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Author Topic: Jenna's 5 year kidneyversary!  (Read 6517 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: January 18, 2012, 02:46:35 AM »
We celebrated Jenna's 5 years and the Brave Little Kidney with a pink kidney cake!
Jenna had been on dialysis for over 3 years - had about 500 treatments. This transplant has given her freedom from needles and sitting, waiting for dialysis to end, only to begin again.
She doesn't know how long her transplant will last, but for today she's doing ok.
We'll always be grateful to her donor Patrice. Living donors make miracles happen!
Here's Jenna with her sister and brother.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
lola
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« Reply #1 on: January 18, 2012, 02:51:27 AM »
 :bandance; :bandance; :bandance;
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Sluff
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« Reply #2 on: January 18, 2012, 05:39:20 AM »
 :2thumbsup; Hope it keeps on keeping on.
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Whamo
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« Reply #3 on: January 18, 2012, 06:57:42 AM »
 :birthday; :bandance; :clap; :yahoo; :pray;
I pray everything goes well for her.
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gothiclovemonkey
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« Reply #4 on: January 18, 2012, 07:54:56 AM »
 :yahoo; :2thumbsup; :clap; :thumbup; :thumbup; :bandance;
we need a kidney "smiley" of some kind!
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
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jeannea
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« Reply #5 on: January 18, 2012, 08:33:48 AM »
Happy Anniversary! When I had my 5th we really celebrated. Enjoy!
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plugger
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« Reply #6 on: January 18, 2012, 09:16:35 AM »
 :2thumbsup;  Thanks for giving me a smile today!  And looking forward to the 10 year kidneyversary!!!

Might be a good time to remind people of Karol's work with living donors:
http://kidneytimes.com/article.php?id=20090730163148
 
« Last Edit: January 18, 2012, 09:18:33 AM by plugger » Logged
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Ladystardust24
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« Reply #7 on: January 18, 2012, 10:08:50 AM »
:) Congrats to you all! Please say hi to Jenna from me.  :bandance;
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Dialysis 99-01
transplanted 01-04
Dialysis 04-10
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Very grateful for my Ziggy Bean.
Rerun
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« Reply #8 on: January 18, 2012, 12:21:28 PM »
Happy Anniversary!

           :yahoo;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #9 on: January 18, 2012, 12:39:02 PM »
Quote from: jeannea on January 18, 2012, 08:33:48 AM
Happy Anniversary! When I had my 5th we really celebrated. Enjoy!

LOL love this!  :clap;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #10 on: January 18, 2012, 12:43:11 PM »
Quote from: Ladystardust24 on January 18, 2012, 10:08:50 AM
:) Congrats to you all! Please say hi to Jenna from me.  :bandance;
Quote from: plugger on January 18, 2012, 09:16:35 AM
:2thumbsup;  Thanks for giving me a smile today!  And looking forward to the 10 year kidneyversary!!!

Might be a good time to remind people of Karol's work with living donors:
http://kidneytimes.com/article.php?id=20090730163148
 


Quote from: jeannea on January 18, 2012, 08:33:48 AM
Happy Anniversary! When I had my 5th we really celebrated. Enjoy!
Quote from: gothiclovemonkey on January 18, 2012, 07:54:56 AM
:yahoo; :2thumbsup; :clap; :thumbup; :thumbup; :bandance;
we need a kidney "smiley" of some kind!

Quote from: Whamo on January 18, 2012, 06:57:42 AM
:birthday; :bandance; :clap; :yahoo; :pray;
I pray everything goes well for her.
Quote from: Sluff on January 18, 2012, 05:39:20 AM
:2thumbsup; Hope it keeps on keeping on.
Quote from: lola on January 18, 2012, 02:51:27 AM
:bandance; :bandance; :bandance;
Quote from: Rerun on January 18, 2012, 12:21:28 PM
Happy Anniversary!

