome, stay positive, it’s quite amazing that we can keep on living with low/no kidney function.  See the post from kitkatz today noting 16 years on dialysis – the filtering process works and is a long term solution.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Ritamghosh
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share the pain gain strength

« Reply #7 on: November 04, 2014, 08:43:50 AM »


Dont worry..i am also new to dialysis and my dialysis doesn't start yet....can anyone tell me how to create a new thread here...???
 
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God give us strength to fight the battle and save the "son of God"
cassandra
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When all else fails run in circles, shout loudly

« Reply #8 on: November 04, 2014, 01:49:46 PM »

Dear Ritamghosh just go to the homepage, then the part you want to post in, like pre-dialysis for example, and it will say somewhere at the top 'new topic'

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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Ritamghosh
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share the pain gain strength

« Reply #9 on: November 04, 2014, 10:36:31 PM »

Thank you mam...really appreciated :thx;
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God give us strength to fight the battle and save the "son of God"
dialysisuser82
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« Reply #10 on: November 20, 2014, 05:33:07 PM »



Glad you find this website.  There are many on this forum who can give you great advice and support!

I am new on this website and yet I have been on dialysis for the past 32 years with no desire for transplant.  Zach is another member who is a veteran like me, 32 years on dialysis.

So no fear... You will get better because dialysis will help remove your toxin. :shy;

     
         - Do you want to know who you are? Don't ask. Act! Action will delineate and define you.  ---Thomas Jefferson---
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MatheaFord
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WWW
« Reply #11 on: November 20, 2014, 08:05:14 PM »

I am glad that you are feeling better.  Leading up to dialysis, many people are fearful of the unknown.  Once it's started and you get adjusted, having the wastes removed from your blood makes your entire body feel better.  The wastes being removed allow your body to get back to some normalcy.  Even if it was a shock, you seem to have adjusted well.  And you still have options - you can change to different types of dialysis once you are ready. 
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Zero
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« Reply #12 on: November 30, 2014, 10:13:22 AM »

I am glad that you are feeling better.  Leading up to dialysis, many people are fearful of the unknown.  Once it's started and you get adjusted, having the wastes removed from your blood makes your entire body feel better.  The wastes being removed allow your body to get back to some normalcy.  Even if it was a shock, you seem to have adjusted well.  And you still have options - you can change to different types of dialysis once you are ready. 
Thx for the input what other forms do you mean?  I tried pd had the cath installed and got infected twice.  I have 2 little kids I am active with again. Pd had to many restrictions.  I should say I still p so fluid intake isn't as big of a problem.  Just curious if there was something I'm missing...  I am a newborn to this.
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obsidianom
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« Reply #13 on: November 30, 2014, 12:47:13 PM »

I am glad that you are feeling better.  Leading up to dialysis, many people are fearful of the unknown.  Once it's started and you get adjusted, having the wastes removed from your blood makes your entire body feel better.  The wastes being removed allow your body to get back to some normalcy.  Even if it was a shock, you seem to have adjusted well.  And you still have options - you can change to different types of dialysis once you are ready. 
Thx for the input what other forms do you mean?  I tried pd had the cath installed and got infected twice.  I have 2 little kids I am active with again. Pd had to many restrictions.  I should say I still p so fluid intake isn't as big of a problem.  Just curious if there was something I'm missing...  I am a newborn to this.
If PD didnt work out you can at least consider home hemo. That gives you more freedom of when you do dialysis. If you want info onit, just ask.
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
Simon Dog
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« Reply #14 on: November 30, 2014, 01:19:21 PM »

+1 to Home Hemo for those who can't do PD.     It takes commitment and work, but if you are willing to take on the responsibility it can make a huge difference in your life.   It's not for everybody - some people prefer to just stick their arm out and let someone else handle the details.
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PrimeTimer
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« Reply #15 on: November 30, 2014, 05:01:28 PM »

- some people prefer to just stick their arm out and let someone else handle the details.
I'm kind of that way when it comes to haircuts.


A Happy Belated Welcome, Zero! Before you know it, you'll be repeating things similar to Dwight Yoakam's song "Turn It On, Turn It Up, Turn Me Loose".
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Gerald Lively
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« Reply #16 on: November 30, 2014, 11:44:13 PM »

Zero:
Here is how dialysis works; you sit down and don't move for four hours then you get up.   Uh, you get to do that fun thing about three times a week.  Before you know it the nurses will look surly and you will drink a gallon of water before a session just so you can make the nurses unhook you at least once during those four hours so you can go to the bathroom.  If you are abnoxious enough the doctor will declare you cured and you leave.  Worked for me.
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Hodgkin's Lymphoma - 1993
Prostate Cancer - 1994
Gall Bladder - 1995
Prostate Cancer return - 2000
Radiated Prostate 
Cataract Surgery 2010
Hodgkin's Lymphoma return - 2011 - Chemo
Renal Failure - 2011
Renal Function returned after eight months of dialysis - 2012
Hodgkin's Lymphoma returned 2012 - Lifetime Chemo


Human hopes and human creeds
have their roots in human needs.

                          Eugene Fitch Ware
Simon Dog
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« Reply #17 on: December 01, 2014, 07:51:22 AM »

Zero:
Here is how dialysis works; you sit down and don't move for four hours then you get up.   Uh, you get to do that fun thing about three times a week.  Before you know it the nurses will look surly and you will drink a gallon of water before a session just so you can make the nurses unhook you at least once during those four hours so you can go to the bathroom.  If you are abnoxious enough the doctor will declare you cured and you leave.  Worked for me.
You forgot a few steps:

- Negotiate your ultrafiltration with the tech or RN.
- Check the filter,acid bath concentration, bicarb and sodium settings on the machine to make sure they are correct
- Verify that you will get the medications you are scheduled for (if any)
- Verify any scheduled labs will be drawn
- Negotiate with the RN running the clinic to correct mistakes

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Zero
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« Reply #18 on: December 01, 2014, 02:42:28 PM »

Lol hilarious. Except starting Wednesday I do it at home so I would screw myself my being mean as the nurse/patient. I was lucky enough to have a great clinic and nurse... So far.
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Simon Dog
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« Reply #19 on: January 05, 2015, 02:16:37 PM »

Lol hilarious. Except starting Wednesday I do it at home so I would screw myself my being mean as the nurse/patient. I was lucky enough to have a great clinic and nurse... So far.
Talking to yourself is OK.
Arguing with yourself is suspect.
If you lose arguments with yourself, you have a problem.
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