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Author Topic: Muscle Cramps  (Read 19406 times)
Wildrose
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« on: February 04, 2012, 09:20:45 PM »

Who would have thought just deciding where to post a topic would be so difficult. Do I put it in general discussion, under rants or under pre-dialysis? Can I rant about too many topics? Just kidding... nice mods, nice mods...

So, I'm pre-dialysis, waiting for insurance or a Dr to get his/her head out of where the sun doesn't shine and do the dang surgery without my having insurance. In the mean time I'm nauseous (and no, I don't feel like doing spell check right now), having severe muscle cramps, insomnia, restless leg syndrome, etc etc. Although whats really got me in a tizzy right now is the muscle cramps. They hurt! I wasn't even sleeping. It sucks.

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1995 - Diagnosed with 'some kind' of kidney disease during first pregnancy at 16 yrs old due to excess protein in urine
1998 - Biopsy diagnosis of IGA Nephropathy at age 18
2007 - Successful second pregnancy, creatnine of 1.8 something
2009 - Successful third pregnancy creatnine of 2 something
2009-November of 2011 - Somehow went from Creatnine of 2 something to 5.43
November 2011 - Diagnosed with End Stage Renal Disease
3/28/12 - Started Peritoneal Dialysis
5/21/12 - Ended up in hospital for 5 days with PD fluid leaking through hole in diaphragm to right lung
5/25/12 - IJ catheter placed, 5/26/12 - First in center hemo treatment
6/15/12 - Back on PD for three weeks and hemo at same time, 7/7/12 - PD fluid leaked again, off PD and still on hemo, 7/15/12 - on PD again and hemo
7/23/12 - chest xray shows fluid leak again, off PD for one month with possible thoracic surgery in future to fix hole in diaphragm. 5.70 creatnine
8/7/12 - 24 hr urine test shows improved kidney function. 3.47 creatnine - Dr reduced hemodialysis from 3x's to 2xs a week.
MaryD
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« Reply #1 on: February 05, 2012, 12:04:55 AM »

Wildrose, I have found that drinking about 250 mls of tonic water in the afternoon/evening STOPS my cramps at night.  I only get cramps in my fingers and thumbs during the day, but they seem to disappear when I remember my tonic water.

I had cramps before I started PD, and still get them after starting.  The tonic water really helps
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Cordelia
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« Reply #2 on: February 05, 2012, 05:32:47 AM »

I had the exact same thing just before starting dialysis. Once I started dialysis, the severe muscle cramps and the restless leg went away. You will most likely feel better once you start D.
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
big777bill
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« Reply #3 on: February 05, 2012, 06:55:29 AM »

 I've been having all the same symptoms. I called my Dr to complain about it and she gave me Ativan. I didn't think it would help much either but to my surprise the nausea and restless leg are much better. I can sleep almost all night long too. I don't know if it will work for you but they helped make it bearable for me. I was thinking about moving to Cali to get some medical pot but that seemed extreme beings I live in NJ.lol
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liver transplant 3/22/2005
CKD 2008
 
fistula 11/17/2011
 catheter 2/07/2012
 started  hemo-dialysis in center 2/07/2012
 fistula transposition 3/08/2012
 NxStage at home  3/29/2012
 Using fistula at home 6/25/2012
 Using new NxStage S High-Flow cycler 3/04/2014
Rerun
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Going through life tied to a chair!

« Reply #4 on: February 05, 2012, 07:47:55 AM »

Tonic water has quinine in it and quinine is a natural muscle relaxer.  I use tonic water (diet).