           :yahoo;

  :yahoo; Thank you!!!  :thx;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
ToddB0130
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« Reply #11 on: January 18, 2012, 07:49:49 PM »
You have gorgeous kids !   Congrats to Jenna on her 5th anniversary.  Here's hoping for many more !!
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« Reply #12 on: January 18, 2012, 08:56:01 PM »
 :yahoo; :yahoo; :clap; :clap; :2thumbsup; :2thumbsup;
Congrats!!   Happy Kidneyversary!!!   
Absolutely beautiful pict!
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natnnnat
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« Reply #13 on: January 18, 2012, 11:23:49 PM »
Go little kidney.   :thumbup; :thumbup; :thumbup;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #14 on: January 20, 2012, 02:04:03 AM »
Quote from: Bajanne on January 18, 2012, 08:56:01 PM
:yahoo; :yahoo; :clap; :clap; :2thumbsup; :2thumbsup;
Congrats!!   Happy Kidneyversary!!!   
Absolutely beautiful pict!
Quote from: natnnnat on January 18, 2012, 11:23:49 PM
Go little kidney.   :thumbup; :thumbup; :thumbup;
Quote from: ToddB0130 on January 18, 2012, 07:49:49 PM
You have gorgeous kids !   Congrats to Jenna on her 5th anniversary.  Here's hoping for many more !!

 :2thumbsup; Love you guys, thanks!  :bow;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Big E
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« Reply #15 on: January 25, 2012, 01:23:31 PM »
Karol, you're a great mom.  Hoping Jenna has many more kidneyversaries.
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PKD diagnosed June 1996
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Roxy
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« Reply #16 on: January 25, 2012, 08:40:32 PM »
Yay!!! So happy to hear she's feeling well! Congrats!!!  :yahoo;   :bandance;
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MooseMom
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« Reply #17 on: January 25, 2012, 09:09:48 PM »
How in the world did I miss this thread? ::)

This is such wonderful news, Okarol.  Congrats to you all.  I know that Jenna's wellbeing is a result of the efforts of everyone in your family.  I hope that kidney goes on forever. :grouphug;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #18 on: January 28, 2012, 04:54:07 AM »
Quote from: MooseMom on January 25, 2012, 09:09:48 PM
How in the world did I miss this thread? ::)

This is such wonderful news, Okarol.  Congrats to you all.  I know that Jenna's wellbeing is a result of the efforts of everyone in your family.  I hope that kidney goes on forever. :grouphug;

Thank you MM - I was pretty sure I posted the photo but could not find it today. So now it's on here a few times.  :oops;
Jenna has lost a bit more function this month so the stability she held on to for the last 2 years has inched closer to dialysis. She's working on getting multi listed, and exploring desensitization, and I hope she can keep feeling good for now.   :thx;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MissRene12
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« Reply #19 on: January 28, 2012, 02:13:55 PM »
Wonderful news! Congrats to you and your lovely family!!
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Fiancée of my hon, who has been living with CKD for more than 10 years.  Our story:

   - 2000: Hon hospitalized with renal failure.  Stabilized and sent home.  

<3 2003: Introduced through mutual friends following a comedy show. 
<3 2003 - 2005: Became awesome friends. 
<3 2005: FINALLY started dating - total goofy, silly love.  
<3 March 2011: Engaged!

   - 2 days later: Hon notified of dropping function, kidney or treatment needed in near future.  
   - Jan. 3,  2012: Hon's PD catheter placed. 
   - Jan. 17, 2012: Starting home PD training.  

<3 Wedding plans in full force, driving towards our June 2012 date. I know this is dripping with cheese, but we do manage to have fun through this craziness.
Ang
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« Reply #20 on: January 28, 2012, 04:08:26 PM »
 :thumbup;
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jbeany
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« Reply #21 on: January 29, 2012, 01:39:54 PM »
The little kidney that could is still chugging away!  Hope it holds on for years more.   :bestwishes;
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