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Author Topic: Needling at last another step forward to home haemo  (Read 5695 times)
Sugarlump
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10 years on and off dialysis
« on: October 18, 2014, 12:37:43 AM »
I have been pushing for home haemo for 2 years. my partner has trained up to a certain leve (lining machine, programming, running during dialysis)l but then I got sick, then I had line problems, then I had heart problems but
things have stabilised and we restarted training.
This week he started needling me (under guidannce) First day bottom needle, second day top needle, third day top needle (my bottom one can be a little tough to push needle through!)
I am so proud of my partner. Three years ago,a blood test would make him feel faint!!!
And when he gets the needles in he is really quite gentle!!! all those hours of watching me be put on weren't wasted.
One baby step nearer getting home Yay  :cuddle;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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« Reply #1 on: October 18, 2014, 01:54:11 AM »

Well done Sugar and partner!

I do hope you are ready for home haemo soon and I do wish you both very good luck!

Best wishes from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
obsidianom
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« Reply #2 on: October 18, 2014, 04:21:44 AM »
Quote from: Sugarlump on October 18, 2014, 12:37:43 AM
I have been pushing for home haemo for 2 years. my partner has trained up to a certain leve (lining machine, programming, running during dialysis)l but then I got sick, then I had line problems, then I had heart problems but
things have stabilised and we restarted training.
This week he started needling me (under guidannce) First day bottom needle, second day top needle, third day top needle (my bottom one can be a little tough to push needle through!)
I am so proud of my partner. Three years ago,a blood test would make him feel faint!!!
And when he gets the needles in he is really quite gentle!!! all those hours of watching me be put on weren't wasted.
One baby step nearer getting home Yay  :cuddle;
Good job.  Keep up the good work. Soon it will be routine.
Logged
My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: October 18, 2014, 05:09:31 AM »
Fantastic news!!!! Real proud of you both


       :yahoo;              :cheer:
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
amanda100wilson
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« Reply #4 on: October 18, 2014, 11:46:01 AM »
Any reason why you cannot cannulate yourself?  It is empowering.
Logged
ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
Michael Murphy
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« Reply #5 on: October 18, 2014, 01:05:12 PM »
As much as I admire your accomplishment I must admit I admire your partners more I imagine it is tough to stick that large needle in someone you care for.  However it appears you both are doing well so  :beer1; to you both.
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Sugarlump
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10 years on and off dialysis
« Reply #6 on: October 19, 2014, 01:00:05 AM »
Quote from: amanda100wilson on October 18, 2014, 11:46:01 AM
Any reason why you cannot cannulate yourself?  It is empowering.

No I can't because it is a high up (about 4 and 5 inches above the elbow on the inside of my left arm.) I can't get the angle right  >:(
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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10 years on and off dialysis
« Reply #7 on: October 19, 2014, 01:09:23 AM »
Quote from: Michael Murphy on October 18, 2014, 01:05:12 PM
As much as I admire your accomplishment I must admit I admire your partners more I imagine it is tough to stick that large needle in someone you care for.  However it appears you both are doing well so  :beer1; to you both.
Oh I do too ... he is a star. When we first met, I was five months on from having a transplant and relatively fit and well. Five months later, it all went rapidly downhill as my transplant failed from antibody rejection.
He could have walked then...or bailed out in the face of so much hospital treatment and procedures and my poor health. He didn't. He stuck it out through thick and thin, and even when I caught a MSSA infection and was extremely poorly, needing 24  hour care, he was still there. Always cheerful and supportive. Doing everything that needed to be done.
He volunteered to train up straight away when we had to recommence dialysis and volunteered his kidney too. I am not yet back on list (due to ill health) and it unlikely to be good enough match but we might be able to go onto the swopsies list ... finding me a very close match may be very difficult.
I tell him everyday how much I love him.
He taught me what real love is by his actions.
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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Posts: 5530
« Reply #8 on: October 19, 2014, 01:53:33 AM »
You are both very lucky to have met each other...
and your relationship sounds like a very rare one these days...
I agree with you that it is the (often practical) actions that count so much...
... I do wish you both many happy years together,
and I send you my best wishes, Kristina.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Ted
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My partner and I in Bali, Indonesia
« Reply #9 on: October 19, 2014, 06:27:41 AM »
How very exciting, I am just learning my needling now also.  I am doing myself, and so far have had about three sucesses, somedays just don't want to work for me, but I suspect that will end as my fistula continues to develop.  I am very happy for you and your partner, we are all getting closer to home!  Ted
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Sugarlump
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10 years on and off dialysis
« Reply #10 on: October 19, 2014, 01:00:05 PM »
One thing I have learnt with my fistula is two days are never the same, sometimes the needles slide in easy and other days, it can be tough and require quite a bit of pressure and absolutely correct angle of the needle to go in. Also my fistula direction subtly changes :)
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
PrimeTimer
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« Reply #11 on: October 19, 2014, 02:53:07 PM »
Quote from: Sugarlump on October 19, 2014, 01:00:05 AM
Quote from: amanda100wilson on October 18, 2014, 11:46:01 AM
Any reason why you cannot cannulate yourself?  It is empowering.

No I can't because it is a high up (about 4 and 5 inches above the elbow on the inside of my left arm.) I can't get the angle right  >:(

My husband can relate to that. His fistula is in the same place as yours. He says it's hard because it's like having to look at something with your head upside down. From his view, what looks "left" to him looks "right" from my viewpoint. That's why I use my hand to help guide his, kind of like doing a "tandem stick".
Logged
Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
JW77
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WWW
« Reply #12 on: October 28, 2014, 04:16:56 PM »
Oh Bravo to you both..

At some point I'll have to train for a new machine (Fres) as that's what they use at the unit I'll be going to, if and when I relocate to live with my partner:)  Its gonna be scary, and she's willing to be involved in my care, not needling (I've been doing that on and off since I was 10!) but its still going to be a HUGE step for us both..
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Creator of London Kidney Social: https://www.facebook.com/groups/LondonKidneySocial/

Medical stuff, includes 3 kidneys, cancer, meningitis, 1 heart attack and its long and not that interesting! Maybe one day I'll write a book.! `

I have an eclectic taste in music, I fly kites, I read, write, tog, blog and have a bit of a passion for multicellular eukaryotes, and kites.

Founder of Kites4Kidneys - Start making your kites for WKD 2015..
https://www.facebook.com/kites4kidneys
Sugarlump
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10 years on and off dialysis
« Reply #13 on: October 29, 2014, 09:04:53 AM »
I kind of like the fact that we share the dialysis, not literally of course, but by him being fully involved.
Its become our dialysis rather than my dialysis.
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #14 on: November 13, 2014, 07:43:34 AM »
Update : Drew is now getting both needles in and we are waiting for home visit from Home Therapy Manager Electrician and Plumber to work out where machine will go and sort out water softener...
Getting closer to reality....
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
obsidianom
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Posts: 1271
« Reply #15 on: November 13, 2014, 08:09:25 AM »
Quote from: Sugarlump on November 13, 2014, 07:43:34 AM
Update : Drew is now getting both needles in and we are waiting for home visit from Home Therapy Manager Electrician and Plumber to work out where machine will go and sort out water softener...
Getting closer to reality....
Great news. You will love home hemo.
Logged
My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
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