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Author Topic: What affects your self esteem the most?  (Read 27135 times)
flip
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« Reply #25 on: August 07, 2008, 07:34:33 AM »

Having to leave Happy Hour after only 30 minutes because I've reached my fluid limit.  :beer1;
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That which does not kill me only makes me stronger - Neitzsche
KICKSTART
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In da House.

« Reply #26 on: August 07, 2008, 11:13:15 AM »

Looking like im 6 months pregnant ! (PD) !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
stauffenberg
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« Reply #27 on: August 07, 2008, 01:40:57 PM »

Before developing renal failure, which was quite sudden in my case, I had enjoyed an extremely dynamic existence, teaching in two different countries, flying frequently among three countries, getting to know lots of students and colleagues and generally having a fascinating and energetic life.  I also looked much younger than my actual age, which caused people to interact with me as though I were my apparent age.  Of course dialysis suddenly changed all of that, and I the change was dramatically brought home to me when one day I was out walking with my 80 year-old father and found I had trouble keeping up with him!  The other single event which was most shocking to my self-perception came one day when I was visiting the podiatrist for a toe infection.  The podiatrist's assistant looked at my feet, commented on how well my toes were trimmed, and asked me who I had to help me with cutting my toes, on the assumption I was too old and decrepit to be able to trim my own toenails!  I was just stunned to find myself put in that 'box' with world of the enfeebled.
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Zach
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"Still crazy after all these years."

« Reply #28 on: August 07, 2008, 01:49:41 PM »


The podiatrist's assistant looked at my feet, commented on how well my toes were trimmed, and asked me who I had to help me with cutting my toes, on the assumption I was too old and decrepit to be able to trim my own toenails!  I was just stunned to find myself put in that 'box' with world of the enfeebled.


Perhaps the assistant thought you were a "liberated male" who went to a salon for regular pedicures.

8)
« Last Edit: August 07, 2008, 01:53:46 PM by Zach » Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
stauffenberg
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« Reply #29 on: August 07, 2008, 04:36:54 PM »

Must have been the lavender cologne I was wearing.
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Romona
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« Reply #30 on: August 07, 2008, 04:50:59 PM »

The weight gain I have had since my transplant. I try to be happy I am alive.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #31 on: August 07, 2008, 05:46:19 PM »

Must have been the lavender cologne I was wearing.

I love lavender cologne.  ;)
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
stauffenberg
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« Reply #32 on: August 07, 2008, 07:35:00 PM »

Anytime you want to trim my toenails, Okarol, just let me know -- perhaps something can be arranged.
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jbeany
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Cattitude

« Reply #33 on: August 07, 2008, 07:42:58 PM »

Anytime you want to trim my toenails, Okarol, just let me know -- perhaps something can be arranged.
:rofl;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

G-Ma
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« Reply #34 on: August 07, 2008, 07:45:33 PM »

where does the toenail line form???
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
paris
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« Reply #35 on: August 07, 2008, 10:39:05 PM »

RichardMel may have a little compitition going on here.

I. for one, love it when Stauffenberg gets a little frisky!! 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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« Reply #36 on: August 07, 2008, 11:07:25 PM »

Anytime you want to trim my toenails, Okarol, just let me know -- perhaps something can be arranged.

I also love a good foot massage.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile

« Reply #37 on: August 08, 2008, 09:09:29 AM »

There's something about this site for sure.  First we're all flirting with RM and now we're heading over to Stauffenberg's place for a spa day, toenail trims, foot massages and that's just for starters.  Gotta love IHD.!!!
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
twirl
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« Reply #38 on: August 08, 2008, 03:10:41 PM »

computer illiterate
can not get the freakin' photos on the post and some are jpg
 :P

Stauffenberg gets friskey? oh my..... :stauffenberg;                 did anyone notice this nurse is called stauffenberg?
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kitkatz
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« Reply #39 on: August 08, 2008, 04:52:49 PM »

Stauffenberg, do you have the little feet fishies to help with the pedicures?
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paris
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« Reply #40 on: August 08, 2008, 06:36:10 PM »

Twirl, some of the icons were named for members--  :Kit n Stik; (kitkatz)   :kickstart; (kickstart) :mysty: (mysty)   :sluff;  (sluff)   Thanks to our creative admins!  We love the smilies!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #41 on: August 09, 2008, 12:35:05 AM »

Not eating like I use to and then there's that darn vision thing. Insomnia I can deal with.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kuronekochan
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« Reply #42 on: August 09, 2008, 01:12:28 AM »

- Not being able to engage in my calling. I am (was?) a corporate finance attorney but can't do the work now because of the long hours required (60-80 hours a week) and the on-call nature of the work does not really permit undergoing dialysis and dealing with dialysis after-effects.

- Not having the flexibility to travel easily. I used to live/work in Tokyo and New York, and at one point was traveling from Tokyo to Bangkok every month to work on a deal. Now I'm trapped in the San Francisco Bay Area and haven't left its environs since I was diagnosed with ESRD.

- Disfigurement. This includes the arm alien (a/k/a fistula), the amazing inflatable face and abdomen (just add water!), and ever-changing skin discoloration, unevenness and altered texture. Sometimes I barely recognize myself in the mirror.

- Surroundings.  I am 37 years old, but most of the patients at my dialysis center are elderly. I don't wish to offend anyone, but spending so much time in what looks like a nursing home makes me feel like my life is essentially over, as if I should sacrifice all ambition and instead focus merely on eating, sleeping, and going back and forth to dialysis.
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boxman55
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« Reply #43 on: August 09, 2008, 06:54:00 AM »

"Surroundings.  I am 37 years old, but most of the patients at my dialysis center are elderly. I don't wish to offend anyone, but spending so much time in what looks like a nursing home makes me feel like my life is essentially over, as if I should sacrifice all ambition and instead focus merely on eating, sleeping, and going back and forth to dialysis"

Sometimes I feel the same way...Boxman
« Last Edit: August 24, 2008, 02:27:48 PM by boxman55 » Logged


"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
G-Ma
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« Reply #44 on: August 09, 2008, 09:24:10 AM »

kuronekochan stated exactly what I feel, thanks.  I am 59 but never felt old until this dialysis thing started, perhaps that is what it is with many of us.  Being tied to a chair....I don't even know if home hemo will change that feeling....I can't strap that machine to my back and just take off for a few days, still needs planning...... :Kit n Stik;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
pelagia
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« Reply #45 on: August 09, 2008, 08:12:24 PM »

I was away for one week on vacation and come back to find that the place has gone wild... :2thumbsup;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kitkatz
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« Reply #46 on: August 09, 2008, 08:13:08 PM »

One of the biggest changes is having to plan your life around treatment times. Sigh!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
twirl
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« Reply #47 on: August 20, 2008, 09:54:39 AM »

I was going to stop by Kroger's today after treatment but I had a shirt full of blood, the prettiest shade of red.
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Ang
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« Reply #48 on: August 21, 2008, 12:20:41 AM »

not  alot  comes  to  mind :yahoo;
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live  life  to  the  full  and you won't  die  wondering
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« Reply #49 on: August 22, 2008, 12:25:48 AM »

Come to think of it, the graft I have in my arm. It sticks out like a sore thumb. It doesn't look natural, nor feel natural. Not to mention it itches and if you scratch it slightly in the right spot, you draw blood easily.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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