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Author Topic: My television debut!  (Read 7304 times)
rsudock
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will of the healthy makes up the fate of the sick.
« on: May 29, 2012, 11:01:57 AM »
Okay so even though many members are not the huge fans of NKF...my living donor and I are going to be on tv June 4th at 8:20am. We are going to be on FOX 8 news in the morning talking about our story and promoting the Kidney Walk in Northeast Ohio. I'm not sure if you can watch online or not, but I know some members are from Ohio. I would love for my IHD family to get a glimpse of my public speaking skills.....

xoxo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
MooseMom
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« Reply #1 on: May 29, 2012, 02:38:21 PM »
This is outstanding!!!  I've just watched Cordelia on Canadian TV being interviewed about donor exchange; she was able to post a link to the TV station's website, and I bet you will be able to do the same.  So once your interview has been aired, maybe you can post a link so that we can go and see you!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Cordelia
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« Reply #2 on: May 29, 2012, 02:41:59 PM »
That's so awesome!!        :yahoo;      Welcome to the public speaking club! LOL         :rofl;          :P

Like MM said, I was able to post the link to my TV debut, I hope you can too!      :thumbup;      Way to go! I can't wait to see it!!       :clap;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
boswife
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us and fam easter 2013
« Reply #3 on: May 29, 2012, 04:10:38 PM »
oh please pleas please find a way to share this with us.  Pretty sure ya can, that will be just so neat to watch..  !!   :cuddle;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #4 on: June 05, 2012, 11:52:47 AM »
no link and my DVR didn't record it!!!!    :stressed;    I will continue to search the FOX 8 website..... :pray;

It did go really well though...poor Jeff he was sooo nervous!! I couldn't believe how low budget the studio was though....I had some big grandiose idea! :)



xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Cordelia
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« Reply #5 on: June 05, 2012, 12:13:53 PM »
Oh noo! I'm sorry to hear that.        :(      I hope you can find it soon.

I know how frustrated you feel. My link to my tv public-speaking debut, was removed off the website where I was,  for space             ::)         >:(
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #6 on: June 19, 2012, 08:36:08 PM »
Hey my donor's wife got a tape of the interview...I will find a way to post it online and show you folks!!!

xoxox,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
boswife
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us and fam easter 2013
« Reply #7 on: June 19, 2012, 09:38:36 PM »
Yeah!!!!!!!  i was hoping that it was here now already .. looken forward to it  ;D
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #8 on: July 02, 2012, 09:16:13 PM »
haven't received anything yet...  :waiting;

xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
MooseMom
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« Reply #9 on: July 02, 2012, 09:47:38 PM »
Can't wait to see it!  It will bring a smile to all of our faces! :clap;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #10 on: July 07, 2012, 10:55:00 AM »
http://youtu.be/dnxtF9jWRcQ


Alright here it is for your viewing pleasure!!!

I have one criticism...of course but let me know what you think...

xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #11 on: July 07, 2012, 10:56:02 AM »
woo hoo the link worked!!! what a techie I am!!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
MooseMom
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« Reply #12 on: July 07, 2012, 11:04:40 AM »
Fantastic!  You look gorgeous as always!  And you know, one thing that I thought was really important was how it was emphasized that because Jeff was told he needed to lose weight and get his bp and blood sugar down before he could donate, he did just that and has been rewarded with better health himself.  As he said, it was a win-win.  I think it is really important to potential donors to know that they can actually benefit from donation.

I don't see anything to critique except I thought the presenter was a little bit ditzy.  LOL!

Thanks so much for being such a techie whiz and posting the link.  I've been waitiing forever for it.! :2thumbsup;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #13 on: July 07, 2012, 11:07:02 AM »
aw Moosey thanks dear...I thought I smiled to much!  :rofl;  I know it is a ridiculous...but I thought it....


Hope you are continuing to heal and grow stronger everyday...and about that trip to OHIO...

xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
MooseMom
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« Reply #14 on: July 07, 2012, 11:09:58 AM »
I'd LOVE to come see you and Neil in Ohio!  Be sure you mean it, because I'll be there before you know it!  LOL!

You have a dazzling smile, and you have every reason to use it as much as you can, especially when talking about getting a tx from an altruistic donor!  You were charming and articulate, the perfect spokesperson for the cause!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cariad
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« Reply #15 on: July 07, 2012, 02:19:02 PM »
LOVED IT!!!! So sophisticated and well spoken, Rachel.

Quote from: MooseMom on July 07, 2012, 11:04:40 AM
I don't see anything to critique except I thought the presenter was a little bit ditzy.  LOL!
Oh dear, so it wasn't just me. :rofl; When her first question was about diabetes, I immediately said to the screen "Wait, she's got PKD!" Also, calling you perfect strangers was confusing since it was false. Did they do any kind of pre-interview, or did they just throw you both out there and let her muddle her way through?

You've done us proud, Rachel. :yahoo;
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« Reply #16 on: July 08, 2012, 06:15:27 PM »
Absolute ripper, Rachel! And, as for the smile, bloody dazzling!!
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boswife
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us and fam easter 2013
« Reply #17 on: July 08, 2012, 08:57:41 PM »
Awwwww RAch, that was terrific!!  and it was so good to 'see' you in action...  Great job!!  Thanks so much for tracking it down and sharing sweetness..  hugs, and hope alls well with you and bro.
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Bill Peckham
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« Reply #18 on: July 08, 2012, 09:51:09 PM »
Nice job!!
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« Reply #19 on: July 08, 2012, 10:44:13 PM »
That was great!  :2thumbsup;  :clap;
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natnnnat
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WWW
« Reply #20 on: July 09, 2012, 03:03:00 AM »
That's fantastic Rachel!!! You look great, said coherent and relevant things, sounded interesting, covered for the hostess who was a bit lost at first, and smiled like a superstar.  And what a lovely guy that Jeff character seems to be.  Nice looking sort, too, I like tall men.  Lovely.  Great to see.  Grinning a lot now.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
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Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
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« Reply #21 on: July 09, 2012, 12:28:49 PM »
"Loved it!!!!!"  Good job!  Hopefully Neil has a match out there too!  Thanks for getting the word out for all who are in need! Walks are good for awareness.

lmunchkin :kickstart;
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« Reply #22 on: July 09, 2012, 12:50:43 PM »
FANTASTIC -- GREAT -- sorry I could not get it online --

I am one who is not a fan of NKF - however, there are reasons for such --- Several years back I got kudos for some of my work from NKF head huncho--however, when I then asked for support related to delivery of care in facilities, well, they wanted no part of it -- I am talking about the retaliation/bullying of patients, the lack of adhering to correct procedures, etc... But, I do give them credit for what they do
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noahvale
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« Reply #23 on: July 10, 2012, 06:22:29 AM »
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« Reply #24 on: July 10, 2012, 06:00:58 PM »
Having donated a kidney 12 years ago, I can tell Jeff what problems lie ahead: NOTHING!!!  There hasn't been a day I've regretted it, most day's I don't even think about it, and after the recovery I've never felt any different.  And best of all it is still going!

Usually I don't like to mention it - except when it might do somebody some good, so here is to you Jeff!
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