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| | |-+  Fistula surgery completed
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Author Topic: Fistula surgery completed  (Read 4472 times)
Alex C.
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« on: September 13, 2012, 09:17:49 AM »

Now, it's just a matter of time until I'll need to start using it. Any suggestions as to what I should do in the months remaining before I get tied down to regular dialysis appointments?
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mamagemini
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It's all me.

« Reply #1 on: September 13, 2012, 10:54:32 AM »

as too???

Well run freeeeeeeeeeeeeeeeeeeeeee!!! :yahoo; Make more memories! I did as much as I could and went to where every I could go because of no schedule! When you start D, you are locked in....if you go somewhere then you have to prep and make plans for all of your Dialysis stuffage.
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FSGS/Nephrotic syndrome 2005
AV Fistula placed right arm inside elbow 4/2012
Started HD 9/7/2012
Started PD Oct 2015
Parathyroid removed 6/2019
Cellulitis in Fistula 8/2019
RT arm Fistula removed 9/2019
Jill Marie Evans
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« Reply #2 on: September 17, 2012, 08:20:31 AM »

 Crap...I hadn't thought much about that. But you could vacation if there is a dialysis center and you make arrangements, there, right? That would have limitations, but it's something. ???
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MightyMike
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Why do bad things always happen to good people?

« Reply #3 on: September 19, 2012, 08:20:34 PM »

Squeeze a stress ball to pump up that fistula so it gets nice and big and ready for dialysis.  Also take a nice vacation because it's a lot easier before you start dialysis.  Best wishes.
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"The greatest pleasure in life is doing what people say you cannot do."
   -Walter Bagehot
==========================
December 2003 diagnosed with IgA Nephropathy 80% Function.
October 2004 started In-Center Hemo Dialysis Perma-Cath 5% Function.
September 2005 Living Related Donor (Mother) Transplant.
March 2009 Diagnosed CKD and IgA Nephropathy.
August 2009 Upper Left Arm Fistula.
November 2009 started In-Center Hemo Dialysis.
December 2010 started Home Hemo Dialysis.
January 2012 went back to In-Center Hemo Dialysis.
MommyChick
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Me & my precious Miracle !!!

« Reply #4 on: September 20, 2012, 08:54:01 PM »

Crap...I hadn't thought much about that. But you could vacation if there is a dialysis center and you make arrangements, there, right? That would have limitations, but it's something. ???
You can vacation all you want on dialysis you just need to plan ahead a little. I just got back from a week vacation at the beach & it was the best week ever, sure its a lot easier when you don't have dialysis, but 7 yrs of this & I haven't let it stop me yet!! I go on a vacation every year & my social worker is awesome at planing it all for me as soon as i say where I'm going & staying.

ps: Alex please do enjoy yourself while your still free of the mach. :2thumbsup; & don't forget to use the stress ball like MM said.
Good Luck
Marna
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~ Hello All, My names Marna ~

- 1995 - 12 yrs old found out my kidneys were both failing
- 1996 - Dec. 3 I received my 1st kidney transplant at age 13, after 7/mths on the waiting list
- 2005 - In Aug. transplant failed after 9.5 years, had to have a nephrectomy due to being very ill & massive hypertension
           - End of Aug. 1st time on dialysis
- 2006 - Had my fistula placed & ready to go
- 2010 - My little Miracle was born 6/mths into the pregnancy, weighing 2.4 lbs & 13.25 in long
          - Found out my PRA is 100% & I have antibodies that CAN'T be decreased
- 2013 - Oct. 2nd  *** I finally received my kidney!!! ***
          - Dec. 3rd I had 3.5 parathyroids removed, due to them interfering w/my new kidney.
Alex C.
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« Reply #5 on: September 29, 2012, 08:44:09 AM »

Just met with my surgeon, 2 weeks after the surgery. "Only partially successful", he says. Now I need to go in for vein mapping, and another procedure. This sucks.
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Sue
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« Reply #6 on: September 29, 2012, 07:04:25 PM »

same thing for me Alex, i have to have a fistulagram and balloon procedure to fix a stenosis. I am pre dialysis, i had my fistula since april. You're right tho it sucks!
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Whamo
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« Reply #7 on: October 03, 2012, 06:21:58 AM »

Vein mapping?  That's what they did for my first fistula.  It wound up failing after a month of use when they tried to use the big needles.  My second fistula works fine, but I'm going to CAPD because I HATE NEEDLES, among other things. 
If you're not on dialysis, you can avoid it by going on Dr. Walzer's low-protein diet.  The book is cheap.  The amino acid supplements are not.  I did it for 4 years, but I got really weak and didn't watch my potassium (drank a lot of carrot juice), which caused my kidneys to fail.  I actually live better on dialysis than before, when I was on the low protein diet.  Although I didn't have to endure the unpleasant aspects of dialysis, which is a lot to take.
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