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Author Topic: Health Insurance  (Read 3204 times)
Ladybag
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« on: May 24, 2012, 09:21:26 AM »
Hi all,
I am wondering if anyone may have answers to this FRUSTRATING TOPIC! My company is losing our health insurance which means I am losing it and everytime we go somewhere they say they will not insure me because of my transplant. I call and try and get quotes for myself and they say we won't touch you. What am I suppose to do? If they give us transplants why don't they help us keep them?! I am sorry but I am pissed right now, if they let me have this gift then why don't they want me to keep it! If anyone can help me with this anything will help. I live in Arizona if that helps.
Thanks everyone!
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IGA Nephropahty Dec. 2007
ESRD May 2010
PD Cathiter May 2010
Dialysis June 2010
Kidney Transplant April 13, 2011
noahvale
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« Reply #1 on: May 24, 2012, 09:49:59 AM »
^
« Last Edit: September 17, 2015, 08:03:03 AM by noahvale » Logged
KarenInWA
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« Reply #2 on: May 24, 2012, 02:57:19 PM »
You may want to look into Arizona's High Risk Insurance Pool. It is state-run, not the same as the Federal one that is put in place until the ACA kicks in for us in 2014. I don't know what the specific rules of eligibility are, but I'm sure it's worth looking into. How long have you had your transplant?

And yes, I think it is ludricous the way we and all sick people get treated in this country. Those who say they are "pro-life", why does your care end once the life is no longer a fetus? This I will never understand (and yes, I know, I shouldn't make this political...)

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Ladybag
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« Reply #3 on: May 24, 2012, 06:21:16 PM »
I want to thank you both for helping me and giving me ideas. I have tried all of them I just got off the phone with the state of AZ and they told me I don't qualify if I want to keep Medicare (my secondary) I have had my transplant since 4/13/11. I was told by Medicare they would pick me up if I didn't work and that's not an option. This is starting to really take it's toll on me and my health, I would prefer to just curl in a ball and not ever leave my room. A part of me doesn't want to take my meds anymore because I don't see the point...if no one will help and I can't afford them then why. The one reason and MAJOR one I have not stopped is because my Uncle gave me this kidney so I can have my life back and I will not be selfish and just blow it off. I will take care of me until I can't and I will fight but I need help from somewhere. Why won't they help all of us if we are fighting to stay here? :sos;
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IGA Nephropahty Dec. 2007
ESRD May 2010
PD Cathiter May 2010
Dialysis June 2010
Kidney Transplant April 13, 2011
jeannea
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« Reply #4 on: May 24, 2012, 07:54:55 PM »
Call the social worker at the transplant center and ask for help. You should be able to make Medicare primary and buy Part C and Part D. That will give you time to come up with another solution.
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jeannea
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« Reply #5 on: May 24, 2012, 07:56:01 PM »
P.S. If you have trouble setting up your Medicare, go to your congessman's office. That helped me.
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