So I have done a lot of research on this. Bottom line each state is different. About 30 states force insurers that sell these policies in their respective states to offer them to under 65 year olds with ESRD. In my state of Tennessee they are available by state law but they charge much higher premiums than they charge to folks 65 or older. Just trying to read the rate chart gave me a headache as you can see here: http://tnmedicarehelp.com/Images/rates2012.pdf I think the bottom line is everyone must check out their states laws on this. There is lobbying going on to make the federal government mandate medigap coverage in all states for ESRD patients under 65. Who knows where that will go. For me when the time comes, I will go with the High Deductable Plan F from Colonial Penn Life with a current yearly premium of 1470 and a yearly deductible of about 2000. This along with medicare A, B and D should cover everything for about 500 a month if you average in the yearly deductible. Of course if you have employer or private insurance along with medicare this issue is probably moot to you.
I live in Florida and I pay $600 a month for Blue Cross. I also have Medicare and on dialysis. I've had several hospitalizations and never had to pay out-of-pocket.
You may not join an Advantage Plan if you are under 65. I think they also keep you out if you turn 65 while on dialysis. If you start dialysis while already on dialysis I believe they have to keep you but you cannot switch to a different Advantage plan even if yours stops serving your area.
As a doctor and patient , I hate the Medicare Advantage plans. They are run by profit making insurance companies with many rules and exclusions and controls that Medicare doesnt have . I would never be on one or have my wife on one . We use Medicare and a companion(medigap) plan for her. It is safer as the rules are set by the govt. and a profit making CEO cannot dictate the coverage and exclusions. I hate dealing with the Advantage plans as a doctor as they all have different rules . They drive me nuts . Medicare is much more straight forward.