9gkids
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What next?
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« on: March 19, 2014, 05:09:57 PM » |
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Where to start? After peeing blood on a trip, in the early 90's, I saw a doc. He said I had a kidney stone. Turns out I didn't have a kidney stone. Got a new doc. He said I had PKD. That was about 20 years ago. My parents didn't have PKD. My kids, both in their 40's, don't have PKD. In Viet Nam (66-67), I was exposed to Agent Orange and Radiation. I may be one of those spontaneous PKD people, perhaps from my experience in Viet Nam. My kidney function got down around 11% last Oct (2012). The VA (they have been terrific) put a catheter in me and I started manual PD. 4 times a day. Eventually, four months later, the fluid wouldn't stay in the peritoneal cavity, so I had to stop. They took out the tube (hurray), then put in a fistula. That fistula clotted, so I got another fistula. My system had gotten cleaned out on PD, so I was able to stay off dialysis for about a year. February 25, 2014 I started HD. The fourth time I was infiltrated. The fifth time I was infiltrated. After some ultrasounds, and other tests, it looks like I may need yet another fistula. The next procedure is scheduled for Monday. My fingers are crossed that this one works.
I have been poking around this forum for over a year, and finally decided to join in. Thanks for having me!
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