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Author Topic: Medication change  (Read 5795 times)
tyefly
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This will be me...... Next spring.... I earned it.

« on: November 28, 2012, 12:53:17 PM »

I received a email from my insurance company on Saturday over the Thanksgiving weekend......   strange to get a email on a holiday weekend.....  Email told me that my insurance company was changing one of my medications to another because of cost.....  This was from a Doctor I had never seen....  I thought this was strange because I would think that my doctor would be involved..... So I did some research on the new medication and found out that there are lots of law suits associated with this medication.....  I am not interested in taking meds that have lots of law suits... and cant believe that my insurance company would want me to take this stuff.... so I called my insurance company and talk with them and told them I was not interested in changing my medication just because it was cheaper and my concern about the law suits involved with this medication.... they told me that I could appeal the decision but that I would probably be denied....  I told them fine , I still want to appeal..... two minutes later they called me back and told me since I was on Medicare with part D  I would not have to appeal their decision and I wouldn't have to take this new medication if I didn't want to..... I ask , just to be sure,   " you mean since I am on Medicare with part D " I get a choice of medications...she told me yes.... I ask her if I wasn't on Medicare then I wouldn't have a choice....she said yes  you would not have a choice, I would have to take the medication that they want me to take or buy it my self......  boy.....  cant believe that my insurance company would send out a letter over a holiday weekend tell people that they have to change their medication without their doctors approval  and take a medication that you may not want......  I feel bad for so many people who do not stand up to these types of problems.... many probably didn't even read the emails over the holiday weekend......    well thank goodness for Medicare .... for now I still have a choice....
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
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MooseMom
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« Reply #1 on: November 28, 2012, 01:29:11 PM »

Whaaaaaaaaaaat?  You mean you resent the fact that a profit-making corporation like an insurance company can make healthcare decisions on your behalf without the imput from your doctor?  You mean you don't like it when a company's bottom line comes between you and your physician?  AND you actually PREFER the being on a government run program like Medicare that actually ALLOWS you to have CHOICE in your healthcare decisions?

Color me flabbergasted.

 :rofl; ::)
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
tyefly
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This will be me...... Next spring.... I earned it.

« Reply #2 on: November 28, 2012, 01:41:36 PM »

MM....... Yes    and     Yes      and   more   Yes....... wish I could write better....but thats what I am saying.......   its not right and I am sticking to it........ 
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
YLGuy
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« Reply #3 on: November 28, 2012, 03:06:47 PM »

Very interesting.  Thank you for posting this.
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Ricksters
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« Reply #4 on: November 28, 2012, 04:53:56 PM »

All I can say is Wow...I didn't know that we even had that option on Medicare Part D..I am gonna file it in my need to know area!


Ricki
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Chris
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« Reply #5 on: November 29, 2012, 11:29:31 PM »

Did you mentioned you never seen or heard of this doctor that changed it also?
 
I wish it was that easy at my local hospital, they will only give me generic anti rejection meds when my tx center say to never take them (been on original drugs to long to change), so I have to bring mine in from home.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
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No two day's are the same, are they?
jeannea
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« Reply #6 on: November 30, 2012, 02:44:23 PM »

I've had this kind of letter about 10 times before. Usually it's just No you can't have that med even though your doctor called and really said you need it. That was even on Medicare Part D for 2 of the letters.
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sullidog
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« Reply #7 on: November 30, 2012, 04:03:17 PM »

I always get letters about how if it do it this way or that it would be cheaper, like for example, my renvela 30 day supply insurance plan ran out, so they told me I could get a 90 day supply for cheaper, the 90 day is 150.00 with my insurance, and you call that cheap? lol
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
jeannea
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« Reply #8 on: December 01, 2012, 07:49:50 PM »

I call that cheap. I was paying $125 for one month.
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KarenInWA
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« Reply #9 on: December 01, 2012, 09:12:03 PM »

I pay $50 a month for my Myfortic (anti-rejection) and that will be going up to $55 a month in January. If I do the 90-day mail order thing, it will cost me $137.50. The one thing I worry about with that, though, is what does temperature do to meds? My mail box is exposed to the weather temperatures. I have an indoor mailbox at one of those mailbox places, but they've refused to deliver to there.

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Chris
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« Reply #10 on: December 01, 2012, 11:42:00 PM »

I pay $50 a month for my Myfortic (anti-rejection) and that will be going up to $55 a month in January. If I do the 90-day mail order thing, it will cost me $137.50. The one thing I worry about with that, though, is what does temperature do to meds? My mail box is exposed to the weather temperatures. I have an indoor mailbox at one of those mailbox places, but they've refused to deliver to there.

KarenInWA

Do you know how they package it up for shipping and will you be ordering other meds at the same time? When I get ones shipped, they are insulated with foam and buvvle wrap in a box, but other meds are shipped in a plastic type envelope. If  worried, can you have it shipped to ypur work place or someone you know who will be home?
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
jeannea
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« Reply #11 on: December 02, 2012, 04:34:06 PM »

I get mine delivered and left on my porch. I've had no problems with heat or cold as long as I get them inside the same day. The pharmaceutical companies actually test them after storing them with extra heat and humidity and make sure they're still ok. I worked in pharmaceuticals. Cold weather is much less likely to cause problems than hot weather except for some liquids.
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sullidog
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« Reply #12 on: December 02, 2012, 06:20:40 PM »

My renvela is in bubble rap and the rest come in those plastic thingies
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
tiredandthirsty
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« Reply #13 on: December 03, 2012, 06:50:39 AM »

wow!!  i have no words.  thanks for sharing this. :urcrazy; :urcrazy;
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