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Jean
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« Reply #5 on: February 05, 2012, 03:16:40 PM »

Rerun has the best tip of all. Once she told me about it, things improved. Unfortunately they once again got worse, so now it is 1/2 glass cranberry juice, 1/2 glass tonic water and 3 muscle relaxers a day. I really just hate charlie horses and muscle cramps.
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One day at a time, thats all I can do.
Mr Pink
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« Reply #6 on: September 13, 2012, 12:55:51 AM »

I suffer from muscle cramps, especially at night. Strangely enough, the cramps mostly occur in my right calf, and occasionally in my foot. Somewhat embarrassingly, I sometimes get a leg cramp at a most awkward moment... when I'm getting, shall we say, very friendly with a member of the opposite sex! Sometimes, when I break into a gallop in the final straight, on occasion I've lept out of bed in screaming pain as a damn cramp kicks in right at the wrong time, usually to the startled amusement of the other party, and considerable embarrassment to yours truly. Subsequently, I get a little nervous when those special occasions arise, so to speak. If I can, I sneak into another room and do some stretching exercises in the hope that these little episodes can be avoided. Tonic water has become my secret weapon in the fight against cramp. I guess I should be grateful that CKD hasn't completely killed off my mojo.
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Grumpy-1
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Make me the person my dog thinks I am

« Reply #7 on: September 13, 2012, 04:29:37 AM »

Mr Pink  :rofl;  :rofl;  :rofl;
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Make me the person my dog thinks I am
Rerun
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Going through life tied to a chair!

« Reply #8 on: September 13, 2012, 06:25:30 AM »

Sorry, but   :rofl;  :rofl;
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mamagemini
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« Reply #9 on: September 13, 2012, 10:56:03 AM »

 :rofl; :rofl; :rofl; :rofl; :rofl; :rofl; :rofl; :rofl; :rofl;
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FSGS/Nephrotic syndrome 2005
AV Fistula placed right arm inside elbow 4/2012
Started HD 9/7/2012
Started PD Oct 2015
Parathyroid removed 6/2019
Cellulitis in Fistula 8/2019
RT arm Fistula removed 9/2019
Sydnee
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WWW
« Reply #10 on: September 13, 2012, 12:08:52 PM »

I can't imagine amusement :shy;
My hubby gets legs and hand cramps still. And yes it has stopped being "friendly" but never in the middle.
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After a hard fight to not start I started dialysis 9/13
started on PD
hoping for home hemo starting to build a fistula 1/14
cause PKD diagnosed age 14

Wife to Ed (who started dialysis 1/12 and got his kidney 10/13)
Mother to Gehlan 18, Alison 16, Jonathan 12, and Evalynn 7. All still at home.
www.donate2benefit.webs.com
Jean
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« Reply #11 on: September 14, 2012, 12:28:25 AM »

Now THAT is hysterical!!!!     :rofl; :rofl;
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One day at a time, thats all I can do.
AnnieB
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« Reply #12 on: September 14, 2012, 01:18:20 PM »

 :rofl; :rofl; LMAO Mr. Pink
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Clara
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« Reply #13 on: September 14, 2012, 10:38:33 PM »

I am so glad that I am not the only one Mr. Pink.  It sure ruins the moment.
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MightyMike
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Why do bad things always happen to good people?

« Reply #14 on: September 17, 2012, 07:12:13 PM »

Do they have you on lasix?  That cause you to urinate more but also sucks potassium out of your muscles which can cause bad cramps.  I use to have that problem I would get cramps everywhere I think the most painful cramps were in my jaw.
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"The greatest pleasure in life is doing what people say you cannot do."
   -Walter Bagehot
==========================
December 2003 diagnosed with IgA Nephropathy 80% Function.
October 2004 started In-Center Hemo Dialysis Perma-Cath 5% Function.
September 2005 Living Related Donor (Mother) Transplant.
March 2009 Diagnosed CKD and IgA Nephropathy.
August 2009 Upper Left Arm Fistula.
November 2009 started In-Center Hemo Dialysis.
December 2010 started Home Hemo Dialysis.
January 2012 went back to In-Center Hemo Dialysis.
Mr Pink
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« Reply #15 on: September 21, 2012, 03:15:56 AM »

