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Author Topic: Props to all you Hemo Patients!  (Read 3455 times)
Annig83
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« on: March 16, 2012, 08:50:38 PM »
 :cheer: :cheer: :cheer: :cheer: :cheer:

So I have moved to Indianapolis, and started seeing a new Nephrologist and being in a whole new center was quite an eye-opener.  I've been very very very LUCKY to have had really amazing doctors, and it seems like this new one is going to be just as great as my last one.... ANYWAY...

When I went to meet my new Neph. they had me sit in the Hemo room.  I do CCPD and I had never actually been in a Hemo room.  I sat in this high off the ground putrid green chiar, next to me was the "MACHINE"!!!  Oh my!  They had charts and tubing and labels everywhere to show how to use it, and the D nurse even expalined how some things worked.  I have never been so glad to be on CCPD, and I don't mean that to sound offensive or anything...I honestly, just felt nervous around that machine, and the thought of having a fistula, and being poked every time and having to sit in that chair for 4 hours... I'm lucky enough to be able to just sleep and have the cycler do all the work while I'm snoring ZZZZZZ's.  I just wanted to say that all of you dealing with Hemo I give you  props!!!  (And I mean I give all of us a pat on the back too...this was just quite an eye-opener for me!)
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
boswife
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us and fam easter 2013
« Reply #1 on: March 16, 2012, 09:05:06 PM »
ya know, sometimes i tell my hubby... "your so brave"!  we do home hemo and he tells me "im" brave cause i do the sticking..lol  Yea, i give props to all who deal with this as well.. Eather way you go, it's REALLY something isnt it. 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Gerald Lively
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« Reply #2 on: March 16, 2012, 10:50:35 PM »
I am told that I snored while on dialysis. The good news is that everyone around me knew I was alive.
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Hodgkin's Lymphoma - 1993
Prostate Cancer - 1994
Gall Bladder - 1995
Prostate Cancer return - 2000
Radiated Prostate 
Cataract Surgery 2010
Hodgkin's Lymphoma return - 2011 - Chemo
Renal Failure - 2011
Renal Function returned after eight months of dialysis - 2012
Hodgkin's Lymphoma returned 2012 - Lifetime Chemo


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have their roots in human needs.

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cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: March 17, 2012, 05:45:04 AM »
lovely Gerald, I'm sure that made them feel .... alive. Yes Annig83, I agree and think everytime I come out of there; good job done. But thanx for that anyway, and 'enjoy' ccpd for as long as you can.

love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
jeannea
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« Reply #4 on: March 17, 2012, 10:35:21 AM »
I had to do 6 months of hemo before being switched to PD due to some intestinal infections. Luckily I had a catheter and didn't get stuck. But for the people who do hemo year after year, I am with you. I used to dread going. Not that I love PD but it is slightly better.
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kitkatz
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« Reply #5 on: March 17, 2012, 05:37:34 PM »
Thanks for the props!  Thirteen years on hemo.  Still going and going. 
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Sax-O-Trix
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« Reply #6 on: March 17, 2012, 08:29:19 PM »
Even though I was blessed with a preemptive transplant, I think about dialysis all the time because chances are, it's  in my future.  I could never do HD.  I bawl every time I have an I.V. and those needles are "only" 20 something guage.   A 15 dialysis gauge needle looks like a toothpick!!!  I have a pretty good idea what HD would be like with a chest cath because I had to have plasmapherisis treatments  for a few weeks post transplant.  That was scary as hell and the risk of infection hanging over my head was almost debilitating. 

