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Author Topic: Annoyed with ExpressScripts  (Read 5848 times)
Deanne
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« on: March 04, 2013, 02:05:39 PM »

My neph submitted a prescription for Sensipar on 2/22 or 2/25. It was late in the day on 2/22 when I called to tell her I needed a new prescription. I'm now out of pills and called my neph's office to see if they knew anything about my not receiving it yet. The only information they have is confirmation that the prescription was submitted, so ExpressScripts has just ignored it instead of following up to let anyone know if they need additional authoration or something else is holding it up. It was a hassle getting it filled last year, too. Do the insurance companies think the patients will just go away if they ignore us? (don't answer that - I guess we would go away. But if they kill us off by ignoring us, they wouldn't collect their premiums anymore)  :Kit n Stik;
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
MooseMom
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« Reply #1 on: March 04, 2013, 10:26:26 PM »

 ::)  How do people who are really, really sick cope with this sort of bureaucratic nightmare?

I swear, coping with CKD is a full time job, and the pay is crap.  And absolutely no vacation nor benefits, whatsoever.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
SooMK
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« Reply #2 on: April 29, 2014, 12:17:11 PM »

Having just "crossed over" to Medicare this year (due to being 65) and then having a transplant a month later I have asked myself (and other, non listening people) the same question--how on earth do people deal with this stuff? It's like we take the people least able to process this information and heap on all sorts of rules and co-pays and doughnut holes and smoke and mirrors and say "good luck with that". I've been reeling from the cost of Valcyte, thinking I must be in the doughnut hole, but no, $776 is my cost BEFORE I go into the doughnut hole. At least with Medicare I can go online and see my status but with Part D I have to wait for the summary. Or I can call my Part D provider where I can speak to someone who pretty much implies I'm some kind of moron as I struggle to understand what's going on. I had ExpressScripts before Medicare but since I never had dialysis it was just the usual CKD Stage 4 meds. I still didn't like them. A doctor inadvertently submitted a prescription for me when it should have been for someone else (there's good things and bad things about having a common name) and Express Scripts was sympathetic but useless. My credit card was charged and the drug sent to me and that was that. Fortunately it was only $10 but it doesn't take a genius to see that all of us could get excellent health care if we weren't paying for so much administration--complex, inefficient, paper destroying administration.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Simon Dog
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« Reply #3 on: April 29, 2014, 02:54:01 PM »

My credit card was charged and the drug sent to me and that was that.
Did you file a claim for an unauthorized charge with your credit card company?
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Simon Dog
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« Reply #4 on: April 29, 2014, 02:55:08 PM »


My credit card was charged and the drug sent to me and that was that.
Did you file a claim for an unauthorized charge with your credit card company?


Quote
But if they kill us off by ignoring us, they wouldn't collect their premiums anymore
A parasitic organism needs to live off the host, but not suck so much blood that the host dies.
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Shaks24
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« Reply #5 on: April 29, 2014, 03:55:16 PM »

I use Wellcare Extra PDP. 57 bucks a month on the premium. So far 6 of my prescriptions are no charge at all. One is like 28 for a 3 month supply. The best thing is that I do everything online and they have never missed a beat. The only thing I do not get from them is Calcitriol which I get from Fresenius as part of the bundle program.
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
SooMK
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« Reply #6 on: April 29, 2014, 04:11:58 PM »

Simon Dog: I didn't file a claim with my credit card company. I thought about it but I just didn't want to be bothered.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Ninanna
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« Reply #7 on: April 30, 2014, 10:16:24 AM »

I've been reeling from the cost of Valcyte, thinking I must be in the doughnut hole, but no, $776 is my cost BEFORE I go into the doughnut hole.

My insurance paid out $7,811 for a one month supply of that. It is by far the most expensive drug I've taken.
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Spring 2006 - Diagnosed with IgA nephropathy
June 2013 - Listed on transplant list
Feb 4th 2014 - Kidney and bone marrow tx (both from my mother) as part of a clinical trial at Hopkins
Shaks24
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« Reply #8 on: April 30, 2014, 01:48:05 PM »

Sounds like its something beyond a Tier 4 drug.
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
Ninanna
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« Reply #9 on: April 30, 2014, 02:08:22 PM »

It's a specialty drug and it doesn't have a huge market, which is why it costs so much (the smaller the market combined with short patent periods then the more expensive the drug).  You won't be on it long term though and besides which the patent expires this time next year.
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Spring 2006 - Diagnosed with IgA nephropathy
June 2013 - Listed on transplant list
Feb 4th 2014 - Kidney and bone marrow tx (both from my mother) as part of a clinical trial at Hopkins
SooMK
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« Reply #10 on: April 30, 2014, 02:52:39 PM »

I am grateful my transplant was early in the year. I'll be done with Valcyte by year's end. I think of people who are transplanted toward the end of the year and all the counters get reset with the new year. Yikes! Although it sounds like that shouldn't be an issue next year with the patent expiring. Yah!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
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