I'm not on anything as such for cramps. I had an absolute doozy of a cramp last night, which was so severe I thought I was going to pass out. No, it wasn't during the throws of passion, either. This one was in my left wrist, and again I stress, nothing untoward was taking place. I see my doctor on Monday, and I'll be sure to bring up the subject because I can't be having that, especially if I'm at work, or otherwise occupied with a bit of after hours recreation for two! In fact it was so bad last night, amongst all the swearing and cursing, it's possible that I invented a new word! I guess it must be getting close now, which doesn't exactly have me jumping over the moon. I'll be taking something to help me sleep tonight. A cramp free night would be like an early Christmas present, right about now.       
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Alex C.
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« Reply #16 on: September 21, 2012, 06:36:44 AM »

Before my kidneys got as bad as they are, my secret for avoiding calf cramps was a banana a day. Unfortunately, bananas aren't good for us. I can usually avoid nighttime calf cramps by sleeping with my legs extended.
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cassandra
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« Reply #17 on: September 22, 2012, 01:57:24 PM »

Oops it took me a while to remember, but when I was loosing my dad's kidney, I was eventually prescribed Sodium (or Natrium) bicarbonate. That's what stopped my cramps.

NB also lowers your potassium a bit.

good luck Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
mamagemini
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It's all me.

« Reply #18 on: September 22, 2012, 05:35:42 PM »

I read that pickle juice was a great cramp reliever.
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FSGS/Nephrotic syndrome 2005
AV Fistula placed right arm inside elbow 4/2012
Started HD 9/7/2012
Started PD Oct 2015
Parathyroid removed 6/2019
Cellulitis in Fistula 8/2019
RT arm Fistula removed 9/2019
MommyChick
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Me & my precious Miracle !!!

« Reply #19 on: September 22, 2012, 06:18:31 PM »

I read that pickle juice was a great cramp reliever.

My hubby used to swear by pickle juice! He would use it when he would cramp from workouts. As much as I love pickles... straight pickle juice grosses me out! haha But hey.. whatever works!  :beer1;
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~ Hello All, My names Marna ~

- 1995 - 12 yrs old found out my kidneys were both failing
- 1996 - Dec. 3 I received my 1st kidney transplant at age 13, after 7/mths on the waiting list
- 2005 - In Aug. transplant failed after 9.5 years, had to have a nephrectomy due to being very ill & massive hypertension
           - End of Aug. 1st time on dialysis
- 2006 - Had my fistula placed & ready to go
- 2010 - My little Miracle was born 6/mths into the pregnancy, weighing 2.4 lbs & 13.25 in long
          - Found out my PRA is 100% & I have antibodies that CAN'T be decreased
- 2013 - Oct. 2nd  *** I finally received my kidney!!! ***
          - Dec. 3rd I had 3.5 parathyroids removed, due to them interfering w/my new kidney.
Mr Pink
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« Reply #20 on: September 27, 2012, 01:59:46 AM »

OK, so the winning move turned out to be an increase in sodium bicarbonates. I've been sleeping like a baby since. Happy days. So far, cramp and gout are the worst things about CKD. Thank goodness for meds, is all I can say.   
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Clara
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« Reply #21 on: October 05, 2012, 07:57:59 PM »

Yum pickle juice.  I crave it sometimes.
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malaka
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« Reply #22 on: October 09, 2012, 12:26:06 PM »

Note what FDA sent out re Qualaquin (quinine) drug and leg cramps.  No doc in his/her right mind ignores as "Dear Doctor" letter.....

I suppose they'll out tonic water next (my home-grown treatment).

http://www.fda.gov/safety/medwatch/safetyinformation/safetyalertsforhumanmedicalproducts/ucm218424.htm

Sorry if this is  a repost
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MaryD
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« Reply #23 on: October 09, 2012, 02:21:57 PM »

I have found that massaging a leg cramp away will take anything from 3 - 5 minutes (and the whole process is very painful).  However, if I use a fast, firm patting action with both hands, the cramp has usually gone in less than a minute.  It's a firm, but light pat and as fast as I can go, and both hands are out of sync - a bit like drumming.

I would be interested if anyone else tries this and is successful, or is it all in my mind.
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Clara
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« Reply #24 on: October 10, 2012, 09:01:03 PM »

I had rib cramps the other night.  I though I had cracked a rib.  It even hurt to breath.  Those suck big time.
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