 I have so much empathy and even more respect for
HD and PD patients!!!   :bow;
« Last Edit: March 17, 2012, 08:30:55 PM by Sax-O-Trix » Logged
Preemptive transplant recipient, living donor (brother)- March 2011
cassandra
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When all else fails run in circles, shout loudly
« Reply #7 on: March 18, 2012, 09:52:56 AM »
oh thank you Sax-O-Tix. But I might be okay with the 15/16 G needles, but I'm still huffing, and puffing about the flew-jab or something.
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
big777bill
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« Reply #8 on: March 18, 2012, 12:43:30 PM »
 When you're told that you can't have a transplant, you're not a candidate for PD, all the sudden those 15 gauge needles don't look so bad  :flower;
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liver transplant 3/22/2005
CKD 2008
 
fistula 11/17/2011
 catheter 2/07/2012
 started  hemo-dialysis in center 2/07/2012
 fistula transposition 3/08/2012
 NxStage at home  3/29/2012
 Using fistula at home 6/25/2012
 Using new NxStage S High-Flow cycler 3/04/2014
cassandra
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When all else fails run in circles, shout loudly
« Reply #9 on: March 18, 2012, 02:54:34 PM »
Is that true BigBill?
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
big777bill
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« Reply #10 on: March 18, 2012, 03:40:58 PM »
 True enough
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liver transplant 3/22/2005
CKD 2008
 
fistula 11/17/2011
 catheter 2/07/2012
 started  hemo-dialysis in center 2/07/2012
 fistula transposition 3/08/2012
 NxStage at home  3/29/2012
 Using fistula at home 6/25/2012
 Using new NxStage S High-Flow cycler 3/04/2014
galvo
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« Reply #11 on: March 18, 2012, 06:28:27 PM »
I've now moved onto 14 gauge. Known locally as crowbars!
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Galvo
lmunchkin
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"There Is No Place Like Home!"
« Reply #12 on: March 18, 2012, 08:11:07 PM »
Quote from: big777bill on March 18, 2012, 12:43:30 PM
When you're told that you can't have a transplant, you're not a candidate for PD, all the sudden those 15 gauge needles don't look so bad  :flower;

Same here Bill.  No other choices available. J did very well with PD though, for 5 years.  But after bouts with Peritionits, he could not do PD anymore.  Thanks for the props Anng.  It is a very difficult thing to watch and Im sure for the ones who have this, to go through it. Enjoy your PD while you can.  Some have been doing it for years and some are not so lucky!  Hemo was definately harder for me to learn than PD, but both were challanging to us.

God Bless,
lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
cassandra
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When all else fails run in circles, shout loudly
« Reply #13 on: March 19, 2012, 02:22:26 AM »
however we look at it, its hard, but it saves our lives (for as long as it lasts that is) When I'm in my laughter-therapy phase (which actually works!!) I say to myself that I choose to do this. I could also choose to stay at home, and die, but I choose to stay a live, cos its still worth it.
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Traveller1947
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« Reply #14 on: March 19, 2012, 07:19:14 AM »
Thanks for the props, Annig!  I agree with cassandra and bigbill.  I'm willing to do whatever will keep me alive.  I can't afford to worry about the size of the needles or the fact that I can't have my fill of pizza.  It's my choice to live as long and well as I can.  Not a candidate for transplant or PD...
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big777bill
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« Reply #15 on: March 19, 2012, 01:55:24 PM »
 Cassandra amen to that! Whatever it takes to keep on going. I like the idea of "laughter therapy".
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liver transplant 3/22/2005
CKD 2008
 
fistula 11/17/2011
 catheter 2/07/2012
 started  hemo-dialysis in center 2/07/2012
 fistula transposition 3/08/2012
 NxStage at home  3/29/2012
 Using fistula at home 6/25/2012
 Using new NxStage S High-Flow cycler 3/04/2014
Whamo
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« Reply #16 on: March 20, 2012, 01:58:41 PM »
Hey, dialysis is better than hearing the wife complain when the Queen is in a bad mood.
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kitkatz
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« Reply #17 on: March 20, 2012, 09:54:08 PM »
Quote from: big777bill on March 18, 2012, 12:43:30 PM
When you're told that you can't have a transplant, you're not a candidate for PD, all the sudden those 15 gauge needles don't look so bad  :flower;


Amen to that!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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